Anonymous wrote:Anonymous wrote:8:09 again. I think my post makes this clear but let me be explicit: there is nothing hopeless about having an ASD.
Honestly, this is how stigmas are created and perpetuated.
The "stigma" actually comes from studies like this:
http://sfari.org/news-and-opinion/news/2011/people-with-milder-forms-of-autism-struggle-as-adults
People with milder forms of autism struggle as adults
Blurred boundaries: Social skills have a greater impact on quality of life for people on the autism spectrum than do any specific diagnoses.
Contrary to popular assumption, people diagnosed with so-called mild forms of autism don’t fare any better in life than those with severe forms of the disorder. That’s the conclusion of a new study that suggests that even individuals with normal intelligence and language abilities struggle to fit into society because of their social and communication problems.
In fact, people diagnosed with pervasive developmental disorder-not otherwise specified (PDD-NOS) are no more likely to marry or have a job than those with more disabling forms of autism, according to a Norwegian study published online in June in the Journal of Autism and Developmental Disorders1.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:^Now you've done it. MERLD mom will now say that when the kid's speech comes in, the a MERLD kid will be NT.
The catch is that not all MERLD kid's speech "comes in" then it's a good bet that there is something more going on than just MERLD.
If your kid is 10+ yrs old and still has MERLD, it's probably a good idea to see exactly what is going on.
My kid is 12 and still has severe MERLD -- as well as other additional diagnosis that complicates things for him academically.
He's still not autistic, though.
Why do you so desperately want MERLD children to be autistic? Is it because it makes your situation not appear so hopeless?
Why do you stigmatize kids with ASDs as hopeless?
Kids with MERLD don't have good outcomes. Most kids with MERLD have worse outcomes than kids with HFA or Asperger's.
http://www.medmerits.com/index.php/article/developmental_language_disorder/P10
I am not the PP to whom you respond.
I read the link posted. It doesn't say anything about MERLD outcomes compared to ASD outcomes. It does say that kids with mixed language disorders (like MERLD) have long term issues, but there are no stats and no specific comparisons to non-language disorder diagnoses, so your statement is not supported by your citation/link.
Personally, I think it's pointless to make an overarching statement about MERLD vs. Autism outcomes. Each diagnosis has a very wide range from mild to severe disability. In each group you can find one mildly affected person who will have a better outcome than a more severely affected person with another diagnosis. In other words, a person with mild MERLD will likely have a better outcome than a person with severe autism. Or a high functioning Asperger's-like autistic child might have a very good adult outcome when compared with a MERLD child who is so severely affected that they really don't have much expressive speech. IQ is probably also a confounding attribute.
It's not a competition.
Anonymous wrote:8:09 again. I think my post makes this clear but let me be explicit: there is nothing hopeless about having an ASD.
Honestly, this is how stigmas are created and perpetuated.
Anonymous wrote:Anonymous wrote:Anonymous wrote:^Now you've done it. MERLD mom will now say that when the kid's speech comes in, the a MERLD kid will be NT.
The catch is that not all MERLD kid's speech "comes in" then it's a good bet that there is something more going on than just MERLD.
If your kid is 10+ yrs old and still has MERLD, it's probably a good idea to see exactly what is going on.
My kid is 12 and still has severe MERLD -- as well as other additional diagnosis that complicates things for him academically.
He's still not autistic, though.
Why do you so desperately want MERLD children to be autistic? Is it because it makes your situation not appear so hopeless?
Why do you stigmatize kids with ASDs as hopeless?
Kids with MERLD don't have good outcomes. Most kids with MERLD have worse outcomes than kids with HFA or Asperger's.
http://www.medmerits.com/index.php/article/developmental_language_disorder/P10
Anonymous wrote:Anonymous wrote:Anonymous wrote:
A study like that doesn't surprise me, unfortunately. Too many people don't do enough research to get the specific help the children need. Luckily, in the MERLD groups I'm involved in, most of the children are progressing well.
