Endometriosis: It Seems Like I've Tried Everything!

[Anonymous]

I dealt with endo when I was TTC about 10 years ago. I had it surgically removed and then went on the endo diet, and have been following it more or less ever since. I'm pretty strict about avoiding gluten. I avoid everything else most of the time but not religiously. My endo symptoms haven't come back. It's also helped with migraines. It's not easy to follow; you have to change your eating habits, but after about 6 months you figure it out.

I have a similar reaction to BCP and never found one I could take. I did have a Mirena implant after my kids were born and loved it. My libido suffered but everything else was awesome. The libido thing was a deal-breaker in our marriage so I had to go off of it but while I had it, I never felt better.

[Anonymous]

The few websites I've come across with the endo diet totally overwhelm me. Any suggested resources to get started on this?

[Anonymous]

About 12 years ago, I was diagnosed with endometriosis. I didn't have pain, but had massive bleeding. The dr wanted to perform a hysterectomy. Even though I didn't want more children, I really didn't want major surgery that could adversely affect my sex life. So, I told the dr to look for another remedy. I took Lupron injections once weekly for six weeks. Not only did it stop the bleeding, I had no side effects and the problem didn't return. Good luck to you.

[Anonymous]

I did Lupron and it was a miracle drug for me. It, however, did not cure my endo but it was glorious while it lasted. Except, of course, for some mild mental issues that occurred whenever I was given a shot. But hey you take the good with the bad. Having a baby fixed the endo forever.

[Anonymous]

I took a shot once a month for twelve months. Menopause lasted two years.

[Anonymous]

I've had tremendous success with traditional Chinese medicine, especially herbs. I was extremely skeptical, especially since I'd been through so many painful procedures before this. I told the practitioner sheepishly how surprised I was that the TCM herbs were working so well, and she laughed and said luckily you don't have to believe it will work to see results. I seriously am so grateful my doctor referred me to her. Her name is Rebecca Berkson she practices in McLean.

[Anonymous]

Look into Magnesium Deficiency and endo. I would start adding Magnesium Oil Spray every night (or epsom salt baths) and add a supplement (not as effective as through the skin) like Jarrow Magnesium Optimizer.

Also, my Registered Dietitian mentioned that she once had endo. Don't know how she eliminated, but you could contact her. Nicole at
http://www.wholehealthrd.com

[Anonymous]

I suffered from endometriosis until I got the Mirena. I had debilitating, painful, heavy periods that lasted for 7+ days and recurred every 21 or 22 days. The Mirena changed my life so dramatically for the better that I affectionately refer to it as my best friend. After insertion (which wasn't that big of a deal), it took about six months for my body to adjust. During that time, I had frequent spotting. Then, miraculously, my periods ceased almost entirely. Most importantly, though, I haven't taken pain meds for cramps since the Mirena was inserted. It was truly life-altering for me, with no negative side effects.

[Anonymous]

Anonymous wrote:The few websites I've come across with the endo diet totally overwhelm me. Any suggested resources to get started on this?

Check out the book called "Endometriosis: A Key to Healing Through Nutrition"

[Anonymous]

Anonymous wrote:I suffered from endometriosis until I got the Mirena. I had debilitating, painful, heavy periods that lasted for 7+ days and recurred every 21 or 22 days. The Mirena changed my life so dramatically for the better that I affectionately refer to it as my best friend. After insertion (which wasn't that big of a deal), it took about six months for my body to adjust. During that time, I had frequent spotting. Then, miraculously, my periods ceased almost entirely. Most importantly, though, I haven't taken pain meds for cramps since the Mirena was inserted. It was truly life-altering for me, with no negative side effects.

That is so great to hear! Of the women I've polled, the only side effects I've heard about have been physical--spotting or erratic periods, some cramping, etc. These I can handle. What I'm concerned about are emotional side effects, or bloating. So far, I haven't heard anyone talk about these in relation to Mirena, which is reassuring.

[Anonymous]

Anonymous wrote:I've had tremendous success with traditional Chinese medicine, especially herbs. I was extremely skeptical, especially since I'd been through so many painful procedures before this. I told the practitioner sheepishly how surprised I was that the TCM herbs were working so well, and she laughed and said luckily you don't have to believe it will work to see results. I seriously am so grateful my doctor referred me to her. Her name is Rebecca Berkson she practices in McLean.

Thanks so much! I'll look into her!

[Anonymous]

Is there anyone who has the Mirena who does not have children? How has it been for you? How was the insertion?