Anonymous wrote:Can you get a referral to a pediatric endo, make an appointment now and also ask to be put on the cancellation waitlist? That’s your best bet for a proper diagnosis. Keep doing the first thing in the morning fasting blood sugars and keep a diary. Only worry if you see a steady progression.

The problem is, all these people who say “just see your doctor” are not diabetic.

I’d agree that your anxiety is high and should be addressed separately. That’s never going to hurt you. But, maybe your anxiety is high because of undiagnosed health concerns, right? Having anxiety isn’t a “bad” or “wrong” thing, it’s just a fact. It’s like a headache and it may need to be addressed

The real issue is that IF you have a form of typw 1 or 1.5, it’s a diagnosis that is commonly missed or can take years. It’s just not on the radar for a lot of general practitioners or adult endos. Even the nomenclature around type 1.5 is new.

I hate giving out too many details because I’ll be really recognizable. Type 1 diabetes only affects about 1/2 of a percent of Americans and typically people who think they know about diabetes are usually thinking about type 2

I’ll be kind of identifying myself here, but I think anyone who knows about type one wall so recognize that even if you do not have any form of diabetes, a fasting blood sugar at your age that isn’t under 100 every day IS a concern and does need a diagnosis.

I have one older teen who is a stage two diabetic. They had been screened through Trialnet which is a free screening program for people under about 40 who have a first-° relative with type one diabetes. We knew they had an elevated risk already due to having a sibling with diabetes. Once we got the blood test results (google Trialnet and ASK to see if you qualify for free auto antibody testing) we knew that our teen was definitely an early stage diabetic. From there, it’s just a waiting game to watch symptoms and blood sugars to see when they will need daily insulin, but they are not insulin dependent yet.

If you wanted to discuss this further with a more informed group of people I would highly recommend joining this group:

https://www.facebook.com/share/g/1EQjx9D72h/?mibextid=wwXIfr

It’s a group of about 90,000 all of whom are either type one diabetics or family members of type ones and they will be a knowledgeable and helpful group. Including that you may find people in the group who had similar issues and can tell you if it was thyroid or diabetes or something else entirely.

Anonymous wrote:Can you get a referral to a pediatric endo, make an appointment now and also ask to be put on the cancellation waitlist? That’s your best bet for a proper diagnosis. Keep doing the first thing in the morning fasting blood sugars and keep a diary. Only worry if you see a steady progression.

The problem is, all these people who say “just see your doctor” are not diabetic.

I’d agree that your anxiety is high and should be addressed separately. That’s never going to hurt you. But, maybe your anxiety is high because of undiagnosed health concerns, right? Having anxiety isn’t a “bad” or “wrong” thing, it’s just a fact. It’s like a headache and it may need to be addressed

The real issue is that IF you have a form of typw 1 or 1.5, it’s a diagnosis that is commonly missed or can take years. It’s just not on the radar for a lot of general practitioners or adult endos. Even the nomenclature around type 1.5 is new.

I hate giving out too many details because I’ll be really recognizable. Type 1 diabetes only affects about 1/2 of a percent of Americans and typically people who think they know about diabetes are usually thinking about type 2

I’ll be kind of identifying myself here, but I think anyone who knows about type one wall so recognize that even if you do not have any form of diabetes, a fasting blood sugar at your age that isn’t under 100 every day IS a concern and does need a diagnosis.

I have one older teen who is a stage two diabetic. They had been screened through Trialnet which is a free screening program for people under about 40 who have a first-° relative with type one diabetes. We knew they had an elevated risk already due to having a sibling with diabetes. Once we got the blood test results (google Trialnet and ASK to see if you qualify for free auto antibody testing) we knew that our teen was definitely an early stage diabetic. From there, it’s just a waiting game to watch symptoms and blood sugars to see when they will need daily insulin, but they are not insulin dependent yet.

