Neuropsych at 4 because ID suspected

[Anonymous]

Anonymous wrote:I've seen your previous post on this same issue. I'm going to say something blunt and I'll probably be called mean and nasty and be told to go back to GP and have my post reported and all that but --

You have fears about ID. Fine. However, parents on the Special Needs Forum are dealing with ID, and we don't consider our children "less than." We don't weep and wail and gnash our teeth and sob into our sleeves and shake our fists at the universe. We actually like life.

If you have an obsession with ID, and a phobia about ID, I don't consider that to be a special needs issue. I consider that to be an anxiety issue and you should post in Health and Medicine.

If, on the other hand, you want tips about educating a child who actually has ID, I'm all about supporting you. If you want a support group, I'm here. If you want resources, I'm ready to provide them. But I consider your phobia and your fears of ID to be a tedious, overblown, and an eye-roller. Please get help for yourself.

Nope, it's fair. I get equally annoyed when people ask if their kid has adhd or delays like its the end of the world. I understand. Fair point and well made. It's not so much the fear of the id, I just want desperately to know what we are dealing with so we can prepare, like so many of us do. That's the big question I guess. Sorry for being insensitive.

[Anonymous]

Tough love, PP!

I know it's frustrating, but for parents who have a tendency to be anxious anyway - and I am one of them - such life events can be really difficult to handle. I recall those early days when I had no clue what DC1's issues were, and I was driving myself crazy, literally. I was a wreck from his birth until he turned 6, basically

OP, I didn't read your original thread, but please hang in there. Yoga and mindfulness have helped me to control my anxiety and seek long-term solutions. Please remember that one provider's opinion does not make or break a diagnosis unless he or she can show you proof that they are experts in that field AND have thoroughly evaluated your child, with sensitivity and perspicacity. For example, only one speech therapist out of many understood my son. She happened to be the free public school speech therapist! The physical therapist practically accused me of being an unfit mother when I told her I thought DS had Asperger's and ADHD - but it turned out it was true and my gut feeling had been correct. The first ADHD specialist we went to when DS was 6 only diagnosed him with tentative, mild ADHD-NOS, and we suffered for years before going to Stixrud and learning that he had severe ADHD and learning disabilities. Perhaps not the first specialist's fault, since, as a PP said, the younger you test, the more tricky it can be. But still.

You have a long road ahead of you, so take it easy. And most importantly, please do not forget to enjoy the child you have. Try not to focus exclusively on his issues, but be happy with him in the moment.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I've seen your previous post on this same issue. I'm going to say something blunt and I'll probably be called mean and nasty and be told to go back to GP and have my post reported and all that but --

You have fears about ID. Fine. However, parents on the Special Needs Forum are dealing with ID, and we don't consider our children "less than." We don't weep and wail and gnash our teeth and sob into our sleeves and shake our fists at the universe. We actually like life.

If you have an obsession with ID, and a phobia about ID, I don't consider that to be a special needs issue. I consider that to be an anxiety issue and you should post in Health and Medicine.

If, on the other hand, you want tips about educating a child who actually has ID, I'm all about supporting you. If you want a support group, I'm here. If you want resources, I'm ready to provide them. But I consider your phobia and your fears of ID to be a tedious, overblown, and an eye-roller. Please get help for yourself.

Nope, it's fair. I get equally annoyed when people ask if their kid has adhd or delays like its the end of the world. I understand. Fair point and well made. It's not so much the fear of the id, I just want desperately to know what we are dealing with so we can prepare, like so many of us do. That's the big question I guess. Sorry for being insensitive.

I think the question is actually when was ID diagnosed, what were the signs, how did you confirm, any known cause. Not to make you defend your child's existence, or to feel bad, but like most of the posts on here, to get help with figuring out what is going on.