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Nevus Sebaceous
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Anonymous
| Our newborn son was diagnosed with nevus sebaceous (not linear, just the bald spot that may develop tumors later in life). Has anyone else experienced this? Can anyone recommend an excellent pediatric dermatologist? We are really worried about our son having general anesthesia at so young. Also, it's difficult to find information on nevus sebaceous that isn't the syndrome. |
Anonymous
| Hi OP. Our daughter was born with a nevi as well (no symdrome - just a birthmark). We had it removed just before her first birthday. Trust me, it was harder on DH and me than it was on her. Dr. Stephen Baker (http://www.stephenbakermd.com/) was the plastic surgeon who did the procedure & he was wonderful. We were so worried about the general anesthesia, but she did great (and again, the doc was wonderful, patient, and answered all our questions). The toughest part was her "coming out" of the anesthesia - she was inconsolable for 15 minutes, but then settled down, was groggy and then napped, and within a few hours, was back to herself. Bring some toys, stuffed animals, etc. to comfort him. Write back with any questions or concerns. You'll all be fine. Good luck! |
Anonymous
| OP: a few more things: I'm pretty sure all the docs we spoke to said that the risks of tumors/skin cancer later in life are drastically less than once thought. After the nevi has been removed, be extra vigilant with sunblock (we use one of those Copperstone sticks in SPF 55). Dr. Baker may also suggest a silicon-based scar reducer, though our little girl's scar looks so much better than it did even a few months ago. |
Anonymous
|
We saw pediatric dermatologist, Dr. Robert Silverman at Georgetown who advised us to not remove it until our son (now 15 months) could have the procedure without anesthesia - age 8 or so. He felt that the risk of anesthesia far out weighed the minimal risk of the nevus sebaceous causing any problems.
Our pediatrician recommended Dr. Silverman. His contact info is: Robert Silverman, M.D. 202-444-2961 |
Anonymous
PP here: FYI Dr. Silverman is a pediatric dermatologist. The previous doctor mentioned is a plastic surgeon. |
Anonymous
| OP: After I saw your post I realized (at 35) that I have this! I went to a dermatologist and they recommended getting it removed because of the small risk of cancer (as a PP said, smaller than once thought). Apparently that is the standard of care. I must say I would have been happier if I had gotten this done before I had kids and a job of my own to deal with. Anyway, I wanted to say thank you for making me aware of this issue. |