Anonymous wrote:Anonymous wrote:NP here. All the above conflicting advice is very confusing. Last week I was on a packed metro near a mom with two early-teen kids. The mom told others that they were visiting DC from out of town. Her dd (about 12yo) was severely disabled physically, and appeared non-verbal. I found myself looking a little too long at her, largely because she had a strikingly beautiful face. Really gorgeous. The ds (guessing around 14yo) was handsome and physically normal.
The mom was doing a great job standing on the train maneuvering the wheelchair around commuters, and the DS sat on the front of the chair to stay out of people's way. He was amazing with his sister -- leaning in to whisper to her and lovingly pinching her nose, which made her face light up. I was incredibly touched by his behavior and spent most of the ride with tears in my eyes.
When I walked by her to get off the train I told her that she has a beautiful family. She said thank you. I felt good about the whole thing, but reading all the above, I'm now wondering if I wasn't appropriate and should have not said anything.
You made their day! Why? Because it was a genuine compliment. Good for you.
Anonymous wrote:Anonymous wrote:Anonymous wrote:If you are talking about me, please come over to us. I would love to have some company at the pool. And if you are not talking about us anyway, I bet this other mom would too. And her son is probably of normal or even high intelligence.
So what's your point? She shouldn't feel uncomfortable because the kid is probably just physically disabled? If the kid was intellectually disabled then then she shouldn't bother or steer clear? You just said the most thoughtless comments I have read on this thread.
--mom of an intellectually disabled kid
To the OP...I like it when people approach me and my kid. I'm aware that it's awkward for people to break the ice because they don't want to offend. I cut people who mean well a lot of slack. That said, good ice breakers I've heard are simple hi's, compliments on clothes, observations on what we are doing, comments on the weather or pool temp, or questions about toys or stuff we have with us. Referring to my kid as an angel makes me feel weird. Ignoring us is awful but more bearable than directed rudeness.
Good luck! The more you get to know families with SN the less weird it seems. It's actual a pretty normal life for myself and most other SN families I know.
It was not meant the way you are taking it. My child is motorically disabled and nonverbal. In such situations, outsiders direct conversations and questions to me almost exclusively, treating my child like some sort of potted plant. They don't even bother to say hello before asking "What's wrong with her? I did not intend my statement to slam the intellectually disabled. I wanted people to think more about her personhood.
However, please accept my apologies for my poorly chosen choice of phrase. I can see how it could give offense and I'll think more about what I say in the future. Please don't let this get you down, fellow SN Mom. Have a great day.
Anonymous wrote:I think you should go up to the mom and say hi and introduce yourself. Ask her questions you would any friend. Oh do you live close by? What is your home school? Just because we have SN children does not mean we do not have time to talk or don't want to talk. We may be a little busy, but it sure makes me feel better when I have another person acknowledge me - the isolation and loneliness are immense. Guess what- I will eventually tell you about my daughter and her disability too, you probably will not have to ask. But I would love the chance to talk about being a mother with another mother. Please do not feel sorry for me, that kills me, my life may seem different but we share a lot of similarities as mothers. Also if your children say things or ask silly questions, I am not offended, they are children.
Anonymous wrote:Anonymous wrote:
So educate me. Seriously. Why is it painful to overhear an educated explanation to a child about the ways in which society attempts to assist people with disabilities? Why should a discussion about the existence of Braille be hushed until no one is around? Being blind/deaf/on a respirator/<fill in the blank> isn't shameful, and I don't think it should be treated as such.
Anonymous wrote:NP here. All the above conflicting advice is very confusing. Last week I was on a packed metro near a mom with two early-teen kids. The mom told others that they were visiting DC from out of town. Her dd (about 12yo) was severely disabled physically, and appeared non-verbal. I found myself looking a little too long at her, largely because she had a strikingly beautiful face. Really gorgeous. The ds (guessing around 14yo) was handsome and physically normal.
The mom was doing a great job standing on the train maneuvering the wheelchair around commuters, and the DS sat on the front of the chair to stay out of people's way. He was amazing with his sister -- leaning in to whisper to her and lovingly pinching her nose, which made her face light up. I was incredibly touched by his behavior and spent most of the ride with tears in my eyes.
When I walked by her to get off the train I told her that she has a beautiful family. She said thank you. I felt good about the whole thing, but reading all the above, I'm now wondering if I wasn't appropriate and should have not said anything.
Anonymous wrote:I say talk to her!!! I am sure she feels lonely and I don't think it's inappropriate to ask questions...maybe not off the bat, but after a few contacts. I can't believe people are advising you to stay away! I don't have any problem with your post...I don't feel it is rude. You are trying to glean information. At least she is trying, people. geesh