Anyone here have super high TSH (Thyroid) - over 100?

[Anonymous]

I use kelp and it has saved my life. I stopped taking thyroid medicine and with time, my body is completely healed of nearly 30 symptoms of hashimoto's. I am more awake and alive now than ever. It's an inexpensive miracle!

[Anonymous]

Could the kelp poster explain?

Could the Armour poster also elaborate? It is my understanding that since Armour is a natural hormone and the dose isn't always exact, that endos aren't keen on prescribing.

Thanks so much!

[Anonymous]

Here is an article on Kelp
http://www.ncbi.nlm.nih.gov/pubmed/14583417

Most hypothyroidism here is related to Hashimoto's and is autoimmune versus being caused by iodine deficiency (common in 3rd world countries).

[Anonymous]

My mother and sister have been on Synthroid for life. Works for them. Both have Hashimoto's. Also severe vitamin D deficiency.

[Anonymous]

Has anyone heard of myxedema coma. It's extremely rare, but can be lethal from what I read..

[Anonymous]

This thread is fascinating. What are the side affects of Synthroid?

Best wishes to all of you struggling with these horrible symptoms.

[Anonymous]

Anonymous wrote:I just got labs drawn (7 mos Postpartum) and my TSH was 116. I've already seen an Endocrinologist and have started Synthroid but she made a big deal about how high my TSH was. I've talked to multiple people that have hypothyroid (Hashimotos) and the highest TSH I've heard is in the 50 range.

Is there anyone out there who has had a TSH over 100?

... I'm actually becoming a little worried that I've been walking around with such a high TSH for god knows how long.

From liza alvarez...my ths levels were 144 now I am on 100mcg I feel better

[Anonymous]

Anonymous wrote:I just got labs drawn (7 mos Postpartum) and my TSH was 116. I've already seen an Endocrinologist and have started Synthroid but she made a big deal about how high my TSH was. I've talked to multiple people that have hypothyroid (Hashimotos) and the highest TSH I've heard is in the 50 range.

Is there anyone out there who has had a TSH over 100?

... I'm actually becoming a little worried that I've been walking around with such a high TSH for god knows how long.

From liza alvarez...my ths levels were 144 now I am on 100mcg of levelthyroxineI feel better

[Anonymous]

My tsh is 53 Have been on many medications did not help trying a new doctor. It is horrible feeling tired all the time.

[Anonymous]

I just found out by screening tests that my TSH is 611! (T3, T4 are normal) And, I feel fine, other than a 'lump' feeling in my throat that I've had for years. Does anyone know of any other diseases that might cause high TSH other than hypothyroidism? I don't want to take hypothyroid med if I don't need it.

[Anonymous]

I tried kelp and it made me feel super weird. Is there any indication that is conflicts with the synthroid?

[Anonymous]

Anonymous wrote:If only it was that simple, I was diagnosed 14 years ago and they have never been able to get it within normal range. Endocrinologist had me at 725mcg daily and it would not come down. Tsh 563.. imagine the hell i was living. Come to find out my body was not absorbing it. I tried chewing it, letting it desolve under my tongue, you name it I tried it. Now I take 200mcg IM injection daily, that means i take 4 shots daily. Not to mention that I have a hard time getting the supply that I need from the pharmacy and a few thousand dollars a month. Current tsh over 100 and been taking the shots for over 8 months.
I have to laugh when people complain that their tsh is at 100 or below. I live with sever body pains daily and would give anything to have a normal level.
Signed miserable in Nebraska

Update: I have been off the injections for a year now thanks to Tirosint (the only thyroid drug that is a liquid in a gel cap) Level has maintained at around 110. Still experience anxiety, lightheadedness, weakness, extreme fatigue and heart palpitations. These have not improved at all. So those of you that have problems with the absorption of thyroid medication, I recommend that you try Tirosint.
Signed Miserable in Nebraska

[Anonymous]

Anonymous wrote:The normal range for TSH is a low of .3-.5 (depending on the doctor, the latest study, etc) and a high of 3.0-5.5 (again, depending on who you ask. But, I basically say "normal" is .3-5.5. My TSH from the last few blood tests ranges from 17.46 - 114.43 and I hardly ever show symptoms.

I even went for a few years without taking Synthroid because I didn't feel any symptoms, EVER. I have been prescribed Synthroid (or some generic form) for the past 14 years and just recently started feeing minor symptoms if I don't take it. A couple years back I stopped taking it because I was sick of going in for blood tests every 6-12 months and I was sick of paying for my rx every month and driving to the pharmacy... it was just kinda inconvenient for me, especially because I have never felt the NEED to take it, the docs just said I had to.

Well, now that I'm 30 years old, I start getting REALLY REALLY tired if I don't take it. I ran out just last month and the pharmacy wouldn't give me a new prescription until I saw a doctor. I told them I had a new doctor but they couldn't see me for another 6 weeks. They said I had to get a new rx before they could give me more Synthroid. My old doc wouldn't give me a prescription because it had been over a year since my last blood test, my new doc wouldn't give me a prescription because I hadn't been seen yet, and so I went a few weeks with nothing. I was only off the meds for about 2 weeks and my TSH levels got up to 114 earlier this week. I was SUPER tired, but other than that felt fine.

I hate the fact that I have to take a pill every day of my life for the rest of my life. ...but it could be worse! So, I guess I'm thankful.

Do try to stay on the Synthroid regimen. Both my mother and cousin have it and are on Synthroid for life. My cousin recently lost all of her eyebrows and patches of hair behind her ears because the doctor now says she is taking too much Synthroid. So do have your levels checked.

[Anonymous]

My TSH level right now is 200 and I literally feel as though I am dying. I can't remember anything. I feel weak just to sit or stand. I could sleep 15+ hours if i didnt have to work. By Free T4 is 0.34 which is low. My doctor said I shouldnt even be driving right now let alone working. My kidney levels are elevated and my SED rate is high.
I am considering going out of work for a little while because I cant function anymore until I get help. I live in the Raleigh NC area if anyone has any suggestions please let me know. thank you.

[Anonymous]

Anonymous wrote:My TSH level right now is 200 and I literally feel as though I am dying. I can't remember anything. I feel weak just to sit or stand. I could sleep 15+ hours if i didnt have to work. By Free T4 is 0.34 which is low. My doctor said I shouldnt even be driving right now let alone working. My kidney levels are elevated and my SED rate is high.
I am considering going out of work for a little while because I cant function anymore until I get help. I live in the Raleigh NC area if anyone has any suggestions please let me know. thank you.

please go see an endocrinologist ASAP!