Leucovorin now approved by FDA--will providers prescribe to ASD kids?

[Anonymous]

Looks like the FDA is now moving to relabel leucovorin as an on-label treatment for ASD. I know folks have been commenting on this for a while on this board, and it was somewhat difficult to find providers who would prescribe this treatment. I get that this administration has been making unfounded associations (tylenol, vaccines, autism), but this seems like a welcome additional option that has worked for some. Do we think that more providers will begin to prescribe it to ASD patients? I know when we asked our dev ped (at Children's National) we were told that it would not be prescribed for off-label use as it had not been through enough trials to be evidence-based.

[Anonymous]

I think you wait for evidence based trials.

[Anonymous]

I’m more worried this administration will force people on the spectrum to take it. This is why they wanted the list.

[Anonymous]

I would hope that most competent providers would wait for actual evidence, instead of relying on the say-so of two non-doctors who also believe that horse dewormer cures covid.

[Anonymous]

this coming from the one who said drink bleach

[Anonymous]

Quacks will.

[Anonymous]

Anonymous wrote:this coming from the one who said drink bleach

And who got your precious COVID vaccine made, you forget that

[Anonymous]

After FDA approval it should be easier to get it prescribed, OP. I hope it helps your child.

[Anonymous]

Is this for real? Every legitimate scientific research paper says ASD isn't treatable, only comorbidities like anxiety, depression, etc are recommend for treatment

[Anonymous]

Anonymous wrote:

Anonymous wrote:this coming from the one who said drink bleach

And who got your precious COVID vaccine made, you forget that

Trump is the only President in the history of the US to not take an oath to the Constitution did you forget that?
Trump is the only President in the history of the US who is a felon did you forget that?

[Anonymous]

Anonymous wrote:Is this for real? Every legitimate scientific research paper says ASD isn't treatable, only comorbidities like anxiety, depression, etc are recommend for treatment

It's more complicated than that. Autism likely has multiple underlying causes for different subtypes.

Leucovorin may be able to mitigate effects in the subset of children with folate-related abnormalities, particularly those with folate autoantibodies that prevent folate from reaching the brain.

Trump and RFK didn't make this up. But it isn't likely to have an effect on most people with autism because that isn't their underlying cause.

[Anonymous]

It’s wild to ignore treatment developments for your child because you don’t like that someone you hate talked about it. Didn’t you take prenatal vitamins when pregnant? Folate has long been known to be important for brain development.

[Anonymous]

Anonymous wrote:

Anonymous wrote:this coming from the one who said drink bleach

And who got your precious COVID vaccine made, you forget that

He was surrounded by physicians back then. Now look at his team. They have no medical background.

[Anonymous]

Anonymous wrote:It’s wild to ignore treatment developments for your child because you don’t like that someone you hate talked about it. Didn’t you take prenatal vitamins when pregnant? Folate has long been known to be important for brain development.

It's understandable given the source. But just ignore RFK and Trump and look at the existing information and studies.

[Anonymous]

I’m going to wait until it’s approved in Canada or Europe. I’d be happy for my child to take it is it’s safe and IF my child is shown to have the sub-type of autism that is improved by the medication.