9:58 - would you mind sharing what connective tissue disorder you have?

It could be something as simple as low magnesium due to the hot weather. Take a calcium/magnesium supplement (often called cal-mag) at bedtime. It will relax your muscles so you'll feel a bit sleepy, And eat some high magnesium foods (dark chocolate, meat, pumpkin seeds, spinach). And drink more water. If this is it, you should feel better within a day.

Anonymous wrote:^^what symptoms did you have?

A lot of muscle and joint pain with no clear cause as to why. At one point, my knees hurt so bad I could barely walk, but they weren't red or swollen like they would be with arthritis. I could feel "fine" one day, but then have pain start the next day and last for several days to weeks. "Fine" is a relative term; I've lived with joint/muscle pain for as long as I can remember to varying degrees. I didn't realize it wasn't normal to have pain every day. If I've been very active during the day, when I lie down to sleep at night my legs almost have an achy/burning feeling. It's not nerve pain, but more like my muscles finally getting some relief from compensating for what my tendons/connective tissue in joints can't do.
My wrists sublux if I try to grab something the "wrong" way or if pulled a little too hard - I learned how to pop them back into place as a kid (again, I didn't realize this wasn't normal). I sprained my ankle so many times as a kid that I lost count, but I often couldn't tell you exactly what I had done to cause the pain and swelling. I've been in PT a lot!
Also, some random things like a lot of cavities even though I take good care of my teeth (connective tissue is everywhere!), fatigue (again, body overcompensating), easy bruising, TMJ, etc. They tested me for thyroid, lyme, RA, lupus, but when the tests would come back negative, I usually got a "Okay, it's not x/y/z, so you're fine!" from the doctor. I would have received very different treatment all along if someone had taken the time to ask more questions (or actually listened to me!) and diagnosed me earlier.

^^what symptoms did you have?

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Ignore the pp.

It could be anxiety, which caused slot of similar things for me, especially the tingling.

I honestly wasn't trying to be nasty. Op has more than one post on this forum and she has classic markers of Munchausen. It is.
A disease just like the others mentioned. It is nothing to be ashamed of, but treatment can be effective and may help her feel so much better. My mother has it and things improved when she sought treatment.

No OP but like what? I'm truly interested.

To answer you question, here are some symptoms of Munchausen Syndrome. I have bolded the ones that OP has displayed in all her posts. Again, I am NOT attacking OP. I offered other suggestions as well in previous posts. She asked for ideas and I am putting this up there as a possible cause. Munchausen is a disease, like any other, that benefits from treatment. Mental illnesses are legitimate illnesses. I am not saying she has it. I offered it as a suggestion.

Munchausen syndrome symptoms may include:
Dramatic stories about numerous medical problems
Frequent hospitalizations
Vague or inconsistent symptoms
Conditions that get worse for no apparent reason
Eagerness to undergo frequent testing or risky operations
Extensive knowledge of medical terminology and diseases
Seeking treatment from many different doctors or hospitals
Arguing with hospital staff
Frequent requests for pain relievers or other medications


Whatever the issue is, OP, I do hope you find the answer and some relief. It sounds like you are worried.

NP here. I was brushed off by many doctors for years. None of them spent the time to put all of the pieces together. I was eventually diagnosed with a connective tissue disorder by a very well known and respected geneticist (how I got to that point is a long story). I still encounter a lot of people in the medical field that are either un- or undereducated about what I have. Definitely not something I would want others to experience.

OP, are you able to get an earlier neuro appointment? August seems like to long a wait.

Not OP, but I think she said she had blood in her urine, not her stool.

This is interesting 12:28 and 2:33.

^^ My lyme expert just added something. Here's what he sent me: "I would do western blot from igenex.com and three day blood draw from galaxydx.com for bartonella."

OP, it's 12:28 and 2:33 back. I copied off your symptons at 21:45 and ran it by my advanced lyme expert. He said all the symptoms could be advanced lime EXCEPT the blood in the stool, but that could be side-effects of other conditions caused by the original lyme infection. You want to ask for the Western Blot test by this lab. http://www.igenex.com/Website/. Your doctor/internist may fight you on this because there is a lot of ignorance in the medical community about Lyme and because the other tests are cheapter. Hopkins is known for its false negatives, bTW. Insist on the Western Blot. I was misdiagnosed as having Lyme just upon visual inspection. Newbie Doctor was wrong. I insisted on Western Blot. She wouldn't send it to San Diego. She wanted to use the cheaper Johns Hopkings. She was wrong. I was right. I didn't have Lyme. Now there is legislation in VA to try and straighten this mess out and to educate doctors.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Ignore the pp.

It could be anxiety, which caused slot of similar things for me, especially the tingling.

I honestly wasn't trying to be nasty. Op has more than one post on this forum and she has classic markers of Munchausen. It is.
A disease just like the others mentioned. It is nothing to be ashamed of, but treatment can be effective and may help her feel so much better. My mother has it and things improved when she sought treatment.

No OP but like what? I'm truly interested.

To answer you question, here are some symptoms of Munchausen Syndrome. I have bolded the ones that OP has displayed in all her posts. Again, I am NOT attacking OP. I offered other suggestions as well in previous posts. She asked for ideas and I am putting this up there as a possible cause. Munchausen is a disease, like any other, that benefits from treatment. Mental illnesses are legitimate illnesses. I am not saying she has it. I offered it as a suggestion.

Munchausen syndrome symptoms may include:
Dramatic stories about numerous medical problems
Frequent hospitalizations
Vague or inconsistent symptoms
Conditions that get worse for no apparent reason
Eagerness to undergo frequent testing or risky operations
Extensive knowledge of medical terminology and diseases
Seeking treatment from many different doctors or hospitals
Arguing with hospital staff
Frequent requests for pain relievers or other medications


Whatever the issue is, OP, I do hope you find the answer and some relief. It sounds like you are worried.

Anonymous wrote:It's Munchausen by proxy, idiot! She's talking about herself.

OP, if you have hashimoto's look up rheumatoid arthritis as well. runs in my family. Looks up advanced lyme disease. I'll talk to the expert I know and get reading material. She runs a national education group and is writing a book on it with an XLNT advanced lyme diseas doctor.

Actually Munchausen by proxy is when you create illnesses in others. Munchausen is when you create, but sometimes truly believe them, illnesses in yourself. Good job calling me an idiot though.

Or a Conversion Disorder.

Anonymous wrote:

Anonymous wrote:Ignore the pp.

It could be anxiety, which caused slot of similar things for me, especially the tingling.

I honestly wasn't trying to be nasty. Op has more than one post on this forum and she has classic markers of Munchausen. It is.
A disease just like the others mentioned. It is nothing to be ashamed of, but treatment can be effective and may help her feel so much better. My mother has it and things improved when she sought treatment.

No OP but like what? I'm truly interested.

Thanks 2:33. Yes, this is NOT Munchausen. I do not want attention. I just want to feel better. I work FT, rarely take off work, have 2 kids under 5, and feel awful.

I am wondering if it could be chronic lyme. Whatever it is, it's something.

It's Munchausen by proxy, idiot! She's talking about herself.

OP, if you have hashimoto's look up rheumatoid arthritis as well. runs in my family. Looks up advanced lyme disease. I'll talk to the expert I know and get reading material. She runs a national education group and is writing a book on it with an XLNT advanced lyme disease doctor.