Op, I think you're getting some good advice here (and unfortunately some bad, also).
I agree with 11:12 PP who said to do as much the night before as possible. I know you said dd wants to shower in the morning for hair reasons, but maybe she can use a spray bottle to wet the hair in the am? If she absolutely has to shower in the am, then sounds like an earlier get up time is needed. I don't think the virtual therapy is helping, either. It's good you're pursuing in person instead. I also think you should make an appointment for a neuropysch consultation. This doesn't mean she will have a neuropysch done, it's a consultation to see if it's indicated. In my experience, it's by the same dr who would do the eval. My dd, who is 9, had an eval years ago when she was dx with asd. I actually had a consult last month for another one, because she is exhibiting signs of anxiety. We actually decided not to and to instead see a developmental behavorial pediatrician (soon). So in your case, I'd make an appt for the neuropysch so you can get the consultation, and see if dr thinks it's actually needed. Maybe it is, or maybe another kind of eval is indicated. |
She needs to get up earlier in the morning. |
Op here - so we have been waking up dd 30 mins earlier and that has definitely helped.
The morning routine was just an example of things that set her off. She is also in general very negative about herself. She constantly says she is stupid or she hates herself. But when I ask why she can’t articulate it. And she mostly does it with me. Rarely with anybody else. |
NP and I also agree with this. And three years of therapy beginning at age 6 with no apparent progress sounds like a terrible therapist. I would stop this therapist and find someone else, in person. I also have a kid who gets very frustrated and anxious about her hair (and has been in therapy for anxiety). We actually took her for an appt with the hair stylist for what we called “hair therapy.” The stylist also listened to her concerns, shared what was easily tamed and what wasn't, and recommended some products. It was awesome and transformative for her, to feel someone who knew something about this was taking her seriously and offering advice. You could certainly get a neuropsych if you like but I agree what you’re describing isn’t out of the ordinary. But three years of continuous therapy at this age is a lot, so maybe there’s more going on. |
As someone who had anxiety all my life including during childhood, taking medication changed my life. I did not seek treatment for this until I was an adult ( I’m in my 40s) and the first course of action was doing therapy. I could not use the tools from Therapy at all on their own. Anxiety was too high to even be able to fathom them. It was just not possible to even try the techniques from therapy.
Once the mediation started to work, I could seek those strategies and think reasonably. I don’t know if this is the right course of action for your child, but just sharing my experience that sometimes the medication needs to start working in order to understand and even be able to approach the therapy techniques
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Typically they aren’t which is why specialists exist. Especially for kids who may have multiple disabilities then it can be harder to diagnose. At a minimum it sounds like this therapist may not be helping address the challenges she has. Remember to think about trends vs a bad day or two. I would request an evaluation through her school (put it in writing to the teacher, principal and case manager/special education director). |
you need a neuropsych. We started testing our daughter at age three, redoing it roughly every 3 years which not uncommon. We did it five times up to high school entry and only then got the correct diagnosis: autism (then aspergers); ADHD; Anxiety disorder. She recently did the test again at age 30 and learned that the high school and college aged tests were correct. The only addition at age 30 was depression. |
Your husband needs to get over his medication issues and you need to discuss options with a therapist. It is ludicrous to be where you are and not be discussing medication options. |
FYI, there are options beyond “heavy duty medication.” You have many options to start with light doses of medication that can help with the fringe behavior. No one should suggest you fully sedate your child. |
+100 - it is totally appropriate given what you are dealing with and her age. |
SPACE. You need SPACE. |