T1D diagnoses in NOVA

[Anonymous]

Get a cgm and you keep the phone to check blood sugars.

[Anonymous]

It is super overwhelming it in the beginning and it gets so much easier over time!

If you can afford a private CDE, I highly recommend Ellie Kagan. [e-mail]

We didn’t need her help all that long, but in the beginning, she was a really helpful resource

If you haven’t already got it, I highly recommend the book think like a pancreas

Also, I found the juice box podcast to be incredibly helpful in the beginning. It’s really good at teaching you how to take control your own management and be less reliant on that endocrinologist. There is a bold beginnings series that’s a good starting point, and then there are the pro tips series, which are really helpful in the more nuanced parts of Management, like dealing with reactions to weather, travel, altitude, etc.. There is an associated Facebook group as well. That is a really helpful community.

There’s a Facebook group called mid Atlantic type one parents, which will help you find local help

Breakthrough T1 D will also have different groups you can join and start getting involved with the community. The diabetes walk is this weekend on the mall! It’s a great way to be surrounded by other diabetics and have it feel more normal

[Anonymous]

Anonymous wrote:It is super overwhelming it in the beginning and it gets so much easier over time!

If you can afford a private CDE, I highly recommend Ellie Kagan. [e-mail]

We didn’t need her help all that long, but in the beginning, she was a really helpful resource

If you haven’t already got it, I highly recommend the book think like a pancreas

Also, I found the juice box podcast to be incredibly helpful in the beginning. It’s really good at teaching you how to take control your own management and be less reliant on that endocrinologist. There is a bold beginnings series that’s a good starting point, and then there are the pro tips series, which are really helpful in the more nuanced parts of Management, like dealing with reactions to weather, travel, altitude, etc.. There is an associated Facebook group as well. That is a really helpful community.

There’s a Facebook group called mid Atlantic type one parents, which will help you find local help

Breakthrough T1 D will also have different groups you can join and start getting involved with the community. The diabetes walk is this weekend on the mall! It’s a great way to be surrounded by other diabetics and have it feel more normal

OP, consider doing this! For real, maybe even wear a shirt that says “just diagnosed and completely overwhelmed.”

Literally every single T1D parent has been where you are. We’ve been overwhelmed and scared and filled with grief, and we get it. Maybe if possible bring two adults so one can keep an eye on your son while you talk and ask questions of fellow parents and experts.

It might feel like one more overwhelming thing right now, but I’ll bet it will make you feel a little more whole.