Would you go through with a tonsillectomy for this kid?

Anonymous
That sounds so painful for your child. Swallowing and sleeping are impacted by those huge tonsils.
DC recently had intracapsular tonsillectomy and adenoidectomy. Easiest recovery. The pain from the enlarged tonsils was much worse than the pain of recovery (there was none…it was all managed by OTC pain meds for a few days).
Anonymous
Anonymous wrote:We decided against it for my mild sleep apnea kid who at age 12 still does not sleep well. Honestly, it was the association with weight gain that really gave me pause. We may think it’s a useless organ, but the body is too dang complicated for me to do it unless there was an assured benefit.

This strange - the weight gain is bc these kids are finally sleeping well and gaining weight as they should. There are tons of studies about failure to thrive kids who lose that designation w/in weeks of a tonsillectomy. We did this for dd at 5 and it was life changing. Her behavior changed overnight, dark circles gone, concentration increased. Also they don’t know how big they are until they’re removed. One of her tonsils turned out to be giant. She also had never been sick.
For her older brother, we only did adenoids bc his tonsils looked normal. Now at 15 he has inattentive add and sleep apnea. Facing the surgery as a teen is much worse. Worse recovery, hard to miss school, etc
Anonymous
My child got their tonsils and adenoids out at 5. They were having 4 episodes of sleep apnea an hour and there was concern about lack of growth due to lack of sleep.

One thing that hasn’t yet been mentioned but was an amazing was the change in his speech. Everyone agreed it was so much easier to understand him. Which in turn made school and peer relationships easier. Interestingly, he was always forming the sounds correctly (in fact, he was tested for speech several times). The large tonsils made it impossible for him to not sound garbled and the only thing to fix it was getting it removed. It was changed the way others perceived him and that is probably the best (or most obvious) result from the surgery. (He did sleep better too).
Anonymous
Anonymous wrote:We decided against it for my mild sleep apnea kid who at age 12 still does not sleep well. Honestly, it was the association with weight gain that really gave me pause. We may think it’s a useless organ, but the body is too dang complicated for me to do it unless there was an assured benefit.


Your poor, poor kid. He isn’t sleeping well because his body is waking him up at night! I have sleep apnea. Weight gain is associated with sleep apnea, as is heart disease. Not to mention, you feel tired all the time. In children, sleep apnea is associated with poor academics and hyperactivity. According to JAMA, “Overall, children gain weight after tonsillectomy but are no more likely to be overweight or obese after tonsillectomy than they are before tonsillectomy.”

I think it is really irresponsible that you aren’t treating your kids apnea.

Evaluating Tonsillectomy as a Risk Factor for Childhood Obesity

https://jamanetwork.com/journals/jamaotolaryngology/fullarticle/1379946#:~:text=Overall%2C%20children%20gain%20weight%20after,than%20they%20are%20before%20tonsillectomy.

Association of pediatric obstructive sleep apnea with poor academic performance: A school-based study from India
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5846262/
Anonymous
Anonymous wrote:Sleep apnea is no joke. And lack of sleep messes with emotional regulation and can mimic adhd. That parent worries about unclear connections to weight gain is seriously fat-phobic. Your poor kid.


+1
Anonymous
Anonymous wrote:I know this is a zombie thread, but I happened to read it and have a similar situation with my 3 year old. After a series of ear infections doctors say his tonsils are ginormous and almost touching. We do have sleep issues but it’s mostly that he wakes up and wants to sleep with us. He does snore and mouth breathe. Otherwise seems totally fine so we didn’t pursue surgery as necessary.

My mom is an OR nurse who has done the surgeries before and had it done as a child and she has urged us to do anything to avoid it. Says it’s a terrible surgery, painful, and so traumatic she still remembers everything about the day of her surgery 50+ years ago.

Is she just wildly exaggerating? How was recovery if your toddler had the surgery?


I remember mine, but it wasn't awful. I had a sore throat a couple of days. This was back in the 1960s. I did spend the night in the hospital and remember being a bit lonely. But I also remember the ice cream, lol.

Your mother is being over the top dramatic. I think I was 4 when I had mine out. It stopped me from being sick so much.
Anonymous
We did tonsills and adenoids out at 3 and it was seriously no big deal. I way over worried about it- interviewed docs/did research. He was fine on day 2 after the surgery.
Anonymous
Yes I would do it. If not, he’ll have to do it when he’s older and it much tougher than when he’s 4.
Anonymous
Anonymous wrote:DO IT! I have very rotten tonsils and so does dh. I had strep nonstop and then the final nail in the coffin was mono in college. There is no recovery for my tonsils and now I'm too old to get them out.

Good friends of ours are both ENTs. They said that previously ENTs stopped doing tonsillectomies as much (in 90s/2000s/2010s), but they realized that the pendulum had swung too far. There is no benefit to having tonsils. They said that they see lots of cases with adults who have bad tonsils and there isn't much to be done for them.

I had enormous tonsils but was rarely sick as a child. After mono, I started to get sick all the time. I had strep over and over during college and graduate school. They were an absolute misery from that point on; finally an ENT in my 40s was like “Wow, why do you still have these???” I still had adenoids too. The surgery that kids bounce back from quickly is one of the most painful for adults. They tell you it will be 14 days of hell with oxy and they aren’t lying.

It was still worth it. But I really wish they’d come out when I was a kid!
Anonymous
Anonymous wrote:We decided against it for my mild sleep apnea kid who at age 12 still does not sleep well. Honestly, it was the association with weight gain that really gave me pause. We may think it’s a useless organ, but the body is too dang complicated for me to do it unless there was an assured benefit.


Sleep apnea and snorting is also associated with weight gain.
Anonymous
Do it. This was my child at 4. We took the adenoids first thinking that would solve the snoring/apnea issues. It didn’t and we took the tonsils out the next year. Rough recovery, but worth it. Sleep is so important. The large tonsils and adenoids were also affecting my child’s speech.
Anonymous
Anonymous wrote:
Anonymous wrote:Sleep apnea is no joke. And lack of sleep messes with emotional regulation and can mimic adhd. That parent worries about unclear connections to weight gain is seriously fat-phobic. Your poor kid.


+1


Weight gain is actually heavily associated with sleep apnea. If your normal weight child has sleep apnea, imagine how it will be as an adult, when they are likely to be overweight at some point (because let’s be real, 70% of adults are overweight).

Sleep apnea causes a ton of health problems, including heart failure.
Anonymous
If your kid had/has apnea, how did you figure that out to ask for a sleep study? Was it just the snoring? My 4 year old DD snores a bit but seems to sleep well and I’m not aware of her waking in the night.
Anonymous
I had my tonsils and adenoids out at 12. I wish I had had them removed years earlier. Recovery took about a month. First thing I said when I woke up from surgery was "I can breathe." That's how dramatically my airway wad obstructed. I also had several near choking incidents due to the size of my tonsils.
Anonymous
Yes of course you should do it. Sleep apnea is serious and can inhibit growth and brain development. The surgery will be much easier for a younger kid too.
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