Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.

The issue is that there is apparently NO acceptable answer other than OP be with all the children all of the time. My guess is that instead of telling her parents about the allergy, precautions, and how to use an epipen, she started going through a detailed litany of how to completely peanut-proof the atmosphere, wipe down every surface, pretaste all of DD food, etc., and turned it into a trip they couldn't manage.

I am not assuming that her children don't need care. It is odd, however, that she has two children that need a type of care no one else, even their father, can manage. It is also telling that the suggestion that her parents come to her was met with "they stress me out." OP does not look for ways to make things work. She looks for reasons they can't work.

So DD is not going to Disney six months from now, because OP can't be in two places at once.

Don't forget that she also can't ask her nanny to work extra hours to help out because being around her makes op "tense". Agree- the issue isn't Disney, but where does this stop.

Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.

Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.

Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.

Anonymous wrote:

Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.

The issue is that there is apparently NO acceptable answer other than OP be with all the children all of the time. My guess is that instead of telling her parents about the allergy, precautions, and how to use an epipen, she started going through a detailed litany of how to completely peanut-proof the atmosphere, wipe down every surface, pretaste all of DD food, etc., and turned it into a trip they couldn't manage.

I am not assuming that her children don't need care. It is odd, however, that she has two children that need a type of care no one else, even their father, can manage. It is also telling that the suggestion that her parents come to her was met with "they stress me out." OP does not look for ways to make things work. She looks for reasons they can't work.

So DD is not going to Disney six months from now, because OP can't be in two places at once.

Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.

Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.

Anonymous wrote:8 yo dd's drama class 'won an audition' to perform at Disney in Feb 2017. It's a marketing ploy to get families to travel to Disney. She really wants to go. I don't feel I can manage the trip because 5 yo ds has a very strict schedule of naps, sleep, ketogenic diet, tube feeds to keep his epilepsy from relapsing (it was horrible), also 12 yo dd is in a different school with a different break. The drama class is flying together for 4 days. My parents offered to travel to Orlando, pick up dd and stay in hotel with her. Now they are backing out because she has a peanut allergy and they don't feel comfortable taking care of her meals. Honestly I don't want to send dh because I have trouble managing my SN ds alone for 4 days - his behavior is very difficult. He has recovered his speech pretty well and he can walk and run, but falls down a lot. I work FT and have a good nanny, but she leaves at 6 pm and whenever I'm home while she's there, it's tense, so I can't ask her to stay overnight. WWYD?

Anonymous wrote:

Anonymous wrote:I understand what others are saying about making sure siblings of children with SN have their own attention BUT I have an 8 yo and there is no way I would pay for a Disney trip now unless it was a family vacation. The sports/dance/activities are all out of hand and they are too young.

OP is a rich Doctor. $$$ not an issue