Anonymous
Post 12/30/2014 11:15     Subject: Re:Sad about how the holiday visit to my family went

Anonymous wrote:

OP, you owe your mother a huge apology. You should not have asked her to host or agreed to let her host. On top of her full time job of dealing with her husband, she had to clean her house, make sure dinnerware was in order, grocery shop, plan a menu, "make a few things," and do drinks. That's a LOT to do when also taking care of her husband. I know you feel like it isn't much, but she obviously didn't think she could do it. When she clearly didn't want to do it, you piled on to her burden. It sounds as though you assured her you would take care of everything else, yet you are surprised she wanted a guest to take out the trash? YES, take out the trash for the woman!

And sure, your mom could likely use an adjustment to her medications to help her mood; but even if they "make her feel happy," they won't make her feel obligated to take on holiday hosting! I think the question you need to ask is what can you do to help your mom.

Next get-together, figure out a better way to do this so that your mother doesn't have to lift a finger. Talk to the hospice workers to find out who can be with your father while you all go out to dinner (even if it's a major holiday). Also, while you're there, do their laundry (wash, fold and put away), take out the trash, etc. Don't do anything that would create more work for her (as in, don't leave clean laundry piled in the basket, don't do a load of dishes and leave them to dry on the counter for her to put away). Would she go for a massage? If so, get her a gift certificate. You implied she seems to like seeing her grandchildren, you could offer to be with your father while she takes them to the park or for ice cream, or just while they hang out together in the family room (or whatever she likes to do).



+1

I think this says things perfectly.

OP, I also recommend a therapist to work through your feelings of grief about your family. It seems as if you are in denial of the situation and you really need to deal with the changes in your family and figure out how to make the holidays a bit more about other people -- your mom, your kids (who should get the chance to develop a relationship with your mom) and how to help your mom. You may not agree with her decision not to put her husband in a nursing home, but I think if you shut out your relationship with her (and your father) over this you will feel sad later. My grandmother resisted a nursing home for a long time, and honestly, I understand why.

Your mom is in a major rut and you need to develop your own strength to help her.
Anonymous
Post 12/30/2014 11:14     Subject: Re:Sad about how the holiday visit to my family went

Anonymous wrote:All PP's criticizing OP's attitude, did you actually read the MULTIPLE times she has said that the mom has refused to consider a nursing home, and has therefore CHOSEN to be the primary caregiver? The mom is playing the martyr, plain and simple. Sorry, but I lack sympathy for anyone who has the opportunity to make their life a little less stressful and refuses to take it. Team OP.


Are you OP, perchance? Or just financially clueless and inexperienced with Alzheimer's?

OP has no idea how much nursing homes cost. Her mother may not have the resources for it, since they are horribly expensive.
Then there is guilt and emotion involved in letting go of a loved one to a home. OP's mother is not perfect, she has her hang-ups.
It doesn't mean OP has the right to whine about not getting the royal treatment from an elderly lady struggling to care for her ailing spouse and host a party at the same time.



Anonymous
Post 12/30/2014 11:14     Subject: Sad about how the holiday visit to my family went

All the PPs criticizing the OP, I think you sound like a bunch of cold scolds. The OP's mom's situation is terrible and I wouldn't wish it on my worst enemy. But the OP's feelings are still valid. She had a crappy holiday for a lot of reasons. She gets to be sad that she had a crappy holiday. Her mom doesn't get a blanket pass to be a jerk because she is dealing with this awful care situation. Her attitude is understandable, but it's also understandably frustrating for someone who genuinely sounds like she wants to help and is having a hard time doing that. I don't see what more the OP could do. It doesn't sound like she was awful to her mom, just that she had a bad holiday season, for a lot of understandable reasons, and she is allowed to be sad about that.

