OP here. Thank you for this. At some point I was sent to a neurosurgeon for an evaluation and he was the first one to say that he was not sure my problems were coming from the spine and suggested to go back to a ‘regular’ neurologist. I am at the point that I really want to get a correct diagnosis especially to avoid unnecessary treatments |
It was long but not particularly painful or uncomfortable but I do have peripheral nerve damage |
omg, me too, except it's just my feet that tingle. I had a nerve conduction study done, and they found nothing much. It was painful. I had my spouse go with me, and I'm glad I did because I felt a bit wobbly afterwards probably from the pain and adrenaline or something, so my spouse drove home. I have been to a neurologist, neurosurgeon, ortho, podiatrist, acupuncture, PT... no one seems to know what's causing it. I think it's a pinched nerve somewhere, but the MRI didn't find anything. Ugh. |
Have you tried a getting a recommendation to a neurologist with a clinical neuromuscular or nuerophysiology subspecialty? |
OP here. My PCP decided to send me to a center specialized in neurological disorders; you can get in only through referral and cannot pick the provider for the screening. I looked up the dr I am assigned to but the description is very vague. My first appointment is next week so we will see how it goes |
Have you been to a neurologist? Tinging and passing a nerve conduction test can indicate certain conditions. |
dp.. like? |
MS, diabetes, Autoimmune (Sjogren's lupus, sarcoidosis) spinal stenosis or herniated discs, thyroid or kidney dysfunction. It should not be ignored just because the nerve test was “fine”. |
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People led me to believe it was some kind of torture, and I did not find that to be true AT ALL. No lie. It feels weird. They are like, “when I zap here, the muscle down there will move.” I thought that was unique and almost interesting. I think they are testing if electrical impulses can travel to muscles which then react normally.
I hope you have my experience , which would definitely fall into the category of mildly uncomfortable/weird. (This test is necessary to diagnose/rule out several serious conditions. If a neurologist says you need it, I would do it. ) |
I am one of the people who had a nothing burger experience (in terms of pain). Mine was done by a neurologist, who my regular neurologist uses for all of her patients who need this test (so, mine was not done by a tech or regular neurologist, it was done by a specialized neurologist who was able to give me my results immediately). Well worth it. |
Good luck. This will help you receive the proper treatment longterm. |
It’s very uncomfortable. |
| I had one yesterday with Dr. Kurtzke. He was very good. |
| OP here with an update. I went to the neurology center yesterday and had an assessment visit. I am scheduled soon for an EMG and at some point also for an mri. I am a bit concerned. Dr was wonderful but I have the impression that is trying to rule out ALS. I am very surprised because my symptoms are persistent but mild and barely noticeable; I went in with a clinical diagnosis of age related neuropathy. We shall see.. |
I’ve been to many doctors over the years. Sometimes there can never find the source and just treat the symptoms. It sucks. |