Anonymous wrote:I believe my suggestion for a neuropsych exam in the APD thread was deleted (though I haven’t re-read every page of it to see).

When making the suggestion it was because a neuropsych exam is the most comprehensive way of identifying a child’s diagnoses.

I did not question that the OP’s child had auditory challenges, nor did I suggest ASD, dyslexia, MERLD or any other diagnosis.

My intent was to be helpful and not condescending.

FWIW: All of my kids have had neuropsych exams, including my neurotypical child.

Pushing an evaluation is not the same thing as pushing a diagnosis.

But, yes, I know that OP did not ask about a neuropsych exam....

Anonymous wrote:

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Oh brother, give it up. Jeff was right to do what he did. If you disagree with someone, just present the facts. Don't assume the other person is a "MERLD Mom," or whatever. I personally have been accused of avoiding an autism diagnosis even though my kid does have autism. It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.

DP. I don't think I'd make half as many "have you assessed for autism" comments if I didn't IRL know someone actively avoiding the autism diagnosis for their (clearly autistic) child. It's hard to see.

Asking, "have you assessed for autism?" is totally different from, "you only disagree because your child has autism and you won't admit it," or "OP, you must believe me and get a neuropsych because the previous poster refuses to get one."

In my case when I pointed out that DC had been assessed for autism three timed times already, I was told "then you need to make it four times.:

Right - and I had an OT, child psychologist, pediatrician, and neurologist all tell me "no autism" ... then three years later, KKI said "autism." The difference was the first four actually didn't do autism assessments, and the differences weren't that apparent yet.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Oh brother, give it up. Jeff was right to do what he did. If you disagree with someone, just present the facts. Don't assume the other person is a "MERLD Mom," or whatever. I personally have been accused of avoiding an autism diagnosis even though my kid does have autism. It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.

DP. I don't think I'd make half as many "have you assessed for autism" comments if I didn't IRL know someone actively avoiding the autism diagnosis for their (clearly autistic) child. It's hard to see.

Asking, "have you assessed for autism?" is totally different from, "you only disagree because your child has autism and you won't admit it," or "OP, you must believe me and get a neuropsych because the previous poster refuses to get one."

In my case when I pointed out that DC had been assessed for autism three timed times already, I was told "then you need to make it four times.:

Anonymous wrote:

Anonymous wrote:It’s like mentioning all the symptoms for a disease but not being allowed to mention the likely disease. Address only the symptom: My kid has a sore throat, fever, stuffy nose, etc but you can’t say their kid has a cold or maybe the flu.

“Sore throat” is not a medical diagnosis in the exact same way APD is not. But hey, Jeff can do whatever he wants. His board.

I don't think being purposefully obtuse makes your case. No where has anyone said you can't say "autism." Or even "have you thought about autism." The problems arise when the questions is asked and answered, but you don't like the answer you got and then make the post about your agenda. I'm sorry, but you are not as smart as you think you are, nor are you somehow saving children with autism by arguing and insulting other parents on here who believe that a formal autism diagnosis is not relevant to their child.

Anonymous wrote:It’s like mentioning all the symptoms for a disease but not being allowed to mention the likely disease. Address only the symptom: My kid has a sore throat, fever, stuffy nose, etc but you can’t say their kid has a cold or maybe the flu.

“Sore throat” is not a medical diagnosis in the exact same way APD is not. But hey, Jeff can do whatever he wants. His board.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Oh brother, give it up. Jeff was right to do what he did. If you disagree with someone, just present the facts. Don't assume the other person is a "MERLD Mom," or whatever. I personally have been accused of avoiding an autism diagnosis even though my kid does have autism. It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.

DP. I don't think I'd make half as many "have you assessed for autism" comments if I didn't IRL know someone actively avoiding the autism diagnosis for their (clearly autistic) child. It's hard to see.

Asking, "have you assessed for autism?" is totally different from, "you only disagree because your child has autism and you won't admit it," or "OP, you must believe me and get a neuropsych because the previous poster refuses to get one."

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Oh brother, give it up. Jeff was right to do what he did. If you disagree with someone, just present the facts. Don't assume the other person is a "MERLD Mom," or whatever. I personally have been accused of avoiding an autism diagnosis even though my kid does have autism. It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.

DP. I don't think I'd make half as many "have you assessed for autism" comments if I didn't IRL know someone actively avoiding the autism diagnosis for their (clearly autistic) child. It's hard to see.

Anonymous wrote:It’s like mentioning all the symptoms for a disease but not being allowed to mention the likely disease. Address only the symptom: My kid has a sore throat, fever, stuffy nose, etc but you can’t say their kid has a cold or maybe the flu.

“Sore throat” is not a medical diagnosis in the exact same way APD is not. But hey, Jeff can do whatever he wants. His board.

Anonymous wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.

Oh brother, give it up. Jeff was right to do what he did. If you disagree with someone, just present the facts. Don't assume the other person is a "MERLD Mom," or whatever. I personally have been accused of avoiding an autism diagnosis even though my kid does have autism. It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Fact four: many don’t GAF if Auditory Processing Disorder is a diagnosis in the DSM-V.

Perhaps. But insurance companies and school systems care, as they won’t recognize and provide services for conditions that aren’t in the DSM-V.

I don’t personally think that noting this is hijacking a thread or unhelpful.

Yes sure.. if you want your child restricted to what “insurance will pay for”.

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:

jsteele wrote:

Anonymous wrote:If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?

You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.

Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption. It’s a fact.

I’m a long-time consumer of this board as a source of information. If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.

Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.

Case in point. Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder. She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post.

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom. Apd is only diagnosed by audiologists. It’s not in the dsm. It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality. These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs. You don’t know how to be objective. I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions. We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences. Some of us are trying to breakthrough the bs that some people try to pull on here.