Anonymous wrote:My TSH level right now is 200 and I literally feel as though I am dying. I can't remember anything. I feel weak just to sit or stand. I could sleep 15+ hours if i didnt have to work. By Free T4 is 0.34 which is low. My doctor said I shouldnt even be driving right now let alone working. My kidney levels are elevated and my SED rate is high.
I am considering going out of work for a little while because I cant function anymore until I get help. I live in the Raleigh NC area if anyone has any suggestions please let me know. thank you.

Anonymous wrote:The normal range for TSH is a low of .3-.5 (depending on the doctor, the latest study, etc) and a high of 3.0-5.5 (again, depending on who you ask. But, I basically say "normal" is .3-5.5. My TSH from the last few blood tests ranges from 17.46 - 114.43 and I hardly ever show symptoms.

I even went for a few years without taking Synthroid because I didn't feel any symptoms, EVER. I have been prescribed Synthroid (or some generic form) for the past 14 years and just recently started feeing minor symptoms if I don't take it. A couple years back I stopped taking it because I was sick of going in for blood tests every 6-12 months and I was sick of paying for my rx every month and driving to the pharmacy... it was just kinda inconvenient for me, especially because I have never felt the NEED to take it, the docs just said I had to.

Well, now that I'm 30 years old, I start getting REALLY REALLY tired if I don't take it. I ran out just last month and the pharmacy wouldn't give me a new prescription until I saw a doctor. I told them I had a new doctor but they couldn't see me for another 6 weeks. They said I had to get a new rx before they could give me more Synthroid. My old doc wouldn't give me a prescription because it had been over a year since my last blood test, my new doc wouldn't give me a prescription because I hadn't been seen yet, and so I went a few weeks with nothing. I was only off the meds for about 2 weeks and my TSH levels got up to 114 earlier this week. I was SUPER tired, but other than that felt fine.

I hate the fact that I have to take a pill every day of my life for the rest of my life. ...but it could be worse! So, I guess I'm thankful.

Anonymous wrote:If only it was that simple, I was diagnosed 14 years ago and they have never been able to get it within normal range. Endocrinologist had me at 725mcg daily and it would not come down. Tsh 563.. imagine the hell i was living. Come to find out my body was not absorbing it. I tried chewing it, letting it desolve under my tongue, you name it I tried it. Now I take 200mcg IM injection daily, that means i take 4 shots daily. Not to mention that I have a hard time getting the supply that I need from the pharmacy and a few thousand dollars a month. Current tsh over 100 and been taking the shots for over 8 months.
I have to laugh when people complain that their tsh is at 100 or below. I live with sever body pains daily and would give anything to have a normal level.
Signed miserable in Nebraska

Anonymous wrote:I just got labs drawn (7 mos Postpartum) and my TSH was 116. I've already seen an Endocrinologist and have started Synthroid but she made a big deal about how high my TSH was. I've talked to multiple people that have hypothyroid (Hashimotos) and the highest TSH I've heard is in the 50 range.

Is there anyone out there who has had a TSH over 100?

... I'm actually becoming a little worried that I've been walking around with such a high TSH for god knows how long.

Anonymous wrote:I just got labs drawn (7 mos Postpartum) and my TSH was 116. I've already seen an Endocrinologist and have started Synthroid but she made a big deal about how high my TSH was. I've talked to multiple people that have hypothyroid (Hashimotos) and the highest TSH I've heard is in the 50 range.

Is there anyone out there who has had a TSH over 100?

... I'm actually becoming a little worried that I've been walking around with such a high TSH for god knows how long.