The State of Fatal Cancer Information Is Weak

[Anonymous]

Thanks for this thread. I lost my dad to a rare cancer about ten years ago and there was no guidance when the dementia hit (it went to his brain) and even hospice was not helpful. Reading other people’s experiences I realize now that I’m not the only one in the world who went through similar. Hugs to you all.

[Anonymous]

Anonymous wrote:Thanks for this thread. I lost my dad to a rare cancer about ten years ago and there was no guidance when the dementia hit (it went to his brain) and even hospice was not helpful. Reading other people’s experiences I realize now that I’m not the only one in the world who went through similar. Hugs to you all.

I’m replying to myself here.

Now that I’m physically with my dad, I’m getting great information from his hospice nurse, who’s wonderful. But I still want my own detailed, warts-and-all, university-grad-appropriate, Pubmed-aware written guide, and I’m seeing other forum posts about the lack of such a guide.

If anyone here is a hospice nurse or the like who would rather be a writer, there’s obviously a huge, unmet need for What Expect When You’re Getting to the End kinds of books.

[Anonymous]

We also had a really good set of hospice nurses. They taught us practical things like how to do transfers from the bed to a wheelchair, wheelchair to car, bed to toilet chair etc. They also taught us how to change the sheets with the patient in the bed. And which sounds indicated pain versus disorientation.

I feel like there is a much for LPNs to run a sort of class for caregivers. A lot of these skills require physical demonstration. But there are so few people with the training available. I went to a baby care class when I was pregnant that was run by the hospital. It feels like there should be something like this available.