Anonymous wrote:My mom has had serious mental illnesses (schizo-affective disorder and bipolar disorder) since I was around 4 years old. My dad abandoned us when I was 6 so, needless to say, life was tough for my mom, me and my two older sisters. Somehow, I managed to make it through college and law school, get married and have two sweet babies (now pre-teens). When dating my then-boyfriend, now husband, I explained that I would not be putting my mom in a nursing home in her old age. When we bought our first house together (about 10 years ago), we moved my mom in with us. It has not been easy. Her meds keep her "just" sane enough most days but not all days. My amazing husband has more patience for her than I do, since, as he notes "she's a very sick person." My children also see that she is very sick and have learned to treat her with kindness.
Aside from the challenges of dealing with a mentally unstable person, we have supported her though 2 hip surgeries, skin cancer, surgery to correct pelvic prolapse, lots of physical therapy and, of course, many visits to see her psychiatrist.
Did I mention it has not been easy? I have gone through periods where I literally hated her, hated my life and wondered what the hell I was doing. But this I know, putting her in a nursing home would subject her to an extremely sad ending to an extremely sad life. My mom, after her hip surgeries, has stayed at some of the nicest nursing homes in the DC Metro area and I'm sorry to say that even the nicest nursing homes in the DC metro area are not very nice. It's where people go to die. No matter how nice some of the staff are (and we met some incredible staff), they are still overworked and underpaid for what they do. They still managed to mess up her meds sometimes. She still got UTI's. It's simply not a place you put someone if you care anything about them.
I have very vivid memories of my mom struggling to keep two jobs so my sisters and I would not end up in foster care. I recall her being hospitalized for 2 weeks, being discharged and going on job interviews two days later (this usually happened every 6-9 months). She never, ever gave up. And even though my childhood was plenty sad, and even tragic - I know that without her motivation to protect us, it could have been so much worse.
I sometimes wonder what motivates me to keep her in my home, despite the incredible challenges she presents. Guilt? Do I have some kind of savior-syndrome? I don't know.
My life could be so much different if she didn't live with us, but I can't say it would be better. The thought of my sick mom, lying alone in a nursing home bed, would simply make me miserable.
Anonymous wrote:Anonymous wrote:Thank you for taking the time to post your comments.
The reason I started this thread is because of my MIL. My MIL is 92 years old, she was widowed 10 years ago and she still lives in her own house. MIL suffers from dementia. She receives a lot of support from my DH and his 2 siblings, and from various home health aides.
MIL receives round the clock care in her own home, 24/7, 365 days a year. Cleaner/housekeeper 4 times a week, 3 live-in aides/companions (24/7) who work in shifts, other aides, and MIL's children who keep her company in rotation.
MIL is a wealthy woman, she can afford to hire aides round the clock. The reason she is getting so much hands on support is because her 3 children (including my DH) have financial POA and they hired the aides on her behalf.
DH and I will never get this kind of help when we are elderly, because we don't have children to organize the help for us, should we become cognitively impaired. So our job is to do the organising ourselves while we are still physically healthy and sound of mind. Forward planning is key, but how ...?
I find it quite depressing thinking of all of this right now. I sometimes suffer from bouts of anxiety and then I start catastrophizing things in my mind. My DH - being 9 years older than me - laughs it off and says after he dies I should enjoy the pension pot and have fun!
OP, I don't recall...are you getting help for your anxiety. if not, please do. People have told you what those without kids do and frankly I have kids and plan to do the same. You can hire people to take on just about any role and set up a checks and balances. I have relatives who did this. Continued care is a great option. You are stuck in a loop of obsessing. You don't seem to get that even those with kids may not be better off, especially if they age poorly and have many needs over many years. People burn out. Don't waste the rest of your life miserable. Get help for the anxiety and then plan it out.
Anonymous wrote:Thank you for taking the time to post your comments.
The reason I started this thread is because of my MIL. My MIL is 92 years old, she was widowed 10 years ago and she still lives in her own house. MIL suffers from dementia. She receives a lot of support from my DH and his 2 siblings, and from various home health aides.
MIL receives round the clock care in her own home, 24/7, 365 days a year. Cleaner/housekeeper 4 times a week, 3 live-in aides/companions (24/7) who work in shifts, other aides, and MIL's children who keep her company in rotation.
MIL is a wealthy woman, she can afford to hire aides round the clock. The reason she is getting so much hands on support is because her 3 children (including my DH) have financial POA and they hired the aides on her behalf.
DH and I will never get this kind of help when we are elderly, because we don't have children to organize the help for us, should we become cognitively impaired. So our job is to do the organising ourselves while we are still physically healthy and sound of mind. Forward planning is key, but how ...?
I find it quite depressing thinking of all of this right now. I sometimes suffer from bouts of anxiety and then I start catastrophizing things in my mind. My DH - being 9 years older than me - laughs it off and says after he dies I should enjoy the pension pot and have fun!
Anonymous wrote:Anonymous wrote:I’m 47 and single, no kids and never married. Live in a different country than my family, who are not close. I plan to go to the Netherlands for assisted suicide when I’m 65-70. I’m not depressed or suicidal, I just feel like that’s a long enough life and I don’t want to be alone and unable to care for myself. I want to be able to control how this end, peacefully.
