My trust in doctors is so low right now

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:OP I hear you! I have been dealing with bad migraines and symptoms of autoimmune issues (joint pain, swelling, fatigue, mysterious rashes that appear out of nowhere) and it's like there is no one who can help me. Then I had a weird incident with my eye where there was no pain but I had these weird vertical lines traveling across my line of vision. I talked to my opthamologist, thinking it might be something with my retina, but he thought it might actually be something called an ocular migraine, which I'd never heard of. So then I went to my neurologist who was also like "I've never heard of that" and also seemed weirdly uninterested in something that seemed like a pretty alarming symptom to me. The migraine med I was on gave my a scary rash (like hives territory, rapidly spreading rash all over my upper body after I took it) so I stopped taking it, but the neurologist said "you don't really have to worry unless your throat starts to close." Meanwhile I have all these other skin issues that seem like they might be autoimmune (weird bumps behind my ears that come and go, random rashes, and these occasional pimples that are like a single cyst of cystic acne, but my dermatologist is like "I've never seen anything like this before). I want to get a new neurologist but waitlists are long and in the meantime I want to see either a rheumatologist or an immunologist (or maybe an allergist?) for the autoimmune stuff but my insurance is being weird and wants a referral and my GP is like *shrug* "I don't know."

Mostly I just feel like no one cares. I go, I make my copay, sometimes they prescribe something, sometimes they don't. When I come back and say "this didn't work" or "this worked but I have this weird side effect" it's like there's no interest in figuring it out.

I have been getting migraines since my 20s. They used to be what you read about, pain in one side of head, nausea, vomiting. Even diarrhea. My challenge was to crawl out of bed before the nausea made me throw up my meds.

In my 40s I started getting auras. Typically they were dancing zebralike black and white snakes with some color. Or a shimmering.

Now I get the shimmering or a blurry field of vision. My meds take care of it.

What meds are you on?

The same one as in my 20s. Fiorinal. Buta-asa-caf. Not trendy but it always works. One does the job, usually. Rarely need a second. There's a tylenol version Fioricet.
Butalbital is habituating but I don't get migraines often during a week.

[Anonymous]

Capital Integrative Health

[Anonymous]

Anonymous wrote:I highly recommend this for some comic relief:

https://www.youtube.com/shorts/Qz2qWXy3xJo

That’s a good one, I like this one too:

https://youtube.com/shorts/wYvNf5k1RHo?si=kFr25zqkprUzQZ_G

[Anonymous]

Anonymous wrote:

Anonymous wrote:OP, go back and tell her that’s fine, you are just going to buy HRT from India off the Internet. Her loss.

Wut?

You can buy meds online from India. They are not regulated by the FDA, so if your doc refuses a reasonable request you might have to seek alternative means. It’s on them.

My mom told her doc this and he shrugged and wrote her a prescription since she was going to take them anyway. It’s obviously not something you’d want to do for scheduled meds but for something as innocuous as HRT, it’s fine.

[Anonymous]

Yes. This is why I no longer go to one anymore.

[Anonymous]

Anonymous wrote:Capital Integrative Health

I went there for years but now they are charging $600 for a doctor’s visit…

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:OP I hear you! I have been dealing with bad migraines and symptoms of autoimmune issues (joint pain, swelling, fatigue, mysterious rashes that appear out of nowhere) and it's like there is no one who can help me. Then I had a weird incident with my eye where there was no pain but I had these weird vertical lines traveling across my line of vision. I talked to my opthamologist, thinking it might be something with my retina, but he thought it might actually be something called an ocular migraine, which I'd never heard of. So then I went to my neurologist who was also like "I've never heard of that" and also seemed weirdly uninterested in something that seemed like a pretty alarming symptom to me. The migraine med I was on gave my a scary rash (like hives territory, rapidly spreading rash all over my upper body after I took it) so I stopped taking it, but the neurologist said "you don't really have to worry unless your throat starts to close." Meanwhile I have all these other skin issues that seem like they might be autoimmune (weird bumps behind my ears that come and go, random rashes, and these occasional pimples that are like a single cyst of cystic acne, but my dermatologist is like "I've never seen anything like this before). I want to get a new neurologist but waitlists are long and in the meantime I want to see either a rheumatologist or an immunologist (or maybe an allergist?) for the autoimmune stuff but my insurance is being weird and wants a referral and my GP is like *shrug* "I don't know."

Mostly I just feel like no one cares. I go, I make my copay, sometimes they prescribe something, sometimes they don't. When I come back and say "this didn't work" or "this worked but I have this weird side effect" it's like there's no interest in figuring it out.

I have been getting migraines since my 20s. They used to be what you read about, pain in one side of head, nausea, vomiting. Even diarrhea. My challenge was to crawl out of bed before the nausea made me throw up my meds.

In my 40s I started getting auras. Typically they were dancing zebralike black and white snakes with some color. Or a shimmering.

Now I get the shimmering or a blurry field of vision. My meds take care of it.

What meds are you on?

The same one as in my 20s. Fiorinal. Buta-asa-caf. Not trendy but it always works. One does the job, usually. Rarely need a second. There's a tylenol version Fioricet.
Butalbital is habituating but I don't get migraines often during a week.

