Anonymous wrote:Anonymous wrote:My mother took care of my grandmother, who had been diagnosed with Alzheimer's, at home for about 12 years. The caregiving started when I was a teenager. There was nothing about the experience I would want to repeat. It was awful. My mother's life revolved around my grandmother's all-consuming care.
My mother ended up dying 18 months after her mother died. She thought she was gonna be free after the caregiving ended. But she was not. Instead she became a cancer patient and died quickly thereafter.
I know I loved my grandmother at some point. But I don't remember that anymore. I am just angry at her for robbing me of a normal relationship with my mom. I know she did not do it on purpose. I get all that. But. I wish instead my mom would have placed her in a facility near us where we could interact with her without all the stress the caregiving introduced into our family.
Don't do this to yourself and your kids.
Thank you for sharing this story. Women are sold this myth that endless sacrifice for your parents will reap rewards and teach your kids to do the same for you and you will be blessed. Nope. The truth is a lot of people deplete themselves to the point of serious illness, a lot die at a younger age than their own parent and it can be damaging to the families they created.
My dad grew up with crazy elderly grandma in the house. He resented it. As soon as he went off to college, he never came back and he hated his mother for always putting grandma first. He did not visit his mother when she was dying. His childhood is filled with bad memories and guilt trips. it is a gift to teach your kid healthy boundaries. You can love grandma, visit her and still take care of yourself and make your own family you created a priority.
Anonymous wrote:Parent didn’t live with us but we took kids to visit multiple times per week from preschool to middle school age. I think it taught them empathy and patience but I realize living with them full time might have been very different and much harder.
Anonymous wrote:the “good people “ comment really touched a nerve. I think it’s great your parents were able to handle taking care of both their parents with Alzheimer’s and their school age kids and it set a good example of responsibility.
This option is not for everyone depending on how Alzheimer’s is presenting, safety issues, how old the kids are , etc.
I don’t think the “good people “ poster meant to be judgmental.
Anonymous wrote:My grandparent with dementia lived with my family when I was a teenager. Yes, it was difficult sometimes, but my siblings and I learned good things from the experience.
We learned about taking care of the elderly, we learned that a person is still loved and worthy of our care even when their personality seems to have gone from their body. We learned that our parents were willing to make sacrifices to take care of their parents: a lesson that we learned well and thought back on many years later while we were taking care of our parent with dementia.
We also learned that life is not always perfect and that people are not always perfect, but we continue to care for and love people even when it is very, very difficult. Because that is what good people do. And my parents gave us an unforgettable example of what it means to be and how to be a good person. I am very thankful today for that experience of my grandparent living and eventually dying within the care of my family.
Thank you for sharing this story. Women are sold this myth that endless sacrifice for your parents will reap rewards and teach your kids to do the same for you and you will be blessed. Nope. The truth is a lot of people deplete themselves to the point of serious illness, a lot die at a younger age than their own parent and it can be damaging to the families they created.
My dad grew up with crazy elderly grandma in the house. He resented it. As soon as he went off to college, he never came back and he hated his mother for always putting grandma first. He did not visit his mother when she was dying. His childhood is filled with bad memories and guilt trips. it is a gift to teach your kid healthy boundaries. You can love grandma, visit her and still take care of yourself and make your own family you created a priority.
Anonymous wrote:No way sorry. Maybe in the early stages but not later on. My parent w dementia has at times: been really angry, aggressive and mean, saying awful things, throwing and breaking objects in the house, staying up til all hours of the night, stomping around and turning music up loud, left dish towels on top of a hot burner starting a small fire, locked herself into/out of rooms, ran water until it overflows, physically hurt others, hide things around the house constantly and no one can find them (this has happened multiple times w important items like keys and phones, medicine) etc etc. I don’t expect my young kids to understand that. It’s scary and upsetting even for adults and it’s not a safe environment. It could be very damaging to them not to mention how unfair it is to the person w Alzheimer’s who no doubt feels unsafe and confused living like that as well.
This +100. People who don't have direct experience with dementia/Alzheimer's don't understand. It's so much more than memory loss. My grandfather became physically abusive to his wife in his later years with Alzheimers. My dad, diagnosed with mild cognitive impairment, has started yelling and cursing at my mom -- completely out of character for him. We are meeting as a family now to determine when to move him into a care facility before he physically hits her -- it's only a matter of time. No way would I put my kids in this kind of harm's way. But cases are unique and you may be able to swing caregiving at home -- just know your limits and have a backup plan.
No way sorry. Maybe in the early stages but not later on. My parent w dementia has at times: been really angry, aggressive and mean, saying awful things, throwing and breaking objects in the house, staying up til all hours of the night, stomping around and turning music up loud, left dish towels on top of a hot burner starting a small fire, locked herself into/out of rooms, ran water until it overflows, physically hurt others, hide things around the house constantly and no one can find them (this has happened multiple times w important items like keys and phones, medicine) etc etc. I don’t expect my young kids to understand that. It’s scary and upsetting even for adults and it’s not a safe environment. It could be very damaging to them not to mention how unfair it is to the person w Alzheimer’s who no doubt feels unsafe and confused living like that as well.