5 year old niece with DIPG/DMG Brain Tumor

[Anonymous]

I'm so, so, sorry, OP. I hope you can support her parents and help them through. Big hugs from me.

[Anonymous]

DIPG always reminds me of this Humans of NY story

http://k1nsey6.com/2016/05/maxs-story-humans-of-new-york/

I'm so sorry

[Anonymous]

OP: hold your loved ones a little tighter tonight and don't take their life and existence for granted. The mess your child has made....it's going to be okay....it's just material things. I would give anything to see my niece make a mess....to see her walk and play....oh the thought of it makes me smile.

[Anonymous]

So sorry OP. It’s an awful diagnosis. Someone in my mom’s group had a child who passed away from DIPG around 4 a few years ago. She also found Jenny Mosier to be a wonderful resource and support.

[Anonymous]

I’m so sorry OP.

[Anonymous]

I am very sorry. You won’t get different answers or odds from any other doctors. That cancer has a 100% mortality rate. 8 months post diagnosis is quite a feat.

[Anonymous]

A friend’s dc passed from this, 8 months after dx. They tried/ researched everything. I’m so sorry OP.

Has niece had a make a wish granted? The org made it happen quickly for the dc. The family cherished that.

[Anonymous]

So sorry, OP. Sending positive thoughts.

[Anonymous]

So very sorry op.

[Anonymous]

Ashley Stock’s daughter lost her battle with DIPG and she’s quite public about the journey. She goes by @littlemissmomma on Instagram.

[Anonymous]

Just another person who is friends with Jenny and has been donating to her foundation here to chime in. Jenny has made this her life mission and can advise. She also would have good resources for your sister. I’m so sorry your niece has this illness. It’s horrendous.

[Anonymous]

I am so incredibly sorry.

[Anonymous]

I am so sorry for you and your family.

[Anonymous]

I am so so sorry. This is such an unfair diagnosis.

[Anonymous]

Another resource: https://smashingwalnuts.org/
OP-there is no cure. I’m sorry.