DC had something like a seizure/spasm but Dr. at the ER couldn't say what was wrong

[Anonymous]

^ adding that our docs told us that most nocturnal seizures happen with an hour or so of falling asleep, or before waking due to the hormones in the body. So for our DD, it would be within an hour of falling asleep or very early in the morning hours like 5:30 AM. They also usually follow a pattern, so most of our childs seizures occured around the same time.

[Anonymous]

OP, usually the ER dept won't do the in depth testing and stuff to find out 'why' a kid had a seizure or something like it. You really need to make the appt with neurology to find out.

[Anonymous]

Anonymous wrote: OP, usually the ER dept won't do the in depth testing and stuff to find out 'why' a kid had a seizure or something like it. You really need to make the appt with neurology to find out.

+1
It's not the ER'sjib to find out "why". They just do what's necessary to stabilize a (life-threatening) situation. The details abd follows are on your own with your doctor.

[Anonymous]

Anonymous wrote:

Anonymous wrote: OP, usually the ER dept won't do the in depth testing and stuff to find out 'why' a kid had a seizure or something like it. You really need to make the appt with neurology to find out.

+1
It's not the ER'sjib to find out "why". They just do what's necessary to stabilize a (life-threatening) situation. The details abd follows are on your own with your doctor.

That is not our families experience. When our child had what we suspected was a seizure in their sleep, they called over to Children’s Hospital neurology department for a consult. Children’s asked that we get there as soon as possible so they could perform some brain scans. We had no idea if it was a seizure as we had never seen one before.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote: OP, usually the ER dept won't do the in depth testing and stuff to find out 'why' a kid had a seizure or something like it. You really need to make the appt with neurology to find out.

+1
It's not the ER'sjib to find out "why". They just do what's necessary to stabilize a (life-threatening) situation. The details abd follows are on your own with your doctor.

That is not our families experience. When our child had what we suspected was a seizure in their sleep, they called over to Children’s Hospital neurology department for a consult. Children’s asked that we get there as soon as possible so they could perform some brain scans. We had no idea if it was a seizure as we had never seen one before.

CH is different. OP didn't say she went there.

My child was admitted at CH when they had seizures and remains a patient.

[Anonymous]

Anonymous wrote:We have a kid who had a grand mal seizure as an infant and absence seizures throughout toddlerhood, and one who had lots of night terrors. Your description does sound like a night terror to me, but it is good that they want you to follow up with a neurologist, if only for peace of mind.

Did they eventually end?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote: OP, usually the ER dept won't do the in depth testing and stuff to find out 'why' a kid had a seizure or something like it. You really need to make the appt with neurology to find out.

+1
It's not the ER'sjib to find out "why". They just do what's necessary to stabilize a (life-threatening) situation. The details abd follows are on your own with your doctor.

That is not our families experience. When our child had what we suspected was a seizure in their sleep, they called over to Children’s Hospital neurology department for a consult. Children’s asked that we get there as soon as possible so they could perform some brain scans. We had no idea if it was a seizure as we had never seen one before.

CH is different. OP didn't say she went there.

My child was admitted at CH when they had seizures and remains a patient.

To clarify we did not originally go to CH, we went to VHC and they consulted Childrens.

[Anonymous]

OP here. Thanks for all the responses. We did go to CH and actually go there for all his pediatric visits. It would be great if this turn out to be just night terrors, thought it doesn’t really fit what I saw. I also think the. Dr. or neurologist would have just told me if that’s what it was. I’ll just have to wait and see.

[Anonymous]

Anonymous wrote:OP here. Thanks for all the responses. We did go to CH and actually go there for all his pediatric visits. It would be great if this turn out to be just night terrors, thought it doesn’t really fit what I saw. I also think the. Dr. or neurologist would have just told me if that’s what it was. I’ll just have to wait and see.

Did they assign you to a neurologist for follow up? It’s great that you have the video.