John Hopkins, Sibley and JHU Rare Breast Cancer

[Anonymous]

go to Hopkins. you have one of the best hospitals, if not the best, in the country just up the road.

[Anonymous]

Best wishes OP, and all who are diagnosed with BC.

[Anonymous]

Anonymous wrote:I have a different rare breast cancer. Another local person I know with my same diagnosis did not have a good experience at Hopkins Rare Breast Cancer Center. She then went to MSK’s program and had a very positive, hopeful experience. They determined a protocol and another oncologist managed care here. There is a first line protocol for my cancer, so I did that treatment here and will go to MSK if I have a recurrence.

That being said, there are a lot of oncologists listed for that program at Hopkins including a few at Sibley who are excellent. If there is a standard protocol, they will likely do that wherever you go. Where there may be differences is in monitoring after treatment and in second line treatments if there is a recurrence.

The problem is that I have an HMO and cannot get covered treatment out of the DMV. So no MSK for me. 😔

[Anonymous]

Anonymous wrote:

Anonymous wrote:My sister-in-law had a relatively rare kind of breast cancer (triple negative) at a young-ish age and got her treatment in Boston at Dana Farber. She is cancer-free today after five years!

I have this TNBC and I am part of a new trial with immunotherapy. Responding very well to the treatment. I pray, hope and strive to be cancer-free for the rest of my life.

^^Wanted to add ... I also went to Hopkins at Sibley for a second opinion about the trial that I am on. They were happy with my treatment and my response. My trial is to make it the new standard of care for 2nd stage invasive ductal carninoma TNBC.

[Anonymous]

Anonymous wrote:FWIW just because Sibley is in the JH system does not mean the experts at JH will be treating you at Sibley.

Not sure for breast cancer but my friend is an oncologist with different specialty and splits his time between sibley and Baltimore jhu