Anonymous wrote:OP, first I want to say that I get where you are coming from. My kids have SPD, are not on the autism spectrum, and it IS very hard. Many people don't understand SPD, misinterpret their behavior or my behavior, and are generally unsympathetic. You're right there is a stigma.
I also think that some of the PPs are being mean in talking about you as though you are not here, talking to one another rather than directly to you. I find that disrespectful, especially when I think it is quite obvious that your questions are in earnest and well intentioned.
However, you seem to be ignoring the content of almost all of the answers, many of which were not snarky or mean spirited. Your choice to focus only on the negatives seems to be feuling others. Many have tried to answer you in earnest: they seem to be suggesting that you be generous in your assessment and just assume that, given that you are in an OT's office, the child DOES indeed have an issue that might explain the behavior. Isn't this the real motivation of your question, as you have explained it?? I thought your post was not about AS per se, but that you wanted to know the reasons behind the child's behavior. Well, most people really were trying to answer you.
Second, I have to say that I really don't see the "secrecy" you are talking about. Defensiveness, yes, for sure. And we could debate about whether that is legitimate or not. I am in your shoes more or less about the diagnoses and yet I really don't see any veiling or hiding of information. In fact, several people answered your question about AS quite directly, despite the fact that, as you suggested, the real motivation of your post was to try to understand the child and gain compassion, not so much learn about AS. Perhaps more people did not address this question because the consensus seems to be that the child does not present as typical AS.
I wanted to know if this girl's behavior was because of a specific disorder or if it was, simply, misbehavior. [b]Not all strange or socially unacceptable behavior at a clinic can be attributed to a disorder. Sometimes it truly can be simply willful disobedience and it may be hard to distinguish the two. And I am at a point where this has happened more than twice and now I am irritated with her behavior enough to address her more bluntly but I would temper my words with her if I knew her behavior was beyond her control. I wanted to understand her issues as well as know whether this is typical of the Aspergers dx. I understand impulsivity and attention seeking behavior, my child has it and so do many of DC's friends as well as many, many of my friends children, but I've never seen this behavior in a nine year old, I was also a complete stranger to her, and probably most importantly, she also didn't seem moved at all by my being upset over her taking my phone...because she did it again. So I assumed her particular behavior had more to do with lack of social skills, a common, if not universal trait of the Aspergers diagnosis. When I began to delve into whether this is typical of Aspergers, at least FOUR posters said I was being 'nosey' and scolded me not to 'pry.' If these posters see it as 'prying' then I see these posters as being 'secretive' in openly talking about the common social deficits of Aspergers and all the POSSIBLE ways it can manifest itself in behavior. [/b]
And last, please please know that I mean this respectfully, as someone who can relate with you in so many ways: You are kind of perpetuating the negative stigmas yourself in the way that you write, and not just the stigma about AS (as many people have been reacting to), but also about SPD or other disorders. We parents of kids with SPD should be the very first to assume that there is something amiss in a child's behavior, that something is making life more challenging for a child. Just because the girl is not behaving as you'd expect, or as your child does, does not mean that she does not have the exact same diagnoses. I am no one to diagnose anyone, but her behavior sounds impulsive and sensory seeking. You seem to be "judging" her as though she were simply misbehaving even though this girl is in a therapist's office!! She and her family are probably going through the exact same hardship, heartache, and misunderstanding that you and your child are. Maybe she is more intrusive and impulsive, but these qualities add to her challenges and make her more deserving of our sympathy.