My Wife is dictating this to me because she is unable to type. She had egg retrieval on Sunday where

[Anonymous]

My Wife is dictating this to me because she is unable to type. She had egg retrieval on Sunday where they retrieved 53 Follicles, 43 were Mature but only 17 Fertilized because we had PCOS and Male Factor. Throughout stems my wife complained of belly pain and her belly became extended. She was on 400 Milligrams of Follitism 20 units of low dose HCG and Ganerilex. She triggered with Lupron, she felt fine Sunday except for some tenderness around her belly and felt fine Monday as well. Monday evening she took a nap, went to the restroom and started having excruciating pains. She could not walk, she could not lay on her back. We eventually called the ambulance, she went to the ER and with conversations with our R.E. they decided to go into surgery to untwist the ovary. While in Surgery, the hospital decided that the ovary couldn't be saved. The Hospital said the size of the Ovary twisted 3 times more than normal which caused bleeding that couldn't be stopped which permanently damaged the Ovary. They untwisted the Ovary back to its original form and discovered that it was damaged beyond repair. Instead of leaving the organ inside they decided to remove the organ.

NO one is making a big deal out of this, In fact when I woke up at the hospital the surgeon was already gone and my husband told me that they already took the ovary. Even when i spoke to our clinic, they seemed to be nonchalant and said its a risk of IVF. All anyone has said is that I can still carry a baby with one ovary. But no one no matter how many times i may ask will tell me the complications they are for having one ovary for my body for my PCOS, for my cycle, for my ability to continue IVF. I am coming to you ladies to help us develop a set of questions to ask our clinic when we talk to them next so I can get more answers.

[Anonymous]

I am so sorry this happened to you. I wish I had advice but to me that seems like a big deal - especially if you weren't ready to face that as a complication/risk.

[Anonymous]

Sorry this happened. You really ought to call a lawyer.

[Anonymous]

Anonymous wrote:My Wife is dictating this to me because she is unable to type. She had egg retrieval on Sunday where they retrieved 53 Follicles, 43 were Mature but only 17 Fertilized because we had PCOS and Male Factor. Throughout stems my wife complained of belly pain and her belly became extended. She was on 400 Milligrams of Follitism 20 units of low dose HCG and Ganerilex. She triggered with Lupron, she felt fine Sunday except for some tenderness around her belly and felt fine Monday as well. Monday evening she took a nap, went to the restroom and started having excruciating pains. She could not walk, she could not lay on her back. We eventually called the ambulance, she went to the ER and with conversations with our R.E. they decided to go into surgery to untwist the ovary. While in Surgery, the hospital decided that the ovary couldn't be saved. The Hospital said the size of the Ovary twisted 3 times more than normal which caused bleeding that couldn't be stopped which permanently damaged the Ovary. They untwisted the Ovary back to its original form and discovered that it was damaged beyond repair. Instead of leaving the organ inside they decided to remove the organ.

NO one is making a big deal out of this, In fact when I woke up at the hospital the surgeon was already gone and my husband told me that they already took the ovary. Even when i spoke to our clinic, they seemed to be nonchalant and said its a risk of IVF. All anyone has said is that I can still carry a baby with one ovary. But no one no matter how many times i may ask will tell me the complications they are for having one ovary for my body for my PCOS, for my cycle, for my ability to continue IVF. I am coming to you ladies to help us develop a set of questions to ask our clinic when we talk to them next so I can get more answers.

'Definitely involve the lawyer if you can afford (if can't some states have non-profit org that will help esp. to women in need). My prayers are with you.

[Anonymous]

I am so sorry you both had to go through with this. Was this in the USA?
Why was the cycle not cancelled when they saw so many follicles?
I would definitely get some legal advice.

[Anonymous]

Also try to post on the RESOLVE infertility forum. It is more active and you may get more responses.

[Anonymous]

OP Here, My Wife and I are mixed with emotions. Part Anger in overstimulation which they will not admit they overstimulated. Confusion due to the fact that less than .2% have Ovarion Torsion problems. We think that hiring an attorney would cause more of a headache being the fact that they have our embryos in the lab. I am sure they are prepared for this type of response and they have our frozen embryos. It is clear they did something wrong but no one wants to admit fault. My Wife was in for monitoring 7 days in a row last week and this happens with no warning. To me once they got the 53 eggs they should have made us stay at the facility and be on bed rest.

[Anonymous]

I'm very sorry this happened to you. I lost an ovary to an endometrial cyst when I was 38. I married later that year. I did struggle with infertility and did several rounds of iui and ivf. They were unsuccessful, but I ended up concieving naturally. I had ds when I was 41, dd at 44. I also had a couple of mc's as well.

The remaining ovary will almost always simply take over the functions of the other one. I did have a couple of episodes of night sweats a few months afterwards - I think it took some time for my hormones to adjust. And my cycles did shorten a bit.

It might sound weird, but I would definately consider seeing an acupuncturist who specializes in infertility. I did just as a "try everything" sort of thing, with low expectations, but my cycle really did change and improve with it.

Also know that low vitamin D levels are associated with pcos. I have some pcos symptoms, and found they went away when I supplemented with vit D and got more sunshine. Again, I was just trying everything at that point, had no expectations, saw my symptoms go away, then did some googling and found the studies showing the link.

I'm sure your wife is in shock at going through this. There aren't a ton of resources for people ttc with one ovary, but I heard many stories of people finding success, and I turned out to be one of them as well in the end.

I'll try to keep an eye on this thread if you have more specific questions for me.

[Anonymous]

Bottom line: it's practically as easy to get pregnant with 1 ovary as it is with 2. Really!

However. They messed up, didn't apologize and should be brought to account for it.
I second the suggestion of doing your research on another, more specialist forum to ask for guidance.
Threatening them with a lawsuit should definitely remain an option. I said "threaten", as in a lawyer can send a letter. That may be sufficient to get them to apologize and offer some kind of compensation.

[Anonymous]

16:51 here. I'm assuming you'll be doing a FET down the road. Red raspberry leaf tea is good for building your lining. I had the best lining of all on the cycle I tried that.

[Anonymous]

I'm very sorry for what you're going through.
Before cycling they ask us to sign the papers which explain the risks involved with IVF. A consent to those forms means that we cannot legally sue them for anything that happens to us. Your dosage was probably high but I have seen women getting 50+ follicles and not all get OHSS. That being said, they may not have found a valid reason to cancel the cycle or to keep you on bed rest.
Take rest and good care of yourself.

[Anonymous]

Hmmm what a bizarre mishmash of advice here, from drink tea to call a lawyer. It seemed you are going to have to rely on your own common sense here. Sometimes resourcing just brings back more gibberish than useful information.

[Anonymous]

OP has posted on RESOLVE too. I hope they get some good information.

[Anonymous]

Anonymous wrote:Hmmm what a bizarre mishmash of advice here, from drink tea to call a lawyer. It seemed you are going to have to rely on your own common sense here. Sometimes resourcing just brings back more gibberish than useful information.

Just because the advice touched on different aspects of the situation, doesn't make it gibberish. If you were bit by a dog, and one person gave you advice on dressing the wound, and another person gave advice on suing the dog owner, would you then just dismiss everything as "gibberish"?

[Anonymous]

I'm so confused. The first paragraph is supposedly written by the husband and then the second paragraph seems to be written by the wife, who supossedly can't type. Makes me a little weary on the validity of the story.

Anyway I'm sorry this happened to you. But I'm not sure there's much you can do here... you did sign a consent going over the risks of the procedure. There are risks to every procedure. Yes this complication is rare but it does happen otherwise it wouldn't be listed.