Hypertonia experiences
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Anonymous
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Anyone have a child with hypertonia who can share their experience, what has helped, and if you have an underlying dx?
DC is 9 months - due to constant hyperextending/rigidity, we got a referral to a neurologist, who ordered a brain MRI. There may be some asymmetry as well. DC is in PT for torticollis and currently meeting gross and fine motor milestones. I have another kid with hypotonia and some other challenges, so I’m unfortunately not new to this world. But aside from CP, I don’t have a sense of what could be causing the muscle issues. |
Anonymous
| I have ehlers-danlos and passed it on to my DS. Could that be what you are talking about? |
Anonymous
No, not related. Ehlers-Danlos is associated with low muscle tone, hypertonia is the exact opposite. |
Anonymous
| I wish I could help. We have hypotonia, and it could be 600+ different things. It can also be benign. |