So glad to hear the good news OP! Moving to a step down unit is a great sign of recovery! Hoping she will be home for the holidays.

OP here - thank you this is incredibly generous. We have very good health insurance due to her asthma although have never really benefited from it. We also both have very understanding company we both work at who have allowed all this time off. DH will be back this week, but I've got paid leave until we leave hospital.

I couldn't possibly set up a gofundme, as much as I've appreciated the support, I am an anonymous poster on an anonymous website and I wouldn't want the love and care shown to my daughter consider others to take advantage of this.

We're in a privileged position to have solely been able to focus on the care of our daughter without worries of jobs, finance, childcare or bills. The care and reassurance of a wider community was what I needed and what I got , so thank you for this

Anonymous wrote:

Anonymous wrote:OP, if you wanted to start a GoFundMe to help offset the cost of the hospital stay, I’d be happy to contribute to it.

With all due respect, this is crazy. You have no idea who OP is or if any of this is true. Don't be so naive.

What’s crazy is you telling me what to do, or not, with my own money. You have no idea what my financial situation is. I think giving prayers is more intimate and important than giving my money; perhaps you feel differently, and that is find. You mind your business. I did not say “let’s all contribute to it,” I said what *I* would do with *my* money.

Stay in your lane.

I've been following this thread and this is my first post. Op, I don't know you or your child, but I am so relieved that she is on the mend. My child had a medical emergency a few years ago and I experienced post traumatic stress as a result. Just throwing this out: as you help your child recover, you and your spouse should take good care of yourselves, along with your other child. Try to recognize the signs of trauma...replaying the events and decisions, feeling guilty, etc. You were really feeling it and have been through the wringer (and your still there). Happy holidays. Give you child a big hug from dcum.

Anonymous wrote:OP, if you wanted to start a GoFundMe to help offset the cost of the hospital stay, I’d be happy to contribute to it.

With all due respect, this is crazy. You have no idea who OP is or if any of this is true. Don't be so naive.

OP, if you wanted to start a GoFundMe to help offset the cost of the hospital stay, I’d be happy to contribute to it.

Anonymous wrote:OP, I’m so glad for the good news, and so grateful for your update. Happy Thanksgiving! You sharing this journey with us has helped US in so many ways. You’ve reminded us to follow our gut, you’ve reminded us to do our best and treat ourselves with kindness so we can be present for our kids, you’ve taught us to cherish our good health and good times. Stay strong, you are doing such an amazing job.

Be sure to write down all release instructions, and (I’m sure you have) but make sure your pediatrician knows the full scenario and gives you an emergency line to call after hours.

OP here-Thank you happy thanksgiving! I think we're likely a good week away from discharge, hopefully as soon as she can fully breathe on her own and had consistently eaten and drank.

I appreciate these it does sound likely that we could hit stumbling blocks over Christmas. Whilst I want to watch out for those I think my next learning action is to strike a balance between keeping her from any slight risks vs letting her be a child again, once she is fit enough to do so.

OP, I’m so glad for the good news, and so grateful for your update. Happy Thanksgiving! You sharing this journey with us has helped US in so many ways. You’ve reminded us to follow our gut, you’ve reminded us to do our best and treat ourselves with kindness so we can be present for our kids, you’ve taught us to cherish our good health and good times. Stay strong, you are doing such an amazing job.

Be sure to write down all release instructions, and (I’m sure you have) but make sure your pediatrician knows the full scenario and gives you an emergency line to call after hours.

Wishing a quick recovery to your daughter and a wonderful holiday season to your family! Hugs!

Oh yes we pray

Hoping she will be home for Thanksgiving!

So glad your daughter is doing better. Sending you and your family best wishes from afar.

Another really positive day! Fingers crossed we'll be moving out of icu tomorrow. She's down to just nose oxygen now and her inflame has reduced. As it's less specialist I can spend more time with my daughter. I think this will be one of my final updates so will stop posting all the time.

THANK YOU so much for your support, it meant so so much. I can't put it into words so am not going to try too much. This has been a horrible journey but we're nearing it's end. If anyone has tips for looking after her out of hospital to get a full recovery for those who've experienced this already, that would be incredibly useful.

You did a good job OP. You got your daughter through the worst of it. Well done. Stay positive.

Thank you for the updates, OP. Lots of rest. We’re all here for you. One step at a time.