Low muscle tone in kids

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

New poster. That’s one example. I walked at 20 months. Of course LMT and hypotonia were not known when I was a child.

My nephew was not walking at 23 months and his pediatrician caught LMT and suggested we look for a family history. My father was a late walker and my grandfather had been said to have “rickets” as a toddler which was probably their way of diagnosis of LMT.

Then my daughter popped up too and we knew she needed PT.

How old are you? Hypotonia was definitely diagnosed 50 years ago.

[Anonymous]

My son was also diagnosed with hypotonia. He received OT through Fairfax county when in elementary school. Like the other posters kids, he was never in sports but has done just fine otherwise.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

While technically you're correct about 18 months being in the "range of normal", it is definitely a red flag. And anyone who says otherwise has their head in the sand. Also, your statement of "who care if a kid runs later" is quite tone deaf on your part. Yes, your statement cuts a bit deep for me because my DS was late with all of his milestones, including walking and running. His life has been difficult, and also ours as we watch other boys his age achieve and surpass and excel, while our DS struggles to do some of the simplest things like tie a knot, or tie his shoes....as a teenager. So you need to be a bit more sensitive with your words.

+1 Obviously that poster has no clue about low muscle tone and how walking later and running later affect everything. The kid gets more behind. While they are learning to run, other kids are starting sports.

Yep, right now we're experiencing what it feels like to watch DS' peers get excited about starting university in the Fall, while we HOPE that DS will be okay taking a couple of classes at community college. It's the first thing I think about when I wake up, and the last thing I think about when I go to sleep. the struggle actually, literally is real.

I feel for you. It is a huge struggle and everything has been harder for my son. We struggle now with him listening and behavior issues.

First PP here. For our DS the behavioral issues have increased with age, instead of decreased. He's oppositional, and says "no" to just about everything we say. that's hard to swallow when your kid is 18. Only way I can describe it is "arrested development", because so many things are challenging for him and he has to put 10x's the effort in he just gives up and does nothing instead.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

While technically you're correct about 18 months being in the "range of normal", it is definitely a red flag. And anyone who says otherwise has their head in the sand. Also, your statement of "who care if a kid runs later" is quite tone deaf on your part. Yes, your statement cuts a bit deep for me because my DS was late with all of his milestones, including walking and running. His life has been difficult, and also ours as we watch other boys his age achieve and surpass and excel, while our DS struggles to do some of the simplest things like tie a knot, or tie his shoes....as a teenager. So you need to be a bit more sensitive with your words.

+1 Obviously that poster has no clue about low muscle tone and how walking later and running later affect everything. The kid gets more behind. While they are learning to run, other kids are starting sports.

Yep, right now we're experiencing what it feels like to watch DS' peers get excited about starting university in the Fall, while we HOPE that DS will be okay taking a couple of classes at community college. It's the first thing I think about when I wake up, and the last thing I think about when I go to sleep. the struggle actually, literally is real.

I feel for you. It is a huge struggle and everything has been harder for my son. We struggle now with him listening and behavior issues.

First PP here. For our DS the behavioral issues have increased with age, instead of decreased. He's oppositional, and says "no" to just about everything we say. that's hard to swallow when your kid is 18. Only way I can describe it is "arrested development", because so many things are challenging for him and he has to put 10x's the effort in he just gives up and does nothing instead.

Mine is oppositional too. We have to repeat directions to him at least 5 times. We have to stay on him to do anything. Does you son by chance also have sensory issues? Mine does.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

The neurologist that we had to see for low muscle tone. You obviously have no clue. Go away.

My neurologist didn’t suggest an mri until my daughter was 22 months and not walking, and he only did it because of my hysteria. You obviously have no blue. Go away.

Your neurologist was going to order an MRI because of your “hysteria”? BS.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

While technically you're correct about 18 months being in the "range of normal", it is definitely a red flag. And anyone who says otherwise has their head in the sand. Also, your statement of "who care if a kid runs later" is quite tone deaf on your part. Yes, your statement cuts a bit deep for me because my DS was late with all of his milestones, including walking and running. His life has been difficult, and also ours as we watch other boys his age achieve and surpass and excel, while our DS struggles to do some of the simplest things like tie a knot, or tie his shoes....as a teenager. So you need to be a bit more sensitive with your words.

