Anonymous wrote:Hi--I am late in replying, but my daughter has Williams Syndrome, and indicative of that are feeding problems/weight gain issues. She was on an NG tube for 2 months, and we were told a G tube was in her future. My husband said NO and we dedicated our lives for the next 6 months in teaching our child how to eat from a bottle, pushing through and now she takes 8 ozs 4 to 5 times a day! Getting her to eat and even recognize what hungry feels like was the hardest thing I have ever been through in my life, and that includes her 5week NICU stay at birth. Good luck!
Hello. My son was recently hospitalized and is now on an NG tube. Can you let me know what were the steps you went through to get your daughter onto an eating path again. If you prefer, I can be contacted at bethvu@yahoo.com. Once you email me, I can furnish you my phone number and we can talk if that is easier. Thank you.
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