Anonymous wrote:OP here. NCS and EMG were only mild uncomfortable in my personal experience. ALS ruled out (yayyyyyyyyy!!!) but still need to go for mri (likely the issue is coming from CNS)

Huge sigh of relief and congratulations to you!!

Anonymous wrote:OP here with an update. I went to the neurology center yesterday and had an assessment visit. I am scheduled soon for an EMG and at some point also for an mri. I am a bit concerned. Dr was wonderful but I have the impression that is trying to rule out ALS. I am very surprised because my symptoms are persistent but mild and barely noticeable; I went in with a clinical diagnosis of age related neuropathy. We shall see..

They have to rule out the worst.

In my case that was a brain tumor.

I was fine, and hope that you will be too.

OP here. NCS and EMG were only mild uncomfortable in my personal experience. ALS ruled out (yayyyyyyyyy!!!) but still need to go for mri (likely the issue is coming from CNS)

I had one for neuropathy to rule out certain conditions. It was uncomfortable but nothing too bad. I will say that it helped me not to know much about the test in advance. When I was undergoing infertility treatment and had to get an HSG I did too much Googling beforehand and went in absolutely terrified. Again, it was mildly uncomfortable but nothing like I'd feared. The people who have the absolute worst experiences with uncomfortable procedures--usually with less skilled or caring practitioners--feel compelled to share them. Those whose experiences are more ho-hum do not.

Anonymous wrote:Mine hurt a lot when they did the part with my lower legs, maybe because the muscles are larger.

They didn't find anything conclusive. I still have tingling.

Mine was mildly uncomfortable but not painful. It has been 4 years and they've never found the source. Super frustrating.

Mine hurt a lot when they did the part with my lower legs, maybe because the muscles are larger.

They didn't find anything conclusive. I still have tingling.

OP here. PP thanks very much for the clear answers. I agree this is likely what the neurologist is trying to assess. As I sad before I am a bit puzzled because my symptoms are very mild so far

^ sorry to be clear, in The EMG will look for ALS but also other nerve related issues. If they don’t find anything like that there, then they would move to the MRI which is when they start looking at MS.

Anonymous wrote:OP here with an update. I went to the neurology center yesterday and had an assessment visit. I am scheduled soon for an EMG and at some point also for an mri. I am a bit concerned. Dr was wonderful but I have the impression that is trying to rule out ALS. I am very surprised because my symptoms are persistent but mild and barely noticeable; I went in with a clinical diagnosis of age related neuropathy. We shall see..

I’m sorry I know it seems scary. As you mentioned earlier that one of your doctors said they don’t think the neuropathy is coming from your spine – in that case they will look for things like ALS and MS. If the EMG shows it is nerve related, that’s on the better side of the news.