Autism is a severe lifelong developmental disorder. Most do not marry nor hold jobs. MERLD is something different, although with plenty of its own challenges.
Now, lots of kids today are being called "ASD" -- but they are not truly autistic. Instead, the have a mixture of challenges that a sloppy system lops together as ASD.
Autism can be severe or it can be mild. It varies widely. The apparent increase in people with ASDs is largely due to treaters recognizing more cases taht are mild and providing help for those kids. That's a good thing because more people are getting help.
Please stop spreading stigma and stereotypes about what it means to have an ASD.
The poster above you sounds just like the poster who kept insisting my kid with ASD/Asperger's cannot have ASD/Asperger's b/c they didn't have enough issues/problems. My kid doesn't have academic issues or problematic behaviors and has always attended a mainstream school. He has two cousins who were diagnosed last year with ASD/Asperger's living in another state who are exactly the same. They all were diagnosed with ASD at their school's suggestion with full neuropsych evals.
My son and nephews are all pretty much like their fathers, my husband and brother, who are both ivy educated, married professionals with careers (NOT in STEM!)
For whatever reason, this person is very invested in believing ASD is only ASD if the it's only at the severe end of the spectrum. Not sure why since they don't have a kid with ASD...
Anonymous wrote:Can a child have Auditory Processing disorder, ADD, and a language disorder? Or would most physicians just call this ASD?
My nephew was a rule out PDD NOS at 2 yo. But now at 6 y.o. I do not think he is still on the spectrum. I think he has multiple disorders especially a language deficit which impacts everything. I believe he thinks socially, and can be social without a lot of language. He likes to do things with friends, especially non language based activities - like play at the park, or crafts etc. He likes kids and asks for them, and smiles at them, but is not very verbally comfortable with them. He can do the "basics" like greeting and showing them around the house, showing his toys, etc. but when it comes to pretend play he just can not keep up verbally.
Also my sister has him on celexa for severe anxiety. He started speaking and answering us immediately after this. So I even wonder if he had selective mutism. Anyway, he has a lot of things going on, but he is so compassionate and always has been. He is so affectionate and always has looked at us, his family, in the face and been aware of our feelings and seemed emotional in tune with us. He has no negative behaviors. And does not some reassurance when things change, because of his anxiety. His teachers call him a people pleaser and perfectionist.
I think this school thinks he is Autistic. Of course this is fine if appropriate, but to me he is so much more improved since he was 2 y.o. Could this be MERLD? He definitely is a visual learner.
Does any know someone who spends time getting to know the child and family before giving an ASD diagnosis? If it is autism I would be really surprised. I just think it is something else and would like someone who did not use a language based test but other ways to determine what is going on?
I understand there is a different approach with ASD and Merld or significant Language Disorder and would want to make sure we were using the appropriate techniques at home and in class.
Anonymous wrote:Anonymous wrote:Anonymous wrote:
22:48 here:
The roots of the language disorders with MERLD and autism are different. Autism language therapy typically focuses on compliance and teaching social communication skills along with language, while MERLD children do best with back and forth matched responsive play-based therapies designed for a child with a speech disorder.
Once a MERLD child's language has come in, they become fairly typical kids with only residual language weaknesses that they learn to cope with. Once a child with autism has language, it becomes more and more apparent they are autistic, and they then have to cope with the other issues that autism brings.
That's not true PP. I have a non-ASD kid with MERLD and APD too.
This describes my child perfectly. As the speech is coming in, the functioning and social skills are coming very quickly. The autism therapy was worthless as we didn't have the typical behaviors that needed addressed at home (or we were doing ok with them). Our primary focus is on speech. Everything else is coming naturally when it is ready as the speech progresses.
Every child is different and should be looked at in that way.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:^Now you've done it. MERLD mom will now say that when the kid's speech comes in, the a MERLD kid will be NT.