+1 Obviously that poster has no clue about low muscle tone and how walking later and running later affect everything. The kid gets more behind. While they are learning to run, other kids are starting sports.

Yep, right now we're experiencing what it feels like to watch DS' peers get excited about starting university in the Fall, while we HOPE that DS will be okay taking a couple of classes at community college. It's the first thing I think about when I wake up, and the last thing I think about when I go to sleep. the struggle actually, literally is real.

I feel for you. It is a huge struggle and everything has been harder for my son. We struggle now with him listening and behavior issues.

First PP here. For our DS the behavioral issues have increased with age, instead of decreased. He's oppositional, and says "no" to just about everything we say. that's hard to swallow when your kid is 18. Only way I can describe it is "arrested development", because so many things are challenging for him and he has to put 10x's the effort in he just gives up and does nothing instead.

Mine is oppositional too. We have to repeat directions to him at least 5 times. We have to stay on him to do anything. Does you son by chance also have sensory issues? Mine does.

No sensory issues, just oppositional as hell. I believe the opposition is a by-product of his anxiety, which is a by-product of his Dyspraxia and ADHD, which created learning challenges. It's a lot to juggle. How old is your DS?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

While technically you're correct about 18 months being in the "range of normal", it is definitely a red flag. And anyone who says otherwise has their head in the sand. Also, your statement of "who care if a kid runs later" is quite tone deaf on your part. Yes, your statement cuts a bit deep for me because my DS was late with all of his milestones, including walking and running. His life has been difficult, and also ours as we watch other boys his age achieve and surpass and excel, while our DS struggles to do some of the simplest things like tie a knot, or tie his shoes....as a teenager. So you need to be a bit more sensitive with your words.

+1 Obviously that poster has no clue about low muscle tone and how walking later and running later affect everything. The kid gets more behind. While they are learning to run, other kids are starting sports.

Yep, right now we're experiencing what it feels like to watch DS' peers get excited about starting university in the Fall, while we HOPE that DS will be okay taking a couple of classes at community college. It's the first thing I think about when I wake up, and the last thing I think about when I go to sleep. the struggle actually, literally is real.

I feel for you. It is a huge struggle and everything has been harder for my son. We struggle now with him listening and behavior issues.

First PP here. For our DS the behavioral issues have increased with age, instead of decreased. He's oppositional, and says "no" to just about everything we say. that's hard to swallow when your kid is 18. Only way I can describe it is "arrested development", because so many things are challenging for him and he has to put 10x's the effort in he just gives up and does nothing instead.

Mine is oppositional too. We have to repeat directions to him at least 5 times. We have to stay on him to do anything. Does you son by chance also have sensory issues? Mine does.

No sensory issues, just oppositional as hell. I believe the opposition is a by-product of his anxiety, which is a by-product of his Dyspraxia and ADHD, which created learning challenges. It's a lot to juggle. How old is your DS?

Mine is 11. He also has anxiety as well. He requires so much work. I am exhausted.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Can someone explain how “low muscle tone” presents in their kid? I’m wondering if this is what I’m seeing in my son, though the doctor has never mentioned it.

My stepson was diagnosed with low tone. As a kid (3-7 years old) he always seemed wobblier than other kids. Walked VERY late. Took him until age 9 or 10 to learn to ride a bike and swim. Also drooled for a long time (maybe until age 5? - and I mean he would soak the front of his shirt with drool) but I'm not sure if that was related. Very slow eater, very small appetite (those things still apply)

Like another PP's kid, he plays tennis now and bikes. He does not have great endurance and does not enjoy "working out" at all, but he is fine.

NP what do you consider "very late"?

I’m a PP who explained that tone is neurologically controlled. My son didn’t walk until almost 17 months. He also sat up and crawled late. He was already in PT at that time too. He was very wobbly and clumsy. He ran funny with a weird gait. He had difficulty learning to pedal a tricycle and keeping up his stamina. He took forever to learn swimming strokes. He still can’t do butterfly. I do feel sad he isn’t part of the sports group. It looks like fun.

