Anonymous wrote:Anonymous wrote:OP here. I have a child with a chronic condition on her tenth hospitalization. She's now 12 and has never been alone even for the time it would take to get coffee. I just get amazed each time I'm here how many kids are in their rooms totally alone. Little kids and babies. It makes me sad.
I have seen that too. Went to visit a friend's daughter who was hospitalized. Friend stayed with her DD for months in the hospital. But in other rooms babies and little kids were just alone and it was just too sad. No parents, no relatives, nothing. Just a small body in bed all hooked up.
Anonymous wrote:Anonymous wrote:Anonymous wrote:I don't leave any relative or friend in the hospital for extended periods. I've saved a couple friends from serious errors and my own life was saved because my husband was at my side (pulmonary embolism).
+ 1. I am sympathetic to those who have no option but to leave their loved ones in the hospitals for whatever reasons. The truth is that even in the best of hospitals quality of care and attention significantly diminishes when there are no relatives to keep an eye on things.
That may be true of hospitals in general. It is not true of the NICU. There are very low nurse ratios and excellent, caring care. The babies sleep a lot, and when they are awake, the nurses hold them if that's what they want.
Anonymous wrote:Anonymous wrote:I don't leave any relative or friend in the hospital for extended periods. I've saved a couple friends from serious errors and my own life was saved because my husband was at my side (pulmonary embolism).
+ 1. I am sympathetic to those who have no option but to leave their loved ones in the hospitals for whatever reasons. The truth is that even in the best of hospitals quality of care and attention significantly diminishes when there are no relatives to keep an eye on things.
Anonymous wrote:Honestly, never. I'm 34. Over the past 8 months, I've spent weeks at a time in the hospital. (Both Suburban and Shady Grove) At no point have I ever been alone. Not even for one second. My dad's a physician and he's managed to spend a few hours a day at the hospital with me, in between his own crazy busy schedule. My mom has been there every single day. As have her two best friends. My own best friends have spent the night every single night I've been there, refusing to leave me alone in the evenings. They bring their work clothes for the next day with them and leave from the hospital. Their moms have brought breakfast every single day for whoever is there with me in the morning.
I know I'm insanely lucky to be surrounded by such a loving, caring group of people, and I don't take it for granted for one second, but being in the hospital is terrifying, even as an adult, and I can't for one second imagine being a child and being left alone there. The only reason I've been able to stay sane throughout my hospitalizations is because I've had my friends and family there to get me through it. My doctors have always said that the positivity I'm surrounded by has made a world of difference in the progress I've made and they're right. I haven't had one second to mope or be upset or afraid because I'm constantly surrounded by people who remind me of all the great things I have in my life and that makes fighting my illness so much easier.
Anonymous wrote:I don't leave any relative or friend in the hospital for extended periods. I've saved a couple friends from serious errors and my own life was saved because my husband was at my side (pulmonary embolism).
Anonymous wrote:Anonymous wrote:OP here. I have a child with a chronic condition on her tenth hospitalization. She's now 12 and has never been alone even for the time it would take to get coffee. I just get amazed each time I'm here how many kids are in their rooms totally alone. Little kids and babies. It makes me sad.
I have seen that too. Went to visit a friend's daughter who was hospitalized. Friend stayed with her DD for months in the hospital. But in other rooms babies and little kids were just alone and it was just too sad. No parents, no relatives, nothing. Just a small body in bed all hooked up.
Anonymous wrote:OP here. I have a child with a chronic condition on her tenth hospitalization. She's now 12 and has never been alone even for the time it would take to get coffee. I just get amazed each time I'm here how many kids are in their rooms totally alone. Little kids and babies. It makes me sad.
Anonymous wrote:Anonymous wrote:I had a NICU baby who stayed in for 88 days. I had 2 older kids at home. I went back to work when she stabilized around 5 weeks. I had to save my maternity leave for when she actually got home. I got A LOT of judgement for it from nurses and other moms. Thank GOD I joined a NICU support group and met lots of women who had to do the exact same thing. I worked from 8- 5, went home and got my other 2 kids settled and went to the NICU around 9pm and spent the night. DH went to NICU straight from work from 5pm and came home around 830 so we could switch. I am not proud of it but I knew she wouldn't be permitted to go to daycare till 12 months so i was already going to be hiring a nanny which was way more money then I had expected so every day of leave and every hour of pay counted for me. I also am the one to carry my families health insurance. Please don't judge unless you've been in a similar situation. No on WANTS to leave their child at a hospital.
Be proud of it!! That was an absolutely grueling schedule that you put together for your baby's benefit. You should be proud of yourself.
Anonymous wrote:I had a NICU baby who stayed in for 88 days. I had 2 older kids at home. I went back to work when she stabilized around 5 weeks. I had to save my maternity leave for when she actually got home. I got A LOT of judgement for it from nurses and other moms. Thank GOD I joined a NICU support group and met lots of women who had to do the exact same thing. I worked from 8- 5, went home and got my other 2 kids settled and went to the NICU around 9pm and spent the night. DH went to NICU straight from work from 5pm and came home around 830 so we could switch. I am not proud of it but I knew she wouldn't be permitted to go to daycare till 12 months so i was already going to be hiring a nanny which was way more money then I had expected so every day of leave and every hour of pay counted for me. I also am the one to carry my families health insurance. Please don't judge unless you've been in a similar situation. No on WANTS to leave their child at a hospital.
no one asked what you'd do as an adult. The question is about children.Anonymous wrote:Whenever they asked me not to be there. I get hospitalized about once a year for a chronic condition. Anywhere from 2-10 days. When I was about 14 I started telling my parents that no one needed to sleep in my room. Parent spent the night in the family area. Around 16-17 I was more insistent that I wanted alone time. Parents respected that.
As an adult, I don't mind visitors for half the day. After that, I prefer to be left alone, with the exception of DH. Dh is just someone I dont have to worry about, we can silently watch TV together, or read our Kindles separately. But I don't want him spending the night. I need some alone time (just like I do at home). Plus, I don't like to be treated differently because I'm in the hospital. With my parents it's always the memories of when I was a kid.and my condition.was more severe.so they are.stressed/upset. For my friends they want to rally around me and be supportive. And I appreciate all of it, it's just overwhelming.