Anonymous
05/28/2024 21:58
Subject: Re:First Psychosis: What to do next
Any chance she is prescribed steroids for any reason? My mom ended up with frank psychosis from inhalation route for asthma inhaler. She was also on a steroid nasal spray and had been in the hospital with iv steroids previously before the psychosis hit a few days later
Anonymous
05/23/2024 10:47
Subject: Re:First Psychosis: What to do next
Anonymous wrote:Anonymous wrote:Anonymous wrote:So sorry, OP. There are older antipsychotics and second generation ones. The second generation ones tend to have fewer side effects. Maybe she can try a different one. As others have mentioned, it’s really important to get good treatment for the first episode. I’m not in MD so I don’t have any suggestions for you other than maybe Sheppard Pratt, since you said that Johns Hopkins and Kennedy Kreiger were out. They treat adolescents.
I can tell you that I had very late onset psychosis, I was in my mid thirties. It’s now been 12 years since my first episode and I’m doing very well and am a fully functional adult. I hope for the same outcome for your DD.
Are you still taking medication?
PP quoted here. Yes, I anticipate I’ll be on it for life. For the first episode I went off after 6 months, as is the protocol for first episodes, and it came back. I later discontinued, upon the advice of my practitioner, due to side effects, and it returned. Now I’m on one (Latuda) that I tolerate really well and have effectively been in remission for 7-8 years. I expect to stay that way as long as I continue the meds.
TY for responding. First psychosis episode for DC starting a year ago. Still on meds. Was in residential for six weeks starting a week after onset before moving to outpatient. Psychiatrist believes that all symptoms were gone within 8+ weeks after initial onset, but doesn't see DC going off meds for foreseeable future, if ever (possibly different type/dosage, but only LT discussion at this time). There are side effects and trying to manage as best as possible, including with weight loss meds.
TY again for posting. Really appreciate it.
Anonymous
05/22/2024 08:51
Subject: Re:First Psychosis: What to do next
Anonymous wrote:Anonymous wrote:So sorry, OP. There are older antipsychotics and second generation ones. The second generation ones tend to have fewer side effects. Maybe she can try a different one. As others have mentioned, it’s really important to get good treatment for the first episode. I’m not in MD so I don’t have any suggestions for you other than maybe Sheppard Pratt, since you said that Johns Hopkins and Kennedy Kreiger were out. They treat adolescents.
I can tell you that I had very late onset psychosis, I was in my mid thirties. It’s now been 12 years since my first episode and I’m doing very well and am a fully functional adult. I hope for the same outcome for your DD.
Are you still taking medication?
PP quoted here. Yes, I anticipate I’ll be on it for life. For the first episode I went off after 6 months, as is the protocol for first episodes, and it came back. I later discontinued, upon the advice of my practitioner, due to side effects, and it returned. Now I’m on one (Latuda) that I tolerate really well and have effectively been in remission for 7-8 years. I expect to stay that way as long as I continue the meds.
Anonymous
05/22/2024 02:03
Subject: Re:First Psychosis: What to do next
Anonymous wrote:So sorry, OP. There are older antipsychotics and second generation ones. The second generation ones tend to have fewer side effects. Maybe she can try a different one. As others have mentioned, it’s really important to get good treatment for the first episode. I’m not in MD so I don’t have any suggestions for you other than maybe Sheppard Pratt, since you said that Johns Hopkins and Kennedy Kreiger were out. They treat adolescents.
I can tell you that I had very late onset psychosis, I was in my mid thirties. It’s now been 12 years since my first episode and I’m doing very well and am a fully functional adult. I hope for the same outcome for your DD.
Are you still taking medication?
Anonymous
05/21/2024 18:23
Subject: Re:First Psychosis: What to do next
Anonymous wrote:Check out the podcast "Navigating Mental Illness: Parent stories." I think it started out as a Facebook group, and the host is wonderful.
Find people who are going through the same thing, like others said.
+1 agree!
Anonymous
05/21/2024 17:11
Subject: Re:First Psychosis: What to do next
So sorry, OP. There are older antipsychotics and second generation ones. The second generation ones tend to have fewer side effects. Maybe she can try a different one. As others have mentioned, it’s really important to get good treatment for the first episode. I’m not in MD so I don’t have any suggestions for you other than maybe Sheppard Pratt, since you said that Johns Hopkins and Kennedy Kreiger were out. They treat adolescents.
I can tell you that I had very late onset psychosis, I was in my mid thirties. It’s now been 12 years since my first episode and I’m doing very well and am a fully functional adult. I hope for the same outcome for your DD.
I can tell you that I had very late onset psychosis, I was in my mid thirties. It’s now been 12 years since my first episode and I’m doing very well and am a fully functional adult. I hope for the same outcome for your DD.
Anonymous
05/21/2024 09:58
Subject: Re:First Psychosis: What to do next
Anonymous wrote:Anonymous wrote:Anonymous wrote:Keto diet ASAP. Not kidding or being flippant. Read Brain Energy by psychiatrist Chris Palmer. Much love to you, OP!
Are you fing crazy. Keto diet is only for refractory epilepsy.
Actually, that is NOT true. Keto diet is being seriously looked at for Bipolar and Schizophrenia at Mass general/Harvard and other top notch psychiatry programs, obviously its not as an alternative to treatment but rather as an adjunct-at least at this time. Google it. Some top researchers are doing very well controlled trials.
Also for alcohol addiction. There's legitimate scientific inquiry into possible benefits of ketogenic diet, wacky though it may sound.
Anonymous
05/20/2024 18:35
Subject: Re:First Psychosis: What to do next
Anonymous wrote:Anonymous wrote:Keto diet ASAP. Not kidding or being flippant. Read Brain Energy by psychiatrist Chris Palmer. Much love to you, OP!
Are you fing crazy. Keto diet is only for refractory epilepsy.
Actually, that is NOT true. Keto diet is being seriously looked at for Bipolar and Schizophrenia at Mass general/Harvard and other top notch psychiatry programs, obviously its not as an alternative to treatment but rather as an adjunct-at least at this time. Google it. Some top researchers are doing very well controlled trials.