Forum Index
»
Kids With Special Needs and Disabilities
ADOS. is flawed
![[Post New]](/jforum/templates/default/images/icon_minipost_new.gif){kind=icon}
Anonymous
Hence, it does not follow him the rest of his life. 23 or 26 OR get a different health plan when he's 18. |
Anonymous
I had my DS evaluated there and agree about support staff. They gave me a projection when we first saw him at 5, then modified it during our followup a few years later to add a learning disorder and processing difficulties. I guess I could be mad that it didn't turn out to be totally accurate. But they told us from the beginning they weren't 100 percent accurate. They also were the only professionals we dealt with that gave us a road map to move forward and a concrete plan to deal with the schools. Everyone else just tested him, gave us the results and shook their heads. Dr. Camarata also told us our child wouldn't be conversational until middle school, and it was true that DS did not get most of his functional language until after he was 9 years old. But even post middle school he has not caught up completely, because his receptive language remains in the bottom percentile. So we didn't get the rosy outcome we thought we'd have when DS was 5. Still, DS is now a great arguer. DH jokes that he'll end up a lawyer. Because they were the only evaluators to consider him intelligent and competent (and their testing bore this out) and encouraged us to have him take regular classes with accommodations and pullouts we proceeded very differently from other parents in our circle who put their language disabled children in self-contained classes. There's just this different mindset; we push our child because we view him as capable and smart and so he continually moves forward; children in self-contained classes are protected and barely taught anything. |
Anonymous
| And the smarmy award goes to... |
Anonymous
Don't like the truth? Sorry. Kids in self-contained classes in my district aren't taught much academically. They are viewed as simply not capable. Sometimes their parents also buy into that view because that's what they are told all the time, other parents I talk to are very frustrated by the lack of academics and are even filing state complaints about it, but the state has told them, too bad. We aren't required to teach kids in special ed anything. |
Anonymous
This has to be FCPS. |
Anonymous
I agree with you PP. While I do think that NO ONE can make projections and neither should we, the parents, believe in such projections 100 percent, I get no plan of action from the dev pediatrician, who at this point is merely a note taker. |
Anonymous
Stop blaming the parents and the kids. Why not focus the energy you put into being self righteous and lobby lawmakers to change the system? |
Anonymous
Well I can promise you it isn't MCPS, at least not in my kid's classroom. Also the SCOTUS just disagreed with PP's state, so all those parents need to hire attorneys and try again. |
Anonymous
You live in a very different world than we do. 23 to 26 brings him to his adult life, which employers and others can and may access the insurance. If he continues with the same insurance due to his employment choices, he'd continue and his medical files would remain open. What do you think happens to these medical files? They just disappear? He will not get a different health care plan at 18 as he will continue to be covered as long as he is in school to age 22 and if he continues in school till age 26 (assuming there is still the mandate and it doesn't go back to age 22). |
Anonymous
|
I agree with you PP. While I do think that NO ONE can make projections and neither should we, the parents, believe in such projections 100 percent, I get no plan of action from the dev pediatrician, who at this point is merely a note taker. What exactly does your developmental ped do then and what is the point of going? Ours gives our referrals for services and decides what services we get (he's very generous with his referrals) so he's basically our gatekeeper. He would do things like refer us for a neuropsych. if he felt it was appropriate. He talked to us about the services we are receiving, were we happy with them and discussed progress and made suggestions. He talked to us about our school choices as well as activity choices and made suggestions (though mostly based off his experiences with other families). When our regular ped. put in our referrals they always got denied so we have to use a developmental ped. I have also called him on other non-related medical issues I suspected and he talked to me about what to do (and put in a different referral to check it out) when I could not get in touch with our regular ped. Our developmental ped also did a mini-IQ test (forget which one) and another test at our last visit to see where our child was at. I don't think professionals should make projections. They were more presented to us with kids of similar characteristics at this age start to catch up.....it was about a year off for us. There are just too many variables, especially if kids have LD, ADHD/ADD to speculate how a child will be doing years out. |
Anonymous
Most employers are not able to access your medical for the purpose of making hiring decisions. For something like getting a security clearance, an erroneous diagnosis when your kid was 2 years old is very unlikely to cause a problem. They are much more concerned with CURRENT medical issues than 20 year old medical errors. And if it bothers you that much, you can have another doctor put a statement in the record that the original diagnosis was an error. You can also put your own statement in the record. |
Anonymous
The system is exhausting and expensive to fight. I'm not remotely "blaming" the parents or kids. I'm blaming the state and the special ed departments, and often the teachers. |
Anonymous
We find the principal sets the tone and how things are done at each particular school. Our teachers are pretty checked out and have a very closed classroom, and I'm assuming its mainly due to the principal. We get very little information about how our child is doing and have very little input into the IEP, services or needs. It isn't worth fighting the system. You either work within it or leave. By the time you pay an attorney and fight, if you can afford all that you might as well pay for private or homeschool. One problem we have at our school is they put any child with an IEP in one classroom regardless of the need and the higher functioning kids are slowed down to catch up the other kids and there is very little individualized instruction. Teachers are not well trained in all special needs and are doing the best they can but when they don't understand a particular disorder, they often dismiss the child as not knowing rather than trying to find other ways to gain the information they need. It would take many parents banding together to fight a huge system or a parent with a lot of money willing to take on the challenge. I'd rather put that time and money into my child to make sure they succeed. We end up doing a lot of teaching at home. |
Anonymous
Let me guess, you are a SAH parent. Get a job and put your kid under your insurance and stop whining. It's been YEARS that you've been posting this on DCUM. Get over it and get a job. |
Anonymous
Not to mention it wouldn't disqualify him from a security clearance anyhow. At most it would disqualify him from military service, but even ADHD or LD technically disqualify you. |