We had a similar situation with my grandparents when dealing with cancer. Total refusal to accept help followed by extreme annoyance when people didn't magically divine what needed to be done - including the trash issue, OP. I was falling over myself trying to be helpful and take care of things and was told repeatedly not to worry about it, and then taken to task later for "not noticing" when the trash needed to go out. My grandfather's exact words were "If you wanted to help so badly, why didn't you do that?"
Anonymous
Post 12/30/2014 11:04     Subject: Re:Sad about how the holiday visit to my family went

All PP's criticizing OP's attitude, did you actually read the MULTIPLE times she has said that the mom has refused to consider a nursing home, and has therefore CHOSEN to be the primary caregiver? The mom is playing the martyr, plain and simple. Sorry, but I lack sympathy for anyone who has the opportunity to make their life a little less stressful and refuses to take it. Team OP.
Anonymous
Post 12/30/2014 09:19     Subject: Sad about how the holiday visit to my family went

Anonymous wrote:
Your mother suffers from anxiety and depression, among other things.
Your mother has the immense burden of being the primary caregiver for someone with Alzheimer's.

And you dare to criticize her emotional reactions when she had people over, that she probably didn't want to host to begin with???

Ingratitude can go no further - you are lower than the low, OP.

You need to support her, because right now she is under incredible amounts of strain. And if she wasn't a pleasant person to begin with, don't you imagine that she'll suddenly become one now, with all that added burden. Who would?

So consider her well-being first. Don't encourage her or enable her to host or extend herself in anyway for anybody except your father.
Next year invite her to a Holiday meal at a nice hotel/restaurant or a gathering at somebody else's house.
During the year, if you're far away and can't pitch in, at least phone regularly and just listen to her complaints.

Now I've seen it all.




+1
Anonymous
Post 12/30/2014 08:58     Subject: Sad about how the holiday visit to my family went

Don't expect too much from your mom during the holidays. You have to understand just how depressing that time of year is for her. The memories of the love and laughter of holidays past only serve to underscore the devastation that she is living now. Leaving you your dad to go to a holiday celebration may make her feel very guilty. Trying to hold it together and act happy for the other members of her family may be too much for her.

It may be better to try to pry her away from him at a less emotional time. If you can get her away for only a few of hours to go out to dinner and movie...

Anonymous
Post 12/30/2014 08:21     Subject: Re:Sad about how the holiday visit to my family went

My 80-some year old grandma is taking care of my Grandpa who also has Alzheimers and is incontinent. It's horrible. I don't know how my grandma takes care of him (she refuses to put him in a nursing home as well and won't let any nurses come to the house as she doesn't like strangers). She is very embarrassed about the smell in the house and no matter what we do, we can't get rid of the stinkiness. It doesn't help that my grandpa likes to take the diaper off.

Can you and your family stay in a nearby hotel next time so that your mother doesn't have to clean the house for you? And perhaps go to a restaurant for meals (or maybe order take out and have everyone come to your hotel room)? She may be less stressed out with this plan and she may enjoy being away from your father for a few hours. Your father should be ok without a caregiver for a few hours.
Anonymous
Post 12/30/2014 06:24     Subject: Sad about how the holiday visit to my family went

+1 to the PP
Anonymous
Post 12/29/2014 23:02     Subject: Re:Sad about how the holiday visit to my family went



OP, you owe your mother a huge apology. You should not have asked her to host or agreed to let her host. On top of her full time job of dealing with her husband, she had to clean her house, make sure dinnerware was in order, grocery shop, plan a menu, "make a few things," and do drinks. That's a LOT to do when also taking care of her husband. I know you feel like it isn't much, but she obviously didn't think she could do it. When she clearly didn't want to do it, you piled on to her burden. It sounds as though you assured her you would take care of everything else, yet you are surprised she wanted a guest to take out the trash? YES, take out the trash for the woman!

And sure, your mom could likely use an adjustment to her medications to help her mood; but even if they "make her feel happy," they won't make her feel obligated to take on holiday hosting! I think the question you need to ask is what can you do to help your mom.

Next get-together, figure out a better way to do this so that your mother doesn't have to lift a finger. Talk to the hospice workers to find out who can be with your father while you all go out to dinner (even if it's a major holiday). Also, while you're there, do their laundry (wash, fold and put away), take out the trash, etc. Don't do anything that would create more work for her (as in, don't leave clean laundry piled in the basket, don't do a load of dishes and leave them to dry on the counter for her to put away). Would she go for a massage? If so, get her a gift certificate. You implied she seems to like seeing her grandchildren, you could offer to be with your father while she takes them to the park or for ice cream, or just while they hang out together in the family room (or whatever she likes to do).

