Anonymous wrote:Hi OP.
I don't like the schedule you laid out. Fifty minutes for a breakfast she doesn't even want is absurd.
More importantly, WHY is breakfast BEFORE getting dressed? Get her up (later, because breakfast does not need to be that long), do bathroom time, then dress her, THEN she gets to go to breakfast ONLY once she is ready. If she gets dressed on time and eats breakfast.
WHy doesn't she want to eat? That's weird. Is your food gross?
Anonymous wrote:Anonymous wrote:I am a PP who agrees with the comment above about maybe you are allowing too much time. I looked back at your schedule and you are short of 2 hours for a morning routine. That is a loooong time. We are up and out within the hour. It's true re the urgency - ADHD loves a race.
I WISH this was true. I have tried challenges and races. She gets stressed out. Hey, I bet you can’t get dressed in 20 seconds. I’m gonna turn my back and count to 20 and see if you can do it! She will wail, mommy, no! You’re making it a contest, stop it! This alone can cause tears. When I’m being playful and silly.
She’s inattentive. She lives in her head and is constantly daydreaming. Anything can distract her on a moments notice - a thought or idea, a utensil, a toy, an article of clothing. Even in a simplified environment she finds something to engage with.
I understand we have to find something to motivate her but we can’t. She is like that dog that chases squirrels in Up. She can’t focus long enough to finish tasks to completion unless it’s of her own volition, and being “forced” to go to school is something she hates and doesn’t want to do.
I don’t know how you motivate a child like this.
And yes, we are working with her doctor. She’s been recommending medication for a while but her appetite and eating are already not great and neither is weight gain and she’s very small for her age
so we have been putting it off, as well as concerns about interactions with asthma meds she’s already on that cause other behavior issues.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:At this point I’m calling troll because you don’t actually seem to want advice. Multiple people have provided multiple ideas and you just come up with excuses why it will never work.
I’m not a troll, I’m a parent at my wits end. Thank you to the poster who shared the PDA info, she was not evaluated for that or autism but the description fits her to a t.
How and where did you get an ADHD diagnosis for a 6 yr old girl and that autism wasn't part of that evaluation?
Just the ADD panel was done.
Who did you see for the ADD panel? What type of professional?
Autism
Pathological Demand Avoidance
Tourette’s
Rejection Sensitivity Dysphoria
Oppositional Defiance Disorder
Sensory issues
This seems bigger / different than just ADHD. Meds may take the edge off and help the behavioral supports work or give her enough control to benefit from them. Until and ideally after meds start - Iron supplements. Melatonin for sleep. Frequent, strenuous exercise. Screw the lovingly packed lunches you are “staying up for”. Deal with nutrition once you get the other stuff under control. Give her protein bars cut into bite size pieces if needed. Supplement with vitamins. Get to the root cause and triggers. She probably feels as out of control as you do.
Anonymous wrote:Anonymous wrote:For my 6yo ADHD son, we just don't do independence during the school/work week. We tried it and it just caused us to be late and yelling/miserable constantly. Instead, if he won't get out of bed we carry him downstairs to the couch. We then get his clothes and help him dress. Next we stand by the bathroom door making sure he does everything he needs to do. We get him breakfast and sit next to him while he eats. When it's time to go, we get his shoes and help him put them on and then grab his jacket while walking out the door. It stinks but the alternative was exactly what you describe. We practice independence on the weekends and holidays. That's our bandwidth right now.
You should be practicing independence everyday. I understand difficulty in the morning but practice it at night if you must. They aren’t going to gain independence just by doing it on the weekend and holidays. They needed repetition. You are setting him up to be dependent on you for basic life skills well past the age he should need that.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:At this point I’m calling troll because you don’t actually seem to want advice. Multiple people have provided multiple ideas and you just come up with excuses why it will never work.
I’m not a troll, I’m a parent at my wits end. Thank you to the poster who shared the PDA info, she was not evaluated for that or autism but the description fits her to a t.
How and where did you get an ADHD diagnosis for a 6 yr old girl and that autism wasn't part of that evaluation?
Just the ADD panel was done.
Who did you see for the ADD panel? What type of professional?
Anonymous wrote:Anonymous wrote:Anonymous wrote:Remember, a child with ADHD is delayed about 3 years in maturity level. She will learn to do everything on her own - but it will be later.
100%. I "dressed" my ADHD daughter while we chatted and took her through the same routine every morning until 4th grade. She began to take over most of the steps and is now completely independent though still might need a gentle reminder to brush her teeth or remember her computer charger.
She is now, an 8th grader, a straight A student, super creative and an overall good kid with a healthy self esteem. And we have a close relationship.
Parents - your young ADHD kids are not trying to torture you or make you late on purpose. Have a little compassion and ignore the type A super moms who have it all wired. You have a different kid - be patient and loving and do what works until your kid is mature enough to take on these habits.
As a side note, my oldest son is also ADHD and we shamed him (unintentionally) and nagged him, and guess what - it didn't click for him until 8th grade either. And he still has self esteem issues around organization. (And was an angry teenager) I wish we had been more patient with him.
Thank you. My doctor said not to dress her and that we were enabling her. Honestly I just want to cry. My other kid is SN (entirely other issues) and I just am at the end of my rope with the two of them.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:At this point I’m calling troll because you don’t actually seem to want advice. Multiple people have provided multiple ideas and you just come up with excuses why it will never work.
I’m not a troll, I’m a parent at my wits end. Thank you to the poster who shared the PDA info, she was not evaluated for that or autism but the description fits her to a t.
Doesn’t matter what her diagnosis is, you need to change your parenting style and expectations immediately or she is only going to get worse as she gets older and you won’t be able to handle her at all and you’ll be asking about residential placement.
I mean the dx matters insofar as it can guide the parenting approach. Kids with PDA-ASD need a vastly different approach.