Pelvic Pain - Help! I have had pelvic pain for 2 years - been to all kinds of doctors to no avail!

[Anonymous]

12:20, I think we see the same doctor.

I had pain during intercourse and severe pains when menstruating. My OB/GYN found a decent sized cyst on my ovary and found endometriosis when he did the laporoscopy. I believe he said he cauterized what endometriosis he saw, and once I healed, I felt much better and the pain was gone. However, 8 years later I have another large cyst (plus a smaller one that ruptured) and my endometriosis most likely grew back.

Have you gone to the OB/GYN yet?

[Anonymous]

Anonymous wrote:Have you had a c-section? My friend had something similar to this for 2 years after her last child - severe pain, urinary frequency, discomfort during BMs, etc. She spent over a year going to doctors and finally found one that decided to go in to see what was going on. Turns out she had large amounts of scar tissue from her 2 c-sections that was pulling on her abdominal orgains. They cleaned it out and she's 100% better.

. Who do you recommend to clean this scar tissue? I am having the same problem

[Anonymous]

If vulvar rather than abdominal, http://www.cvvd.org/

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Have you ruled out fibroids?

That was my thought too.

Are your periods unusually heavy?


On a side note, does the pelvic pain feel like its in the bone or more in the pelvic cradle?

Op here. It feels like it is the bladder. One doctor thinks it is interstitical cystisis (sp) another says it is bad IBS another not sure. I am going for a sonogram (vaginal) to see if it is in the reproductive area. I do have to urinate a lot but don't have an infection, although I do get a few infections a year. Thanks for responding. It is making me really depressed, irritable, etc... I just want to climb in a cave and never leave. It is worse during period - not sure if it is b/c uterus is pushing on bladder? Had a cystoscopy done a few years ago but the results were inconclusive? I need to see a therapist about this as it is completely overwhelming - i go to the doctor at least once a week for 2 years. Any psychotherapist recs in DC?

This makes me think it might be endometriosis. I have it and I get very bad pelvic pain during my period. Sometimes during sex also, but not always. My periods were heavy (before I got on the pill). I also use the bathroom a lot. It isn't a UTI or a kidney infection but due to the endo on my bladder. It is also painful when I move my bowels (during my period).
From what I remember there is not a test to diagnosis endo. I told my gyno my symptoms and he diagnosed me. He went in via a laporoscopy (sp?) and there it was. Endo in my uterus, bladder and bowel. I can give you my gyno's number if you are interested. He is in Rockville and DC.

BTW, I also have fibroids but they are so small they dont cause any pain. But the endo..DOES!

I agree with the PPs who suggested endo. As the PP above states though, endo is only confirmed through a laparoscopy (out patient surgery). I've had three surgeries for it, and it's no fun. Definitely a lot of pelvic pain, worse during period, though irregular periods, and some pain during inter course as PP. I used to go to Dr. William Cooper who did one of my laparoscopy, and I switched OBs when pregnant because Cooper no longer delivered by the time I was pregnant.

[Anonymous]

It sounds like IC (interstitial cystitis) to me, based on the urinary issues. IC often gets worse during your period b/c of hormonal fluctuations. But also agree that the word "pelvic pain" made me think endometriosis. Either way, OP, get to a good uro-gynecologist (in case it is IC) and a good gynecologist (in case it is something else). And do some reading on both conditions - it may help you articulate your symptoms better.

[Anonymous]

Oh - and if it is IC, one thing to look into: Cysta-Q. I'm totally not into natural therapies or medicating things that can't be cured, but this made me a believer - at least for this particular remedy. Try looking it up on IC boards and on customer review places like Amazon.

[Anonymous]

It could be sciatic endometrosis.

Or endometrosis "anywhere". The menstral lining can sometimes bind to other internal organs such as ovaries, fallopian tubes, but also on nerves, bladder, pr any other organ outside the uterus. You did mention IBS so it could be GI endometrosis - essentially your having a period in your lower GI tract.

Most doc. don't recognize this since the symptoms are non specifc and can be easily associated with "umbrella" diagnoses such as "oh it's just IBS".

Just something to think about and maybe pursue with a doctor

[Anonymous]

if you had pubic symphysis diastasis during pregnancy it can lead to pain while menstrating.
http://www.plus-size-pregnancy.org/pubicpain.htm

if it's a pelvic floor disorder, a physical therapist could help.
Rene Lawson, a physical therapist specializing in pelvic floor disorders. 202/466-9719, 2021 K Street, N.W., 2d Fl.
GW Pelvic Floor Center - http://www.gwhospital.com/index.php?PageID=2285 202-741-3343

[Anonymous]

It sounds to me like endometriosis. Menstrual tissue migrates or grows outside of the uterus. Each month when you get your period, this tissue responds to your hormones the same way the tissue on the lining of your uterus does - by trying to get out! This results in severe pain.

Haven't read all the replies but you should def. talk to someone specializing in this. Nowadays it can be easily treated laporoscopically (sp).