If you wanted to discuss this further with a more informed group of people I would highly recommend joining this group:

https://www.facebook.com/share/g/1EQjx9D72h/?mibextid=wwXIfr

It’s a group of about 90,000 all of whom are either type one diabetics or family members of type ones and they will be a knowledgeable and helpful group. Including that you may find people in the group who had similar issues and can tell you if it was thyroid or diabetes or something else entirely.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.

Thank you for being understanding. I didn’t realize that Type 1 Diabetes can develop in stages, which is why I initially thought it might be Latent Autoimmune Diabetes in Adults (LADA) instead, which know is type 1 but slower developing.My dad has an overactive thyroid, and I know that can sometimes be linked to autoimmune conditions, so I wasn’t sure if that pointed more toward type 1 or LADA. When I had my thyroid levels checked in 2021, they were normal, but I’m not sure if that could have changed since then.

When I was 14, I went to the doctor for chest pain and was told I had a heart murmur. I followed up with a cardiologist, but at the next appointment they didn’t hear it anymore, so I’m not sure what caused that.

Recently, I started checking my blood sugar. My fasting levels have been between about 109 (today,) 88 (yesterday), 118, then 108. My post-meal numbers are always normal, even an hour after eating. I’ve had symptoms like increased thirst since December 2022, and they’ve stayed pretty consistent over the past few years without getting significantly worse.

Because of how long the symptoms have been going on and the relatively mild fasting numbers now (though this is my first time checking). I was wondering if this could be LADA rather than typical type 1 diabetes. I’ve read that early-stage type 1 often doesn’t have many symptoms, while LADA can progress more slowly, though LADA is said to not have symptoms in the beginning too, so I’m not sure what explains symptoms with these fasting levels this many years in.

I also came across Teplizumab and saw that it might delay progression in LADA cases, but that doesn’t seem accurate.
I won’t be able to see my doctor until May. I did get my A1C results back but haven’t looked at them yet because I’d prefer to go over them with my doctor, and don’t believe they are really helpful in this case, if it’s type 1 or type 1.5. In the meantime. I’m also wondering if something like hyperthyroidism or PCOS could be contributing to these symptoms.

Overall, would you think this pattern is leans more towards, early type 1 diabetes, LADA, or something else.

OP. You have nothing. I mean that kindly. Stop trying to diagnose yourself

I wish that were the case, but I’m about 90% sure it’s not. I’ve already started grieving my old life and trying to accept that it might be over soon, and that my future wont look the same if this ends up being something like latent autoimmune diabetes or type 1. I really hope I’m wrong., but I don’t think I am, so I have to prepare myself.

Being told to just go to the doctor like a normal person isn’t that helpful, because I’m worried I might not be a “ normal” person anymore. I’m not trying to diagnose myself, and this isn’t mental anxieties—I know my body and can tell when something feels off. When I went to the doctor before for chest pain, they actually did find a murmur, so my symptoms were real, even if the cause wasn’t fully explained.

Also, for the previous poster—Can I ask how old was your daughter when she was diagnosed in the early stages of type 1, and how old is she now? What made you decide to get her tested, what were her fasting levels at the time, and how long has it been? Thanks.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.

Thank you for being understanding. I didn’t realize that Type 1 Diabetes can develop in stages, which is why I initially thought it might be Latent Autoimmune Diabetes in Adults (LADA) instead, which know is type 1 but slower developing.My dad has an overactive thyroid, and I know that can sometimes be linked to autoimmune conditions, so I wasn’t sure if that pointed more toward type 1 or LADA. When I had my thyroid levels checked in 2021, they were normal, but I’m not sure if that could have changed since then.

When I was 14, I went to the doctor for chest pain and was told I had a heart murmur. I followed up with a cardiologist, but at the next appointment they didn’t hear it anymore, so I’m not sure what caused that.

Recently, I started checking my blood sugar. My fasting levels have been between about 109 (today,) 88 (yesterday), 118, then 108. My post-meal numbers are always normal, even an hour after eating. I’ve had symptoms like increased thirst since December 2022, and they’ve stayed pretty consistent over the past few years without getting significantly worse.

