Anonymous wrote:OP here. NCS and EMG were only mild uncomfortable in my personal experience. ALS ruled out (yayyyyyyyyy!!!) but still need to go for mri (likely the issue is coming from CNS)
Anonymous wrote:OP here with an update. I went to the neurology center yesterday and had an assessment visit. I am scheduled soon for an EMG and at some point also for an mri. I am a bit concerned. Dr was wonderful but I have the impression that is trying to rule out ALS. I am very surprised because my symptoms are persistent but mild and barely noticeable; I went in with a clinical diagnosis of age related neuropathy. We shall see..
Anonymous wrote:Mine hurt a lot when they did the part with my lower legs, maybe because the muscles are larger.
They didn't find anything conclusive. I still have tingling.
Anonymous wrote:OP here with an update. I went to the neurology center yesterday and had an assessment visit. I am scheduled soon for an EMG and at some point also for an mri. I am a bit concerned. Dr was wonderful but I have the impression that is trying to rule out ALS. I am very surprised because my symptoms are persistent but mild and barely noticeable; I went in with a clinical diagnosis of age related neuropathy. We shall see..
Anonymous wrote:Anonymous wrote:I had one. They found nothing. My hand still tingles. Feels like pins and needles. Something is wrong but no one seems to know what.
omg, me too, except it's just my feet that tingle.
I had a nerve conduction study done, and they found nothing much. It was painful. I had my spouse go with me, and I'm glad I did because I felt a bit wobbly afterwards probably from the pain and adrenaline or something, so my spouse drove home.
I have been to a neurologist, neurosurgeon, ortho, podiatrist, acupuncture, PT... no one seems to know what's causing it. I think it's a pinched nerve somewhere, but the MRI didn't find anything. Ugh.
Anonymous wrote:If you did it how was it? Some people say is awful other say just mildly uncomfortable. Also, what additional informations you got from the testing if you already had a recent diagnosis of neuropathy?
TIA
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:DH had lower leg/foot pain for years. He spent 2020-2025 and thousands of dollars getting spine related treatments. After all, he had sciatica, had a disc operation and had scoliosis. MUST be back. He lived in terror and cure seeking and medication seeking because of his spine terror. Injections, nerve blocks, facet joint ablations...Also podiatists for orthotics.
Finally went to an ankle doc at WOSM. Said I don't think it's your back go see this guy for a nerve conduction study. Turns out it was a pinched nerve in his lower leg. Not back at all.
But it had been left untreated so long the damage was permanent. Dry needling and massge helps now. He gets that weekly. But no spine fusions!
OP here. Thank you for this. At some point I was sent to a neurosurgeon for an evaluation and he was the first one to say that he was not sure my problems were coming from the spine and suggested to go back to a ‘regular’ neurologist. I am at the point that I really want to get a correct diagnosis especially to avoid unnecessary treatments
Have you tried a getting a recommendation to a neurologist with a clinical neuromuscular or nuerophysiology subspecialty?
OP here. My PCP decided to send me to a center specialized in neurological disorders; you can get in only through referral and cannot pick the provider for the screening. I looked up the dr I am assigned to but the description is very vague. My first appointment is next week so we will see how it goes