This makes so much more sense than all the posts about who to trust with your financial and other issues when you become cognitively impaired and have nobody else. I mean, if you reach that state, why would you even care? We allow people to live way too long. My father just died last month at the age of 89 and the last three years of his life have been absolutely horrendous--for him, my mother and me. And now, I have mountains of resentment toward my mother who expects me to go see her once a week--she lives 3 hours from me. I have a full-time job here and a very busy teenager at home. I just can't and she is impossible to be around. I do not ever want to be the person who my kids don't want to deal with. If I get to 65, I will consider the rest gravy and hope I don't live to a state of such physical and mental decline that any of this is a question. I will follow PP's plan and head to the Netherlands if it comes near.
Anonymous wrote:My mom has had serious mental illnesses (schizo-affective disorder and bipolar disorder) since I was around 4 years old. My dad abandoned us when I was 6 so, needless to say, life was tough for my mom, me and my two older sisters. Somehow, I managed to make it through college and law school, get married and have two sweet babies (now pre-teens). When dating my then-boyfriend, now husband, I explained that I would not be putting my mom in a nursing home in her old age. When we bought our first house together (about 10 years ago), we moved my mom in with us. It has not been easy. Her meds keep her "just" sane enough most days but not all days. My amazing husband has more patience for her than I do, since, as he notes "she's a very sick person." My children also see that she is very sick and have learned to treat her with kindness.
Aside from the challenges of dealing with a mentally unstable person, we have supported her though 2 hip surgeries, skin cancer, surgery to correct pelvic prolapse, lots of physical therapy and, of course, many visits to see her psychiatrist.
Did I mention it has not been easy? I have gone through periods where I literally hated her, hated my life and wondered what the hell I was doing. But this I know, putting her in a nursing home would subject her to an extremely sad ending to an extremely sad life. My mom, after her hip surgeries, has stayed at some of the nicest nursing homes in the DC Metro area and I'm sorry to say that even the nicest nursing homes in the DC metro area are not very nice. It's where people go to die. No matter how nice some of the staff are (and we met some incredible staff), they are still overworked and underpaid for what they do. They still managed to mess up her meds sometimes. She still got UTI's. It's simply not a place you put someone if you care anything about them.
I have very vivid memories of my mom struggling to keep two jobs so my sisters and I would not end up in foster care. I recall her being hospitalized for 2 weeks, being discharged and going on job interviews two days later (this usually happened every 6-9 months). She never, ever gave up. And even though my childhood was plenty sad, and even tragic - I know that without her motivation to protect us, it could have been so much worse.
I sometimes wonder what motivates me to keep her in my home, despite the incredible challenges she presents. Guilt? Do I have some kind of savior-syndrome? I don't know.
My life could be so much different if she didn't live with us, but I can't say it would be better. The thought of my sick mom, lying alone in a nursing home bed, would simply make me miserable.
Anonymous wrote:Anonymous wrote:I’m 47 and single, no kids and never married. Live in a different country than my family, who are not close. I plan to go to the Netherlands for assisted suicide when I’m 65-70. I’m not depressed or suicidal, I just feel like that’s a long enough life and I don’t want to be alone and unable to care for myself. I want to be able to control how this end, peacefully.
This makes so much more sense than all the posts about who to trust with your financial and other issues when you become cognitively impaired and have nobody else. I mean, if you reach that state, why would you even care? We allow people to live way too long. My father just died last month at the age of 89 and the last three years of his life have been absolutely horrendous--for him, my mother and me. And now, I have mountains of resentment toward my mother who expects me to go see her once a week--she lives 3 hours from me. I have a full-time job here and a very busy teenager at home. I just can't and she is impossible to be around. I do not ever want to be the person who my kids don't want to deal with. If I get to 65, I will consider the rest gravy and hope I don't live to a state of such physical and mental decline that any of this is a question. I will follow PP's plan and head to the Netherlands if it comes near.
Anonymous wrote:I’m 47 and single, no kids and never married. Live in a different country than my family, who are not close. I plan to go to the Netherlands for assisted suicide when I’m 65-70. I’m not depressed or suicidal, I just feel like that’s a long enough life and I don’t want to be alone and unable to care for myself. I want to be able to control how this end, peacefully.
Anonymous wrote:Anonymous wrote:Anonymous wrote:No one is actually talking about the hardest questions here.
Potential social isolation can be solved.
But if you are alone and become cognitively impaired, who will administer your finances? If you get physically sick, who will be your advocate in the medical system and potentially make decisions for you?
Finding someone who will do these things and act in what is truly your best interest, with thought and care and competence, is the hard part, imo.
Why is no one talking about this?
OP again.
You hit the nail on the head.
As I stated in my first post, my DH and I are childless. We will never have grandchildren.
DH is 9 years older than me.
Potential social isolation can be solved, as you say. Either we move into a 55+ community later in life (even if we had wanted to age in place) or we hire people to take care of us. But we don't have the financial resources to pay for aides and other helpers 24/7 for years and years.
What happens when one of us dies and the other becomes cognitively impaired? Even in an appropriate facility you would need a trusted person to make all kinds of decisions for you.
And who will be with you to keep you company and hold your hand in your final days? I don't want to die with just medical staff (strangers) around me. The thought alone is hideous.
Yes. I don't know the answer to it, and it is a very, very hard question.