Anonymous
Post 12/29/2014 22:56     Subject: Re:Sad about how the holiday visit to my family went

The way your mom acted is a cry for help. Try to think of several solutions for your dad, call your mom and see how you can help, thank her for hosting.
Anonymous
Post 12/29/2014 21:59     Subject: Sad about how the holiday visit to my family went

Anonymous wrote:
Anonymous wrote:
Anonymous wrote:OP, I posted previously - my father has Alzheimers and I found your original post almost unbelievable. In your followup posts you have offered more detail but what comes through is an incredible lack of sympathy for your mother. Before you criticize her, you have to understand what she is dealing with on a daily basis. Alzheimers is a horrific disease - it robs patients of their lucidity and their dignity and eventually their basic skills of self care.

I speak with my father multiple times a day; I am an adult who appreciates the disease (my grandmother had it also, and lived with us when I was a kid) but it still breaks my heart every time. Your mother is living this. She is seeing the most important person in her life reverted to an infantile state, and she is responsible for his daily care. Can you not understand why she might want a little help with taking out the trash?

I'm guessing from your post you are relatively young. And since your father is only 64, I should mention, my mother died at 63 of cancer. No one should suffer and die at this age. It's awful, and you are probably grieving yourself over what is to come. But please, find a more healthy way to process your grief than heaping blame on your mother. Invest yourself in trying to find high-quality care for your father, either as a respite or in a nursing facility. And recognize that what your mother has done is heroic; try to support her instead of criticizing her for being negative during your visit.


I think what Op is saying is that she IS trying to think of things like respite care, nursing homes, etc but her mom is having none of it. It is hard to be thousands of miles away with something so major going on with your parents.

It is then difficult for Op to see her mom struggling so with the care giving. It is obviously taking a toll on her mom. But what can Op reasonably do to help when she lives so far away, has kids that need her and her mom refuses any kind of respite help, whatsoever.

This is the part that is going to be hard: Sometimes life truly gets horrible and you just do the best you can with a horrendous situation. That is what Op's mom is doing. There is no way to make the loss that she is enduring any better for her. Sometimes all you can do is hold their hand as they walk through it.



We all wish OP would do even that, PP.
Point is, she's just adding to her mother's load and then had the gall to go on DCUM to vent about her mother's treatment of her.


Yes. Op is frustrated. But Op has to understand that Mom needs to do this her own way. There is no making this better.
Anonymous
Post 12/29/2014 21:56     Subject: Sad about how the holiday visit to my family went

Anonymous wrote:
Anonymous wrote:OP, I posted previously - my father has Alzheimers and I found your original post almost unbelievable. In your followup posts you have offered more detail but what comes through is an incredible lack of sympathy for your mother. Before you criticize her, you have to understand what she is dealing with on a daily basis. Alzheimers is a horrific disease - it robs patients of their lucidity and their dignity and eventually their basic skills of self care.

I speak with my father multiple times a day; I am an adult who appreciates the disease (my grandmother had it also, and lived with us when I was a kid) but it still breaks my heart every time. Your mother is living this. She is seeing the most important person in her life reverted to an infantile state, and she is responsible for his daily care. Can you not understand why she might want a little help with taking out the trash?

I'm guessing from your post you are relatively young. And since your father is only 64, I should mention, my mother died at 63 of cancer. No one should suffer and die at this age. It's awful, and you are probably grieving yourself over what is to come. But please, find a more healthy way to process your grief than heaping blame on your mother. Invest yourself in trying to find high-quality care for your father, either as a respite or in a nursing facility. And recognize that what your mother has done is heroic; try to support her instead of criticizing her for being negative during your visit.


I think what Op is saying is that she IS trying to think of things like respite care, nursing homes, etc but her mom is having none of it. It is hard to be thousands of miles away with something so major going on with your parents.

