Meet up with parents of kids with mild autism

[Anonymous]

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

That's great but I'm an Autistic mom, not an autism mom, and I'm asking what word or phrase would people prefer, based on the post above.
If the argument is that there is no difference between level 1 and level 2 and level 3 autism, that argument is illogical.
If the argument is that there are differences, but also a common thread so we should do away with the different labels altogether, -- surprise! We are now talking about a specific situation where the labels are needed (meetups with parents of kids who face common issues).

[Anonymous]

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

I’m sorry, but you choose to listen to *some* of them. And then regularly stalk this board accusing caregivers who let blood caring for their children of “not listening .” There are several autistics who actually have *met* or *worked* with low functioning autistic children and adults…. They do not agree that there should be no distinction and argue accordingly. So listen to them too.

[Anonymous]

Anonymous wrote:

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

I’m sorry, but you choose to listen to *some* of them. And then regularly stalk this board accusing caregivers who let blood caring for their children of “not listening .” There are several autistics who actually have *met* or *worked* with low functioning autistic children and adults…. They do not agree that there should be no distinction and argue accordingly. So listen to them too.

Shame on both of you. OP wanted to find some community and you turned the thread into a shit show.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

I’m sorry, but you choose to listen to *some* of them. And then regularly stalk this board accusing caregivers who let blood caring for their children of “not listening .” There are several autistics who actually have *met* or *worked* with low functioning autistic children and adults…. They do not agree that there should be no distinction and argue accordingly. So listen to them too.

Shame on both of you. OP wanted to find some community and you turned the thread into a shit show.

I didn’t turn this thread into anything. It’s the same poster who “listens” and interferes with EVERY thread about asd on this board and turns it into shaming parents into ignoring professional advice about how to treat their children with recommended treatments, avoid meeting up with children in similar situations, etc.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

I’m sorry, but you choose to listen to *some* of them. And then regularly stalk this board accusing caregivers who let blood caring for their children of “not listening .” There are several autistics who actually have *met* or *worked* with low functioning autistic children and adults…. They do not agree that there should be no distinction and argue accordingly. So listen to them too.

Shame on both of you. OP wanted to find some community and you turned the thread into a shit show.

I didn’t turn this thread into anything. It’s the same poster who “listens” and interferes with EVERY thread about asd on this board and turns it into shaming parents into ignoring professional advice about how to treat their children with recommended treatments, avoid meeting up with children in similar situations, etc.

Actually this is the PP who wrote the original post (ugh! I'm sorry OP, I HATE when people do this to me on this board). But I am not someone who always hijacks this board or encourages people to ignore professional advice.

[Anonymous]

Brain scans can help determine level 1, 2, 3. More if the brain is not developed as the severity level increases. To the point where for level 2 or 3 they need constant professional Al therapy for work arounds. For everything from hygiene to basic manners.

[Anonymous]

Anonymous wrote:Lightly fried autism.

DCUM inside joke + Special Needs forum discussion of a complex issue. My day is complete.

[Anonymous]

Anonymous wrote:This is all fine - but a huge problem that the Autistic adult community has is with "Autism moms" (i.e. US) defining all of this. If you read the literature BY Autistic people you'll find that the majority of the Autism community agrees that functioning labels are problematic on a lot of levels. I choose to listen to them.

No meetups for you.

[Anonymous]

I’d be interested in one for parents of older teens and college aged who need low support.

[Anonymous]

I have a younger teen, 2e. Interested in a meetup.

[Anonymous]

Anonymous wrote:Lightly fried autism.

I love you, PP.

OP, I get what you’re looking for but - I’ve been burned by more than one parent who wanted to get together for our kids who turned out to really just want to pump me for what therapies we’ve tried/what advocate we recommend/what has or hasn’t worked for our kid. I’d much rather let my kid play with neighbors who actually want to be friends than meetups with parents who have an “autism agenda.” Join a parent support group if you want to make connections for yourself - but even there I’ve felt the “what can you do for me” vibe. I really do get it - it’s so hard to be in the early months and years of diagnosis.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Lightly fried autism.

