Anonymous wrote:

Anonymous wrote:I’ve looked through MAPS website but couldn’t find a provider who has had experience with prescribing Leucovorin. Do you mind sharing who prescribed for your son?

My daughter’s FRAT test came out positive (I convinced my ped to order the test although I paid all out of pocket) but I’m completely lost in finding a doctor who can prescribe. I found one developmental pediatrician who said she’s done it before but she completely ghosted.

This gives me strong MAHA vibes. you should probably save your money for therapy instead of this. The fact that you cannot find a doctor to prescribe this stuff should tell you something …

DP. I hate this line of thinking. There’s studies on the efficacy it’s not MAHA territory. You don’t even know her financial situation to immediately suggest it’s an either or situation. 99% of doctors are not keeping abreast of any research about anything that has come out since they were in medical school.

I'm bumping this to see if anyone has had the FRAT testing done or can speak to other experience with leucovorin or high dose folinic acid.

Anonymous wrote:This is very interesting and now the thought has to be with pregnancy supplements possibly being the cause.

Because most autistic and neurodivergent kids seem to come from middle and upper middle class getting proper supplements and care. Although I still think age of mother plays a very important part that society doesn’t want to admit.

This comment reminded me we are living in The Handmaid’s Tale now. Age of the mother?
I would think Age of the father and fitness of the sperm is a more important part. Women tend to not have children after 35-40, but tons of men have children much later. Many men plan on it feeling they can “play around and just marry some 25 year old when I am 45”.

Anonymous wrote:I’ve looked through MAPS website but couldn’t find a provider who has had experience with prescribing Leucovorin. Do you mind sharing who prescribed for your son?

My daughter’s FRAT test came out positive (I convinced my ped to order the test although I paid all out of pocket) but I’m completely lost in finding a doctor who can prescribe. I found one developmental pediatrician who said she’s done it before but she completely ghosted.

This gives me strong MAHA vibes. you should probably save your money for therapy instead of this. The fact that you cannot find a doctor to prescribe this stuff should tell you something …

Anonymous wrote:

Anonymous wrote:This is very interesting and now the thought has to be with pregnancy supplements possibly being the cause.

Because most autistic and neurodivergent kids seem to come from middle and upper middle class getting proper supplements and care. Although I still think age of mother plays a very important part that society doesn’t want to admit.

Most known autistic and neurodivergent kids come from middle to upper middle class families.
The ones from lower class families probably don't receive the diagnosis because their families don't have the energy, awareness, effort, knowledge, and resources to seek out help.
It's a self selected diagnosed group.

That may be true of mild to moderate ASD cases, but severe autism seems more common in minority and lower income communities. My younger kid went to FCPS PAC at a school where the local population was around 50% white non Hispanic. His PAC class had 7 kids - 2 white, the rest minorities and mostly lower income immigrants. The half day classes for kids with less severe disabilities was similar.

People with more resources are more likely to seek a diagnosis for a kid who is struggling with behavior, but still in mainstream classes, has academic strengths, etc. but quirky. The more severe cases where it is evident that the child has a disability, there is an intellectual disability, injurious behaviors, severe behavioral concerns - it seems more common in lower income families and areas.

I’ve looked through MAPS website but couldn’t find a provider who has had experience with prescribing Leucovorin. Do you mind sharing who prescribed for your son?

My daughter’s FRAT test came out positive (I convinced my ped to order the test although I paid all out of pocket) but I’m completely lost in finding a doctor who can prescribe. I found one developmental pediatrician who said she’s done it before but she completely ghosted.

We are the maps recommender. My son is 3 months on Leucovorin right now. Big improvements in socialization, decreased to no tantrums, more flexible thinking, more energy, overall happier kid. It’s amazing. You have to go completely dairy free ( exception is clarified butter as they’ve gotten the protein out). The cow protein is very similar to ours and the child will continue to produce the autoabtibody if exposed to dairy.

This is prevalent in adhd too so worth bringing it up to your provided.

This is the group who will be most familiar with it but you could attempt to get regular ped or functional med doctor to order.

https://www.medmaps.org/

We submit everything through insurance and although ours is a pain even united health care will accept testing as medically necessary and cover cost.

Anonymous wrote:This is very interesting and now the thought has to be with pregnancy supplements possibly being the cause.

Because most autistic and neurodivergent kids seem to come from middle and upper middle class getting proper supplements and care. Although I still think age of mother plays a very important part that society doesn’t want to admit.

Most known autistic and neurodivergent kids come from middle to upper middle class families.
The ones from lower class families probably don't receive the diagnosis because their families don't have the energy, awareness, effort, knowledge, and resources to seek out help.
It's a self selected diagnosed group.

If anyone has a family member who took the FRAT test and it came back positive it would be great if you could report back on what happened next. Was Leucovorin prescribed?Thank you.

My DC had a remarkable improvement in verbal just by going on a gluten-free, dairy- free diet...but could I just give the folate and skip the diet? That would be amazing as the diet has become cumbersome.

Try Dr. Tracy Freeman in Friendship Heights

Bumping the post again - does anyone have a doctor in DMV area that has had the experience with Leucovorin prescription? My DC came positive with the lab result but having trouble finding the doctor who is experienced or willing to prescribe in DMV area. Thanks in advance.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:This is very interesting and now the thought has to be with pregnancy supplements possibly being the cause.

Because most autistic and neurodivergent kids seem to come from middle and upper middle class getting proper supplements and care. Although I still think age of mother plays a very important part that society doesn’t want to admit.

They do not “come from middle and upper class”. Middle and upper class have more access to diagnostics.

I very much disagree. There are not many nonverbal autistic kids that are minorities. It is very rare to see, Asian, Hispanic or middle eastern decent have autistic children.

I completely disagree with you on this statement. Our occupational/speech therapy office is filled equally with white, black, asian, hispanic, and south asian kids. I personally know a non-verbal black and a high-functioning Hispanic child. It's the chemicals in food supply and genetic pre-disposition.

Would this also help ADHD?

Thank you! Do you have any doctors you recommend in dmv area? Our pediatrician ordered the kit but not sure if she can prescribe since she’s never heard of FRAT test before.

Someone mentioned Maps doctor, but I didn’t find anyone in the DMV area when looking up the directory on the website.

Thanks in advance!