17 months is not late or “very late”

Yes it is considered late especially as he was already in PT and getting assistance reaching milestones. Did you know that they recommend an MRI if a child doesn’t walk by 18 months? So if a child walks later, then they are later to run, etc. it just spirals.

Walking by 18 months is still within the range of normal. Who is recommending an mri if a kid isn’t walking by 18 months??? I don’t think that’s true. And who cares if a kid runs later?

While technically you're correct about 18 months being in the "range of normal", it is definitely a red flag. And anyone who says otherwise has their head in the sand. Also, your statement of "who care if a kid runs later" is quite tone deaf on your part. Yes, your statement cuts a bit deep for me because my DS was late with all of his milestones, including walking and running. His life has been difficult, and also ours as we watch other boys his age achieve and surpass and excel, while our DS struggles to do some of the simplest things like tie a knot, or tie his shoes....as a teenager. So you need to be a bit more sensitive with your words.

+1 Obviously that poster has no clue about low muscle tone and how walking later and running later affect everything. The kid gets more behind. While they are learning to run, other kids are starting sports.

Yep, right now we're experiencing what it feels like to watch DS' peers get excited about starting university in the Fall, while we HOPE that DS will be okay taking a couple of classes at community college. It's the first thing I think about when I wake up, and the last thing I think about when I go to sleep. the struggle actually, literally is real.

I feel for you. It is a huge struggle and everything has been harder for my son. We struggle now with him listening and behavior issues.

First PP here. For our DS the behavioral issues have increased with age, instead of decreased. He's oppositional, and says "no" to just about everything we say. that's hard to swallow when your kid is 18. Only way I can describe it is "arrested development", because so many things are challenging for him and he has to put 10x's the effort in he just gives up and does nothing instead.

Mine is oppositional too. We have to repeat directions to him at least 5 times. We have to stay on him to do anything. Does you son by chance also have sensory issues? Mine does.

No sensory issues, just oppositional as hell. I believe the opposition is a by-product of his anxiety, which is a by-product of his Dyspraxia and ADHD, which created learning challenges. It's a lot to juggle. How old is your DS?

Mine is 11. He also has anxiety as well. He requires so much work. I am exhausted.

Also, I think mine does have ADHD but we haven’t bothered to get a formal diagnosis.

[Anonymous]

OP here. Thanks all. Great to read your experiences. Those who went to OT, how is it different from PT? And can pediatrician refer to OT or do we need to neurologist? Ant exercises that you do at home, like yoga?

[Anonymous]

Anonymous wrote:OP here. Thanks all. Great to read your experiences. Those who went to OT, how is it different from PT? And can pediatrician refer to OT or do we need to neurologist? Ant exercises that you do at home, like yoga?

PT is more gross motor skills like crawling, sitting, walking, climbing, running, pedaling a bike. OT with sensory issues focus was more fine motor skills and desensitizing - like going in a pit of balls, crawling through tunnels, using a swing.

Both were important for my DS. We also needed speech.

[Anonymous]

My DS has low tone and he did OT and then gymnastics. He really did improve - I think his body was just delayed in muscle formation.

He totally overcame the gross motor skills issues with OT and gymnastics. The fine motor skills (handwriting, tying shoes, etc) got to an acceptable level but never that great. But mostly fine now that typing is actually required for school.

[Anonymous]

I'm the PP whose son had OT in elementary school. My son had fine motor skill delays that the OT worked on with him. She also was helpful to me in providing recommendations for what we could do at home to help him - types of toys for example that would help build fine motor skills.

My son is in high school and there are plenty of activites for kids not interested in sports - drama, debate, school newspaper, etc...So even though my kid won't win any knot tying contests, things are ok.

[Anonymous]

Anonymous wrote:My DS has low tone and he did OT and then gymnastics. He really did improve - I think his body was just delayed in muscle formation.

He totally overcame the gross motor skills issues with OT and gymnastics. The fine motor skills (handwriting, tying shoes, etc) got to an acceptable level but never that great. But mostly fine now that typing is actually required for school.

That’s awesome! Mine tried gymnastics in pre K and K but was never good at it. He never could do a somersault!