My dear friend (in another state) has it. The cutting edge for POTS is an exercise program that stresses the heart to increase capacity. I don't know what resources are available in DC, but if the symptoms aren't too bad, you can work with a trainer to develop a protocol based on the big study. It's also important to support the heart nutritionally - if you're veggie, stop. Eat grassfed meat, including heart, fish, lots of dark greens. Cut out polyunsaturated oils and excess grain.
She's improved a great deal over time, but still takes medication and can't push it.
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