Anonymous wrote:I agree--and like I said, I called a dozen schools today. The part that is keeping me awake at night is the part where I didn't trust my own gut. BUT, I also don't want to just cut and run without both making the school and greater administration aware of the serious issues. I'm not going to leave a bad situation and just hope someone else fixes it. But I'm also not going to let my sweet kid become labeled unfairly, or become a guinea pig to a new system that's failing him.
Thanks, everyone. Seriously.
You are seriously and sincerely welcome. It is very noble of you (and we all need more people like you) to make sure that when you leave everyone who can change things know why you left. I left a pediatric practice with my tail between my legs and still don't say anything when it comes up in casual conversation with people I don't know for fear that they may judge me. Please don't keep yourself awake at night.
The guilt is an intrinsic part of being a loving parent, whether our acts or omissions have serious consequences or not. But you clearly are a great parent. Just don't beat yourself up too much and learn to trust your gut more. It will make you more amazing, but you are already doing all the right things. There will as your child grows be more and more things out of your control, and more and more need to use your gut instincts and your good judgement to decide what is best for your child.
Our oldest child was in a helmet for 8 months starting at 9 months because of positional plagiocephaly, where we first did not notice that her head was becoming oddly flat and her features somewhat asymmetrical until my spacial relations husband saw her head wet in the bath from the top. Then we accepted the word of our crappy pediatrician who was trying to cover up the fact that she missed it that at 9 months it was too late to fix. Finally when we went to a neurosurgeon to rule out craniosynostosis we took his word that all helmets are the same and wasted another 3 months in a Hangar helmet that kept slipping and irritating her head.
Fast forward, our dd is in 6th with beautiful symmetrical features (thank you Craniotechnologies and the DOC band!) but we had to wait with baited breath for 3 years for hearing and vision tests (not only was there bossing on her forehead, but her ear had shifted etc, so insurance covered it because it was so bad it was not cosmetic!). So hugs and love to you and your child and all parents who are struggling. This illustrates one of the best sides of DCUM and is why this community is so important to me.