Premature Ovarian Failure/High FSH

Anonymous
I was recently diagnosed with premature ovarian failure (POF) by a doctor at SGF, which of course was devastating news. However, the doctor declined to repeat the blood tests, which if I'm reading the literature correctly, should be done at least twice for a confirmed diagnosis. My FSH levels were sky-high (85), but I think a second opinion is in order. I also am not sure all the appropriate tests were even done - I kind of felt like I was told "well, this sucks, but I'm sorry." I'm only 32, so this completely took me by surprise.
I'd love to know your thoughts and hear from anyone else who has gone through this.
Also, has anyone here had any luck with accupuncture? I'm definitely willing to try. I live in DC, but will travel for a good doc/accupuncturist!
Anonymous
I had a reading of 21 on may 3 2010, day 3 of my cycle. I got pregnant 13 days later, but mc at 7weeks. Dr. DiMattina at dominion repeated cd3 bloods including amh and did an anthral follicle count (I had 18 antral follicles) and he said I was ok and he didnt doubt I would be pregnant again on my own. My fsh was 7 something that cycle. I am now 7 weeks pg again and hoping for the best ( had another mc last year in October so if I mc this one it wil be the 3rd in a row and in a year).
Good luck to you, get a second opinion. I am 29 btw.
Anonymous
THey usually use your highest FSH - but still, I'd have them re-run it. You never know, it could have been the lab or a mistake.
Anonymous
Doesn't it depend on your cycle? I'd have another baseline done on day 3. I loved Dr. Dimattina at Dominion.
Anonymous
I'm not having any kind of a cycle - that's part of the problem! I have been off the Pill since February, and have not yet had a period (or a pregnancy) in those almost 8 months.
Anonymous
Not to make you nervous cause this is a pretty rare thing. But premature ovarian failure can be associated with being a Fragile-X carrier (inherited form of mental retardation). I would recommend that you get carrier testing for it. It's not important for your own health, but because of the potential risks to your offspring. Again, it's not like most cases of premature ovarian failure are caused by this, but definitely worth getting that checked out.
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