Low Ferritin, normal iron level and TIBC

[Anonymous]

I'm sorry that doctors are stupid about the topic of ferritin, but they are.

They will say anything over 12 is fine. It's not for all people. I never feel right unless my ferritin is more than 50. I was so lethargic and having trouble breathing and was ignored for years. Finally, I saw a doctor who tested me for ferritin. My ferritin was 7!

I took Ferrett's Iron Supplement, 325 mg.

Get your blood tested again because you also do not want your iron to get too high! You can ask your primary or a good doctor when a good time is to get checked. For me, it took about three months to get my ferritin from 7 to 50 or so.

You can help this along by eating meat and being sure to have any calcium APART from taking iron. Don't eat calcium pills or foods at the same time as iron.

Vitamin C helps with iron absorption. You could eat beef and drink OJ at a meal. Not my fave combo but it fits the bill for helping with this issue.

[Anonymous]

My ferritin was 12 and I felt like death.

I took Proferrin supplement. Withing 3 months I felt better.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Symptoms are fatigue, dizziness, some exercise intolerance, cold hands, general feeling of unwellness. Lots and lots of things tested, all normal or near normal. Iron level (115) and TIBC are normal, but a few years ago Ferritin was 22, and before that it was 20 - which are at low end of normal.

No doctor has brought my Ferritin level up as an issue, but online I’m reading about how some people are symptomatic at that ferritin level even if iron and TIBC are normal. Also have slightly low RBC and high MCV. Should I be looking for a different doctor than primary care for this? I keep hearing that “labs are good,” but I feel like cr@p.

See a hematologist.

+1 Definitely see a Hematologist

[Anonymous]

This is OP again, thanks for all the information. I was reading up on all this and see that some people can have normal levels of folate and vitamin B12, like I do, but not be able to use it functionally. I will ask my doctor to have homocysteine levels checked. I would need a referral to see a hematologist, and I think I need more data points before they’d take it seriously.

[Anonymous]

I tested two on ferritin about 3 years ago and got an iron infusion as I was travelling overseas a few weeks later. Had a gynaecological check up to see if they could identify the cause but didn’t get anywhere. Ferritin was back at 22 a couple of months ago and I had another infusion. My haematologist told me that Aetna will approve an iron infusion if the level is under 30 or 35 (I can’t remember exact amount).

In my home country, serum ferritin levels under 30 in an adult are classified as medicating iron deficiency.

[Anonymous]

Anonymous wrote:I tested two on ferritin about 3 years ago and got an iron infusion as I was travelling overseas a few weeks later. Had a gynaecological check up to see if they could identify the cause but didn’t get anywhere. Ferritin was back at 22 a couple of months ago and I had another infusion. My haematologist told me that Aetna will approve an iron infusion if the level is under 30 or 35 (I can’t remember exact amount).

In my home country, serum ferritin levels under 30 in an adult are classified as medicating iron deficiency.

* indicating

[Anonymous]

Anonymous wrote:

Anonymous wrote:I tested two on ferritin about 3 years ago and got an iron infusion as I was travelling overseas a few weeks later. Had a gynaecological check up to see if they could identify the cause but didn’t get anywhere. Ferritin was back at 22 a couple of months ago and I had another infusion. My haematologist told me that Aetna will approve an iron infusion if the level is under 30 or 35 (I can’t remember exact amount).

In my home country, serum ferritin levels under 30 in an adult are classified as medicating iron deficiency.

* indicating

That’s great information, thank you. Hope you are continuing to do well.

[Anonymous]

The ferritin ranges are absolutely too low. See this article in Hematology:
https://pmc.ncbi.nlm.nih.gov/articles/PMC10727104/

And you need to take more iron than you think to get your levels up.

[Anonymous]

Ferritin levels below 30 will generally qualify for iron infusion under most insurance plans. My hematologist says that iron supplements do not work in many cases.

[Anonymous]

OP, review your medications - some meds can mess with iron or other nutrition levels.