I love you, PP.

OP, I get what you’re looking for but - I’ve been burned by more than one parent who wanted to get together for our kids who turned out to really just want to pump me for what therapies we’ve tried/what advocate we recommend/what has or hasn’t worked for our kid. I’d much rather let my kid play with neighbors who actually want to be friends than meetups with parents who have an “autism agenda.” Join a parent support group if you want to make connections for yourself - but even there I’ve felt the “what can you do for me” vibe. I really do get it - it’s so hard to be in the early months and years of diagnosis.

Genuinely curious about this. I am one of these people in the early months. What exactly is detrimental in that conversation? Is it because you don't want to discuss autism with others? Or because the other parent only asked and didn't provide any info in return?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Lightly fried autism.

I love you, PP.

OP, I get what you’re looking for but - I’ve been burned by more than one parent who wanted to get together for our kids who turned out to really just want to pump me for what therapies we’ve tried/what advocate we recommend/what has or hasn’t worked for our kid. I’d much rather let my kid play with neighbors who actually want to be friends than meetups with parents who have an “autism agenda.” Join a parent support group if you want to make connections for yourself - but even there I’ve felt the “what can you do for me” vibe. I really do get it - it’s so hard to be in the early months and years of diagnosis.

Genuinely curious about this. I am one of these people in the early months. What exactly is detrimental in that conversation? Is it because you don't want to discuss autism with others? Or because the other parent only asked and didn't provide any info in return?

Not the pp but I have had 2 people reach out to ask me what my child's experience in a specific school was as an Autistic child. In both cases I took the time out to write a detailed reply and didn't receive so much as a thank you. I'm no longer taking time out for people who lack common courtesy or offer anything in return

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Lightly fried autism.

I love you, PP.

OP, I get what you’re looking for but - I’ve been burned by more than one parent who wanted to get together for our kids who turned out to really just want to pump me for what therapies we’ve tried/what advocate we recommend/what has or hasn’t worked for our kid. I’d much rather let my kid play with neighbors who actually want to be friends than meetups with parents who have an “autism agenda.” Join a parent support group if you want to make connections for yourself - but even there I’ve felt the “what can you do for me” vibe. I really do get it - it’s so hard to be in the early months and years of diagnosis.

Genuinely curious about this. I am one of these people in the early months. What exactly is detrimental in that conversation? Is it because you don't want to discuss autism with others? Or because the other parent only asked and didn't provide any info in return?

NP. Honest question: What are you seeking in return particularly from the parent of a younger child?
Not the pp but I have had 2 people reach out to ask me what my child's experience in a specific school was as an Autistic child. In both cases I took the time out to write a detailed reply and didn't receive so much as a thank you. I'm no longer taking time out for people who lack common courtesy or offer anything in return

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Lightly fried autism.

I love you, PP.

OP, I get what you’re looking for but - I’ve been burned by more than one parent who wanted to get together for our kids who turned out to really just want to pump me for what therapies we’ve tried/what advocate we recommend/what has or hasn’t worked for our kid. I’d much rather let my kid play with neighbors who actually want to be friends than meetups with parents who have an “autism agenda.” Join a parent support group if you want to make connections for yourself - but even there I’ve felt the “what can you do for me” vibe. I really do get it - it’s so hard to be in the early months and years of diagnosis.

Genuinely curious about this. I am one of these people in the early months. What exactly is detrimental in that conversation? Is it because you don't want to discuss autism with others? Or because the other parent only asked and didn't provide any info in return?

Not the pp but I have had 2 people reach out to ask me what my child's experience in a specific school was as an Autistic child. In both cases I took the time out to write a detailed reply and didn't receive so much as a thank you. I'm no longer taking time out for people who lack common courtesy or offer anything in return

NP. Honest question: What are you seeking in return particularly from the parent of a younger child?