Hoping for a g-tube

Anonymous
Anonymous wrote:Thank you for your replies. It is nice to know that I am not alone in having these issues. To be exact, he's 19lb and 11oz. I realize that there are smaller children, and that he is not on the brink of death, but the point is that he does not receive the nutrition that he needs for optimal growth. I do appreciate knowing the difficulties or problems and plan to look through the site that was linked. Could you share the name of the doctor at Georgetown? What is the set-up there. Like any mother, I want what is best and would like to know about the different options out there. To the poster who had a very negative experience with the tube, how is your child with eating now? To the moms with older ones, have they grown out of it to some extent? Will they eat lunch at school?


My son is now 9. To a great extent it does get better as they get older because you can reason with them and they want to p,ease you by eating. Also, my kids, anorexic one included, will always try school lunch. I could offer the same thing and they wouldnt touch it. But it's still tough. My son got sick last week and lost a full five percent of his body weight and is way below the first percentile for weight now. And, mealtimes will never be those pleasant family events that others experience.
post reply Forum Index » Kids With Special Needs and Disabilities
Message Quick Reply
Go to: