Anonymous wrote:My 12 yr old has many of the same issues. We have seen genetics, GI (repeatedly), endocrine, and multiple nutrition visits. No real diagnosis. We finally consented to a feeding tube bc the only thing anyone has come up with is that he should eat more. Weight gain has been minimal even since then. No idea where we are going next. I wish I had something helpful to offer. Right there with you though.
hi, that's me ^^^. Still nothing useful. 8 months of feeding tube, slowly slowly gaining... finally approaching the 1st percentile for weight. Endocrine says he's not their problem. Clinging to the 3rd percentile for height so that's fine apparently. The diagnosis apparently remains "needs to eat more." FFS so frustrating.
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