The catch is that not all MERLD kid's speech "comes in" then it's a good bet that there is something more going on than just MERLD.
If your kid is 10+ yrs old and still has MERLD, it's probably a good idea to see exactly what is going on.
My kid is 12 and still has severe MERLD -- as well as other additional diagnosis that complicates things for him academically.
He's still not autistic, though.
Why do you so desperately want MERLD children to be autistic? Is it because it makes your situation not appear so hopeless?
Why do you stigmatize kids with ASDs as hopeless?
Kids with MERLD don't have good outcomes. Most kids with MERLD have worse outcomes than kids with HFA or Asperger's.
http://www.medmerits.com/index.php/article/developmental_language_disorder/P10
A study like that doesn't surprise me, unfortunately. Too many people don't do enough research to get the specific help the children need. Luckily, in the MERLD groups I'm involved in, most of the children are progressing well.
Autism is a severe lifelong developmental disorder. Most do not marry nor hold jobs. MERLD is something different, although with plenty of its own challenges.
Now, lots of kids today are being called "ASD" -- but they are not truly autistic. Instead, the have a mixture of challenges that a sloppy system lops together as ASD.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:^Now you've done it. MERLD mom will now say that when the kid's speech comes in, the a MERLD kid will be NT.
The catch is that not all MERLD kid's speech "comes in" then it's a good bet that there is something more going on than just MERLD.
If your kid is 10+ yrs old and still has MERLD, it's probably a good idea to see exactly what is going on.
My kid is 12 and still has severe MERLD -- as well as other additional diagnosis that complicates things for him academically.
He's still not autistic, though.
Why do you so desperately want MERLD children to be autistic? Is it because it makes your situation not appear so hopeless?
Why do you stigmatize kids with ASDs as hopeless?
Kids with MERLD don't have good outcomes. Most kids with MERLD have worse outcomes than kids with HFA or Asperger's.
http://www.medmerits.com/index.php/article/developmental_language_disorder/P10
A study like that doesn't surprise me, unfortunately. Too many people don't do enough research to get the specific help the children need. Luckily, in the MERLD groups I'm involved in, most of the children are progressing well.
Autism is a severe lifelong developmental disorder. Most do not marry nor hold jobs. MERLD is something different, although with plenty of its own challenges.
Now, lots of kids today are being called "ASD" -- but they are not truly autistic. Instead, the have a mixture of challenges that a sloppy system lops together as ASD.
Anonymous wrote:Anonymous wrote:Anonymous wrote:^Now you've done it. MERLD mom will now say that when the kid's speech comes in, the a MERLD kid will be NT.
The catch is that not all MERLD kid's speech "comes in" then it's a good bet that there is something more going on than just MERLD.
If your kid is 10+ yrs old and still has MERLD, it's probably a good idea to see exactly what is going on.
My kid is 12 and still has severe MERLD -- as well as other additional diagnosis that complicates things for him academically.
He's still not autistic, though.
Why do you so desperately want MERLD children to be autistic? Is it because it makes your situation not appear so hopeless?
Why do you stigmatize kids with ASDs as hopeless?
Kids with MERLD don't have good outcomes. Most kids with MERLD have worse outcomes than kids with HFA or Asperger's.
http://www.medmerits.com/index.php/article/developmental_language_disorder/P10
Anonymous wrote:Anonymous wrote:
22:48 here:
The roots of the language disorders with MERLD and autism are different. Autism language therapy typically focuses on compliance and teaching social communication skills along with language, while MERLD children do best with back and forth matched responsive play-based therapies designed for a child with a speech disorder.
Once a MERLD child's language has come in, they become fairly typical kids with only residual language weaknesses that they learn to cope with. Once a child with autism has language, it becomes more and more apparent they are autistic, and they then have to cope with the other issues that autism brings.
That's not true PP. I have a non-ASD kid with MERLD and APD too.