IV Antibiotics with Lyme
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Anonymous
| Wondering if you or anyone you know with Lyme or suspected Lyme has ever been treated with intravenous antibiotics? If so, 1) how many months or years post initial symptoms was the IV-A treatment started and 2) for many weeks was IV-A needed? |
Anonymous
...meant "for how many weeks".... |
Anonymous
|
I know one person who needed IV abx for several months. Otherwise, if you are that ill, you may need them for many months/several years.
Unfortunately, long-term Lyme is not a quick fix. |
Anonymous
| I have - for 6 weeks, then again for 4 weeks. It REALLY helped. My Dr.'s office does not tend to treat for many months/years at a time. |
Anonymous
| OP here. Thanks for the replies. Started having loads of odd joint/muscle/neuro issues all of a sudden approx 2yrs ago, tested up and down by various docs and tests, all docs stating that I'm "fine". Well, going from working out 2-3 times a week to having to use your arms to pull yourself up the stairs, not being able to lift a gallon of milk or open bottles lids, I believe I'm anything but fine. Just recently got in contact with a Lyme MD, pending test results, but IV-A has been hinted by the Lyme doc for now.....lets see what the labs show... |
Anonymous
|
If you have Lyme disease, there's about a 30% chance you'll test positive for it.
I took doxycycline orally, only 1 round. I was treated early on, even though I never tested positive. The symptoms persisted for another year. |
Anonymous
You need to go to a Rheumatologist. Proximal muscle weakness and joint aches does not always equal Lyme disease. |
Anonymous
Thanks, I've seen a few, working with a good one right now, in parallell with a Lyme MD (who is also a Rheumatologist), just recently prescribed Plaquenil/hydroxychloroquine. It all started 2 weeks post a Cancun/resort trip with family. Had GI issues whilst there, came home, was fine for 2 weeks then within 2-3 days I was knocked out. Joint pain started to reduce after 1 year but numbness/weakness has persisted. |
Anonymous
| Another poster with TBDs, 4 years of treatment and better. I haven't had IVs, did ok with orals; now on herbs, supplements and homeopathics. TBDs are a clinical diagnosis as the tests are not sensitive enough, as you probably already know. Be prepared for IVs, whatever it takes. I'm experiencing some symptoms and will return to my LLMD if need be and probably looking at IVs too. OP, let us know. |
Anonymous
| OP here. Update: So, my LLMD put me on oral antibiotics for 2-3 months with minimal effects, so he decided to dig further and on the 3rd round of testing, I tested positive for Myasthenia Gravis. I'd seen two family MDs, a renowned neurologist, three rheumatologists for two years prior, none of them caught it. I will now present the findings to my neurologist to see how to proceed from here. |
Anonymous
| OP, great to know that you have a diagnosis. Do you also have lyme? Or just the MG? |