It is then difficult for Op to see her mom struggling so with the care giving. It is obviously taking a toll on her mom. But what can Op reasonably do to help when she lives so far away, has kids that need her and her mom refuses any kind of respite help, whatsoever.

This is the part that is going to be hard: Sometimes life truly gets horrible and you just do the best you can with a horrendous situation. That is what Op's mom is doing. There is no way to make the loss that she is enduring any better for her. Sometimes all you can do is hold their hand as they walk through it.



We all wish OP would do even that, PP.
Point is, she's just adding to her mother's load and then had the gall to go on DCUM to vent about her mother's treatment of her.
Anonymous
Post 12/29/2014 21:52     Subject: Sad about how the holiday visit to my family went

Anonymous wrote:OP, I posted previously - my father has Alzheimers and I found your original post almost unbelievable. In your followup posts you have offered more detail but what comes through is an incredible lack of sympathy for your mother. Before you criticize her, you have to understand what she is dealing with on a daily basis. Alzheimers is a horrific disease - it robs patients of their lucidity and their dignity and eventually their basic skills of self care.

I speak with my father multiple times a day; I am an adult who appreciates the disease (my grandmother had it also, and lived with us when I was a kid) but it still breaks my heart every time. Your mother is living this. She is seeing the most important person in her life reverted to an infantile state, and she is responsible for his daily care. Can you not understand why she might want a little help with taking out the trash?

I'm guessing from your post you are relatively young. And since your father is only 64, I should mention, my mother died at 63 of cancer. No one should suffer and die at this age. It's awful, and you are probably grieving yourself over what is to come. But please, find a more healthy way to process your grief than heaping blame on your mother. Invest yourself in trying to find high-quality care for your father, either as a respite or in a nursing facility. And recognize that what your mother has done is heroic; try to support her instead of criticizing her for being negative during your visit.


I think what Op is saying is that she IS trying to think of things like respite care, nursing homes, etc but her mom is having none of it. It is hard to be thousands of miles away with something so major going on with your parents.

It is then difficult for Op to see her mom struggling so with the care giving. It is obviously taking a toll on her mom. But what can Op reasonably do to help when she lives so far away, has kids that need her and her mom refuses any kind of respite help, whatsoever.

This is the part that is going to be hard: Sometimes life truly gets horrible and you just do the best you can with a horrendous situation. That is what Op's mom is doing. There is no way to make the loss that she is enduring any better for her. Sometimes all you can do is hold their hand as they walk through it.

Anonymous
Post 12/29/2014 21:42     Subject: Sad about how the holiday visit to my family went

OP I'm 47 and have watched my mom take care of my dad with end-stage lung cancer, and an uncle who took care of his aunt with Alzheimers, his MIL with Alzheimers, and then his wife. It's so horrifically difficult to be a caregiver round the clock like this, even with help.

There are many complex emotions, and guilt is a big one, especially with the thought of moving someone to a nursing home.

Your mom is in hell right now. And just a word of preparation -- she could be an absolute mess when your father dies.

If you could do a do-over, it would be nice to go visit her and do everything for her, dinner, meals, shopping, etc. Personally, I'd apologize to her and tell her you didn't realize what she was facing (which is understandable if you don't live right there), and that next time you'll take over all the hosting duties in her house, if she chooses to do another holiday.
Anonymous
Post 12/29/2014 21:40     Subject: Sad about how the holiday visit to my family went

Anonymous wrote:
Anonymous wrote:My mother would never allow us to put her or our father in a nursing home. She's seen too many of her friends die within a few months of being moved there that she's biased against all nursing homes. The really good ones are very expensive and if you don't have a family member visiting regularly and talking to the nurses and caretakers you may end up with poorer care than someone who's family is very involved. I understand your mother's point of view.


But the mother is there and could visit daily (as well as the mother's siblings) and be very involved in their care. She just does not want to consider it.



Have you done it. I visit my mil1-2 times a week. It is depressing. The basic care is good but she mainly sits around with people much worse than her. It is 30 minutes away so round trip plus visits it is usually an all day event. The food sucks, mostly shared rooms with no good place to visit, overworked staff, showers twice a week, etc. you make it sound great.