I take Fioricet for my migraines - have been for the past 12 years. Works like a charm.

[Anonymous]

Anonymous wrote:Maybe stop going to them for "fatigue and headaches" if nothing is actually wrong?

Fatigue and headaches is not the norm so something is wrong…. I use estrogen spray and progesterone pills and it has changed my life for the better.

[Anonymous]

I’m in the same boat, OP and it is so frustrating. The providers always quickly go to depression. A new pcp at a world class hospital put me in the fibromyalgia bucket within 2 visits.

[Anonymous]

Anonymous wrote:Maybe stop going to them for "fatigue and headaches" if nothing is actually wrong?

I’d love to see you live with those symptoms 24/7

[Anonymous]

Health care is a mess. I’m a doctor who studies patient trust in doctors. What would make you trust us more?

[Anonymous]

Anonymous wrote:Health care is a mess. I’m a doctor who studies patient trust in doctors. What would make you trust us more?

Frankly the hate begins after dealing with the dreadful billing and scheduling “platforms” at most offices. Doctor office procedures are horrendous.

[Anonymous]

I am dealing with an ongoing health issue and being passed around as well. It is exhausting and another job on top of the one I have.

As a minority woman, I tend to get better treatment from other minorities or women, but that's not always the case.

The traditional medical system here is not designed to treat long term issues.

I had to go to a concierge doctor to get better treatment.

[Anonymous]

Anonymous wrote:OP I hear you! I have been dealing with bad migraines and symptoms of autoimmune issues (joint pain, swelling, fatigue, mysterious rashes that appear out of nowhere) and it's like there is no one who can help me. Then I had a weird incident with my eye where there was no pain but I had these weird vertical lines traveling across my line of vision. I talked to my opthamologist, thinking it might be something with my retina, but he thought it might actually be something called an ocular migraine, which I'd never heard of. So then I went to my neurologist who was also like "I've never heard of that" and also seemed weirdly uninterested in something that seemed like a pretty alarming symptom to me. The migraine med I was on gave my a scary rash (like hives territory, rapidly spreading rash all over my upper body after I took it) so I stopped taking it, but the neurologist said "you don't really have to worry unless your throat starts to close." Meanwhile I have all these other skin issues that seem like they might be autoimmune (weird bumps behind my ears that come and go, random rashes, and these occasional pimples that are like a single cyst of cystic acne, but my dermatologist is like "I've never seen anything like this before). I want to get a new neurologist but waitlists are long and in the meantime I want to see either a rheumatologist or an immunologist (or maybe an allergist?) for the autoimmune stuff but my insurance is being weird and wants a referral and my GP is like *shrug* "I don't know."

Mostly I just feel like no one cares. I go, I make my copay, sometimes they prescribe something, sometimes they don't. When I come back and say "this didn't work" or "this worked but I have this weird side effect" it's like there's no interest in figuring it out.

If the eye thing happens frequently, go see a retina specialist. Could be a partial detachment or sign of retinal inflammation. Or an autoimmune eye disorder, which are not uncommon. And wait times are long for rheums, get that referral sooner than later.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:OP I hear you! I have been dealing with bad migraines and symptoms of autoimmune issues (joint pain, swelling, fatigue, mysterious rashes that appear out of nowhere) and it's like there is no one who can help me. Then I had a weird incident with my eye where there was no pain but I had these weird vertical lines traveling across my line of vision. I talked to my opthamologist, thinking it might be something with my retina, but he thought it might actually be something called an ocular migraine, which I'd never heard of. So then I went to my neurologist who was also like "I've never heard of that" and also seemed weirdly uninterested in something that seemed like a pretty alarming symptom to me. The migraine med I was on gave my a scary rash (like hives territory, rapidly spreading rash all over my upper body after I took it) so I stopped taking it, but the neurologist said "you don't really have to worry unless your throat starts to close." Meanwhile I have all these other skin issues that seem like they might be autoimmune (weird bumps behind my ears that come and go, random rashes, and these occasional pimples that are like a single cyst of cystic acne, but my dermatologist is like "I've never seen anything like this before). I want to get a new neurologist but waitlists are long and in the meantime I want to see either a rheumatologist or an immunologist (or maybe an allergist?) for the autoimmune stuff but my insurance is being weird and wants a referral and my GP is like *shrug* "I don't know."

Mostly I just feel like no one cares. I go, I make my copay, sometimes they prescribe something, sometimes they don't. When I come back and say "this didn't work" or "this worked but I have this weird side effect" it's like there's no interest in figuring it out.

I have been getting migraines since my 20s. They used to be what you read about, pain in one side of head, nausea, vomiting. Even diarrhea. My challenge was to crawl out of bed before the nausea made me throw up my meds.

In my 40s I started getting auras. Typically they were dancing zebralike black and white snakes with some color. Or a shimmering.

Now I get the shimmering or a blurry field of vision. My meds take care of it.

What meds are you on?

The same one as in my 20s. Fiorinal. Buta-asa-caf. Not trendy but it always works. One does the job, usually. Rarely need a second. There's a tylenol version Fioricet.
Butalbital is habituating but I don't get migraines often during a week.

Op is it just for intense migraines? What about chronic low level migraines?