Nervous wreck

[Anonymous]

First appointment with the development pediatrician is coming up.
I am getting increasingly anxious as to the outcome of it and a diagnosis that we may not even have thought about.
Anyone felt the same way?

[Anonymous]

Having a developmental pediatric appointment was so helpful in setting out a plan of action for the immediate future. My kid was 3 and the doctor gave us some insights as to what may happen as our child got older. Her predictions were correct and it was helpful to have a heads up.

So it's not about a specific diagnosis. It's about how you can better understand and help your kid.

[Anonymous]

Anonymous wrote:First appointment with the development pediatrician is coming up.
I am getting increasingly anxious as to the outcome of it and a diagnosis that we may not even have thought about.
Anyone felt the same way?

totally normal reaction. most of us have felt this way.

[Anonymous]

Hang in there. I don't know anyone who feels differently.

[Anonymous]

I was so nervous I had to leave the room to get sick in the middle of my sons first eval. Totally normal.

[Anonymous]

OP here! Thanks for sharing your experiences.

[Anonymous]

Anonymous wrote:I was so nervous I had to leave the room to get sick in the middle of my sons first eval. Totally normal.

Thought I was the only one who did this!

That plus crying on the way there, during the eval, and on the way back. that was 6 years ago. I think I suffered permanent PTSD because of it, not kidding.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I was so nervous I had to leave the room to get sick in the middle of my sons first eval. Totally normal.

Thought I was the only one who did this!

That plus crying on the way there, during the eval, and on the way back. that was 6 years ago. I think I suffered permanent PTSD because of it, not kidding.

Me too! Just curious, how did things progress for your dc over those 6 years?

[Anonymous]

It's terrifying to face your issues but it's the only way to help our kids. So tears and all, march forward. Best of luck op.

[Anonymous]

Hang in there. A diagnosis is not the end of the world, but will allow your child to get the help they need. The child you walk into the office with is the same one you walk out with. They haven't changed.

I have an ASD ds who is now 10. Early intervention was amazing for him. He's in a mainstream class with an IEP and has even been identified as High IQ. He's a great kid, even if he's had more challenges than most.

[Anonymous]

[quote=Anonymous]OP here! Thanks for sharing your experiences.


Praying for you. Being a parent of SN kids is not easy.

[Anonymous]

I felt a lot of relief when we finally got a diagnosis. It was 2.5 years of waiting, wondering, and being told I was an anxious mother.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I was so nervous I had to leave the room to get sick in the middle of my sons first eval. Totally normal.

Thought I was the only one who did this!

That plus crying on the way there, during the eval, and on the way back. that was 6 years ago. I think I suffered permanent PTSD because of it, not kidding.

Me too! Just curious, how did things progress for your dc over those 6 years?

Things have improved with DS. He was only 6 when he had his first evaluation - which honestly was way too young. We had him re-evaluated a few months ago and walked away with a much clearer idea of his challenges and how to properly manage them. At his first eval, because he was so young the evaluators were not able to get a really clear read on what might be going on with him. So we walked away with: Preliminary diagnosis ADHD, At Risk for Reading disability, At Risk for Math disability and possible PDD. We were told that he would "never make it in a mainstream school, that he would always need us, most likely not be able to live alone...etc.

At that time I didn't even know what to do next. There were days when I could barely get my head off the pillow in the morning. It was very hard. lots of pity parties.

I have learned SO much over the last 6 years about what I should have and should not have done when we first suspected something wasn't "right" with DS. For starters, I wouldn't have chosen a "doctor" out of the yellow pages for my DS' evaluation. This is literally what I did He got a lot of "it wrong. Caused me/us a lot of stress and sadness. A lot of unnecessary therapies. He was just terrible and to make matters worse, he didn't even do ANY of the testing or evaluation of the results. It was all done by a Masters -level clinician. $4K for that!

I promised myself back then that when it came time to update his testing I would be extremely careful about which doctor I hired.

Fast forward 6 years - his updated testing was very interesting, uplifting, hopeful etc. We chose a doctor that was highly qualified and did all of her own testing (unlike the first doctor and so many of the practices). The results showed No LDs and No PDD, just fairly severe ADHD. Again, I would have done so many things differently and am so angry with myself for not believing in my son more than I have over the years. Its a classic case of "self fulfilling prophecy".