Anonymous wrote:Well, hello there.

My updates: I met with Abbasi and she was pretty brusque, seemed okay, but obviously her big thing is immunology and I haven't decided what I think about that. (I bought a book but haven't read it yet.) A couple people at my support group are adamant that I DO NOT go to CFA. They hated it. I also met with Dr. Humm at GW and LOVED HER. I've never felt on the same wavelength as an RE before, it was kind of crazy to have someone sit with me, be empathetic, and explain everything in as much detail as I wanted. She thought I was on the right track with what I'm doing now at SG (ERA, endo scratch for FETs) and suggested adding a couple things for my next FET (prednisone and baby aspirin) that my SG RE is willing to go with those. The emotional part of me wants to get the hell out of SG and go work with her, but considering she wouldn't really be offering anything different in treatment/testing, what's the point? I guess if SG pisses me off enough...

Speaking of, I had my first ERA biopsy on 6/8. Found out nine days later the sample was unusable for unknown reasons (might have been contaminated or something happened in shipping, who knows). So that's six weeks down the drain and I'm starting the whole thing over. I'm on BCP right now, then back to the estrogen and PIO shots, and another biopsy on 7/25. My life is just super fun. I guess I can't blame SG for the fuck up, but they sure don't seem to care one bit. Par for the course.

I did another saline sonogram last week, uterus looks fine (no polyps or anything). Oh, and it cost me about $50 to get my records from SG and they were kind of a pain in the ass about, but what else would you expect?

Anonymous wrote:

Anonymous wrote:Doh hit send too soon!

And I went back on everything after and don't have GI issues anymore! When I got back for another FET, I will prep doing paleo autoimmune and go gluten and diary free again. I think it helped. The first two weeks were hard--I ate a lot of sweet green for lunch and then meat and veggie for dinner. Breakfast was tough. Good luck OP! Keep us all updated via this thread!!

Thanks. I love Sweetgreen (discovered it during my first pregnancy and I ate it every day during the last trimester) so maybe that won't be so bad! I don't think I can go totally gluten or dairy free unless I'm absolutely ordered to do so, but I can definitely cut back. At this point my dairy consumption is limited to maybe 1 oz of cheese on most days and a teaspoon of heavy cream if I drink tea. And I don't eat bread or pasta or cereal on a regular basis anyway.

I'm actually not OP though, just a PP who kind of hijacked the thread. Sorry to the OP and good luck to everyone.

Anonymous wrote:Doh hit send too soon!

And I went back on everything after and don't have GI issues anymore! When I got back for another FET, I will prep doing paleo autoimmune and go gluten and diary free again. I think it helped. The first two weeks were hard--I ate a lot of sweet green for lunch and then meat and veggie for dinner. Breakfast was tough. Good luck OP! Keep us all updated via this thread!!

Anonymous wrote:

Anonymous wrote:PP with Hashis and had success with Abbasi--before I get into immune issues: I got to Dr. Ahmed as well. She didn't want to medicate me but Abbasi said she would touch me unless I was on synthroid. I was given the smallest dose for my cycle.

As for immune issues: your Mother had too many autoimmune diseases and clotting issues for you not to be tested! I realize you probably had clotting done, but go see Abbasi and get the Beers tests. Basically if you have one autoimmune disorder (like Hashis), you are likely to have other (like your mother). The idea is that certain immune responses attack the embie, either preventing implantation or causing a miscarriage. These immune responses are from natural killer cells, APA and ANA antibodies, cytokines, and HLA matches. Basically it can be as simple as you got a virus that triggered these immune responses. The treatment is often baby aspiring,
IVIg or interlipids, and/or a steriod along with an antibiotic.
There is more to this...I feel like I am forgetting something. I will post whhen I remember it!

Thanks. I've made an appointment with Dr. Abbasi and we'll see what she says. It's reassuring that Dr. Ahmed was willing to medicate you on Dr. Abbasi's say-so. Dr. Ahmed didn't want to medicate me either and hasn't responded to my message regarding the miscarriage and whether I should be medicated, but I have an appointment scheduled to see her in June so if Dr. Abbasi says to medicate, hopefully she will agree. Having just had a miscarriage we won't be trying again before June anyway since it will take at least that long for my period to return, if past experience is any guide.

Have you found that diet makes any difference for you? Dr. Ahmed did recommend that I keep carbs to 90 grams or so because I'm having a hard time losing weight. For me this essentially means cutting way down on sugar (always a good thing) and eating veggies, fruit, and maybe some polenta or spelt rather than rice or bread or pasta. I like eating this way and I feel much better -- healthier, stronger, sleeping better. It makes me wonder if there is some sort of fertility effect too. I also wonder if eating lots of sugar could be affecting my cycle, which is long and irregular. I guess the only way to find out is to keep eating this way and see if my cycles shorten.

Anonymous wrote:PP with Hashis and had success with Abbasi--before I get into immune issues: I got to Dr. Ahmed as well. She didn't want to medicate me but Abbasi said she would touch me unless I was on synthroid. I was given the smallest dose for my cycle.

As for immune issues: your Mother had too many autoimmune diseases and clotting issues for you not to be tested! I realize you probably had clotting done, but go see Abbasi and get the Beers tests. Basically if you have one autoimmune disorder (like Hashis), you are likely to have other (like your mother). The idea is that certain immune responses attack the embie, either preventing implantation or causing a miscarriage. These immune responses are from natural killer cells, APA and ANA antibodies, cytokines, and HLA matches. Basically it can be as simple as you got a virus that triggered these immune responses. The treatment is often baby aspiring, IVIg or interlipids, and/or a steriod along with an antibiotic.
There is more to this...I feel like I am forgetting something. I will post whhen I remember it!

Anonymous wrote:PP with Hashis and had success with Abbasi--before I get into immune issues: I got to Dr. Ahmed as well. She didn't want to medicate me but Abbasi said she would touch me unless I was on synthroid. I was given the smallest dose for my cycle.

As for immune issues: your Mother had too many autoimmune diseases and clotting issues for you not to be tested! I realize you probably had clotting done, but go see Abbasi and get the Beers tests. Basically if you have one autoimmune disorder (like Hashis), you are likely to have other (like your mother). The idea is that certain immune responses attack the embie, either preventing implantation or causing a miscarriage. These immune responses are from natural killer cells, APA and ANA antibodies, cytokines, and HLA matches. Basically it can be as simple as you got a virus that triggered these immune responses. The treatment is often baby aspiring, IVIg or interlipids, and/or a steriod along with an antibiotic.
There is more to this...I feel like I am forgetting something. I will post whhen I remember it!