Because of how long the symptoms have been going on and the relatively mild fasting numbers now (though this is my first time checking). I was wondering if this could be LADA rather than typical type 1 diabetes. I’ve read that early-stage type 1 often doesn’t have many symptoms, while LADA can progress more slowly, though LADA is said to not have symptoms in the beginning too, so I’m not sure what explains symptoms with these fasting levels this many years in.

I also came across Teplizumab and saw that it might delay progression in LADA cases, but that doesn’t seem accurate.
I won’t be able to see my doctor until May. I did get my A1C results back but haven’t looked at them yet because I’d prefer to go over them with my doctor, and don’t believe they are really helpful in this case, if it’s type 1 or type 1.5. In the meantime. I’m also wondering if something like hyperthyroidism or PCOS could be contributing to these symptoms.

Overall, would you think this pattern is leans more towards, early type 1 diabetes, LADA, or something else.

OP. You have nothing. I mean that kindly. Stop trying to diagnose yourself

Anonymous wrote:

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.

Thank you for being understanding. I didn’t realize that Type 1 Diabetes can develop in stages, which is why I initially thought it might be Latent Autoimmune Diabetes in Adults (LADA) instead, which know is type 1 but slower developing.My dad has an overactive thyroid, and I know that can sometimes be linked to autoimmune conditions, so I wasn’t sure if that pointed more toward type 1 or LADA. When I had my thyroid levels checked in 2021, they were normal, but I’m not sure if that could have changed since then.

When I was 14, I went to the doctor for chest pain and was told I had a heart murmur. I followed up with a cardiologist, but at the next appointment they didn’t hear it anymore, so I’m not sure what caused that.

Recently, I started checking my blood sugar. My fasting levels have been between about 109 (today,) 88 (yesterday), 118, then 108. My post-meal numbers are always normal, even an hour after eating. I’ve had symptoms like increased thirst since December 2022, and they’ve stayed pretty consistent over the past few years without getting significantly worse.

Because of how long the symptoms have been going on and the relatively mild fasting numbers now (though this is my first time checking). I was wondering if this could be LADA rather than typical type 1 diabetes. I’ve read that early-stage type 1 often doesn’t have many symptoms, while LADA can progress more slowly, though LADA is said to not have symptoms in the beginning too, so I’m not sure what explains symptoms with these fasting levels this many years in.

I also came across Teplizumab and saw that it might delay progression in LADA cases, but that doesn’t seem accurate.
I won’t be able to see my doctor until May. I did get my A1C results back but haven’t looked at them yet because I’d prefer to go over them with my doctor, and don’t believe they are really helpful in this case, if it’s type 1 or type 1.5. In the meantime. I’m also wondering if something like hyperthyroidism or PCOS could be contributing to these symptoms.

Overall, would you think this pattern is leans more towards, early type 1 diabetes, LADA, or something else.

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.

Anonymous wrote:To clarify, you may not have T1D, but it IS really important to actually get bloodwork done to rule it out. I’m not a doctor (and not a scientist) so i don’t know what else might cause an elevating fasting blood sugar, but it’s definitely abnormal, particularly at your age.

My guess would be that all the posters saying you have anxiety or that diabetics have “much higher numbers than low 100s” don’t actually know much about type 1 diabetes.

I’d suggest that you follow the advice of the two people on here WHO HAVE DIABETIC CHILDREN and ignore the rest. You need a diagnosis and hopefully you’ll be able to rule out T1D.

And to the poster doling out erroneous medical information, yes, diabetics CAN have blood sugars in the low 100s. Logically, if there are people diagnosed in their teens and 20s and even sometimes in their 60s and 70s, how do you think that is happening? Do you think they wake up on Monday with a fasting blood sugar of 98 and then Tuesday it’s 600? It’s a progression and there ARE delaying treatments available if you catch it early.

So what I am telling you is that an untreated insulin dependent diabetic will have blood sugars rapidly climbing into the 400++ territory, an early stage diabetic might frequently wake around 115-130 every day. That is the stage that one of my children is in currently.