Residential placement for young adult with autism

[Anonymous]

Does anybody have sources for residential placement for a 20 year old, non-verbal man with autism with a history of violence? Family is in crisis and needs a placement other than a psych hospital. They are in NJ but willing to look anywhere. Where to even start looking?

[Anonymous]

Long or short term?

[Anonymous]

Ideally, long term but short term would be a start.

[Anonymous]

He is still entitled to FAPE (free and appropriate public education) in his public school. If he is enrolled and getting appropriate services, there will be a transition team to help the family after he turns 21.
I would start there.

[Anonymous]

Call the arc of nj; they might have advice. https://www.arcnj.org/

Can the family pay for the care? If not, Medicaid and/or adult protective services may need to be be involved.

[Anonymous]

Anonymous wrote:He is still entitled to FAPE (free and appropriate public education) in his public school. If he is enrolled and getting appropriate services, there will be a transition team to help the family after he turns 21.
I would start there.

He is enrolled and getting services but he is routinely attacking his single mom while at home. His school placement doesn’t address that. They won’t recommend placement options, presumably for liability reasons.

Family can private pay - they just don’t know how to find places that will take this kind of profile.

[Anonymous]

I’d start here, they’ve always had a good reputation though I don’t have any recent experience with them. I remember them being more moderate level care, but they have expanded since I was familiar with them so perhaps that has changed. I know there are several other similar places in that general geographical area for more intensive services. They should be able to help you locate them if they don’t think they’ll be a good placement. And yes you should look into FAPE since he’s not 21 yet, may be easier to get into the location you need as long-term residential placement is difficult to come by due to there not being enough space available.

https://www.mayinstitute.org/adult-services/residential.html

[Anonymous]

The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

[Anonymous]

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

[Anonymous]

Anonymous wrote:

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

What “permanent psych facility” do you think will take him long term? The PP’s advice was a roadmap to finding the resources needed to get a residential placement. And agencies will send people to the home in these circumstances- I know of cases of it.

[Anonymous]

Anonymous wrote:

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

It isn't PP's fault that this is the case. It's the abysmal supports our society has put in place for these things.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

What “permanent psych facility” do you think will take him long term? The PP’s advice was a roadmap to finding the resources needed to get a residential placement. And agencies will send people to the home in these circumstances- I know of cases of it.

I listed a great place above, there are others. They aren’t often discussed here but they are around.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

What “permanent psych facility” do you think will take him long term? The PP’s advice was a roadmap to finding the resources needed to get a residential placement. And agencies will send people to the home in these circumstances- I know of cases of it.

Sure they will send people to the home-but it’s during the day. What happens when her son gets agitated in the middle of the night and attacks her? And she’s a single mom in the home alone and there is nobody to come help? This is why a placement makes more sense-There are multiple back up plans and ways to let other people know you are in distress. He’s technically an adult, so if he’s in a placement and there is no place for him to go home to-they will have to find a permanent place for him. Similar to what happens to the elderly when there is nowhere for them to go home to.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The behavior piece is most likely going to limit his options in a private placement.Does he have a psychiatrist overseeing his case with experience with such a complex case of autism and emotional disturbance? He needs a prescribing physician or at least one to consult to see if medication may need to be changed to stabilize him.
Looking at state benefits, Mom needs to get a disability lawyer/ advocate to present his case as an emergency for a full 24/7 Medicaid Waivet slot. This funding ought to help Mom
find a placement in a residential group home placement in his state if it exists? If not then
to use it for in/home staffing with the family
Providing some additional incentives. No place needs to keep a person iewed as a danger to others.

I really hate responses like this. I’m referring to the last part where you say “no place has to keep a person viewed as a danger to others”. Yet, the mom has to continue being beat up and kept in harms way because she is the mom. This is a 20 year old adult man who could seriously hurt her.

OP-I know you said other than a psych placement but realistically that is your only option because of the violence. They have protocols in place to keep him and others safe. But I absolutely don’t believe he should stay with the mother if he is violent. And no agency is going to send someone as an aid in this situation. And also if they did it more than likely wouldn’t be 24/7. People love to judge when someone has to put their child in a permanent psych setting but the truth of it is-it’s not fair to just keep withstanding someone hurting you because it’s your child. just my two cents. Everyone in this situation needs to be in the safest place.

What “permanent psych facility” do you think will take him long term? The PP’s advice was a roadmap to finding the resources needed to get a residential placement. And agencies will send people to the home in these circumstances- I know of cases of it.

Sure they will send people to the home-but it’s during the day. What happens when her son gets agitated in the middle of the night and attacks her? And she’s a single mom in the home alone and there is nobody to come help? This is why a placement makes more sense-There are multiple back up plans and ways to let other people know you are in distress. He’s technically an adult, so if he’s in a placement and there is no place for him to go home to-they will have to find a permanent place for him. Similar to what happens to the elderly when there is nowhere for them to go home to.

I don’t think anyone is disputing that the mom needs help. a PP posted ideas about how to get it via getting legal help to get access to government resources. “they will have to find a place for him” is not useful advice, at all.

[Anonymous]

OP here - he has placement at a private day school and is relatively well regulated while there. The problem is evenings and weekends.