Anonymous
Post 10/04/2020 01:07     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
OP, any updates? Hope your son is recovering well.
Anonymous
Post 09/21/2020 02:04     Subject: Re:I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Anonymous wrote:OP here, we came home yesterday! Spent a long time sleeping since then lol. We are still waiting for the Acute Rheumatic Fever labs to get back. If they are positive he has to have a shot pf penicillin monthly till he is 21, which in the large scale of life is not that bad. If its negative we are thinking its MIS-C. He had a lot of boxes checked off for MIS-C, but there is no yes/no diagnosis at this time. Lyme has been negative x 3, we can always get it tested again in a few weeks if it takes that long to show up. Really the best case scenario is MIS-C at this point. Will post when I have the results back. Thank you all for your support during a scary and stressful time!!!


Congratulations! I am the person whose kid had a variety of terrible things who wrote. For what it's worth, and apologies for injecting uncertainty, but we were told that our child had MIS-C but that a lot of MIS-C is about "checking the boxes," in the sense that they make the diagnostic criteria deliberately vague so that cases are caught... and that this doesn't mean that your kid necessarily has the 'spirit' of the disease, if that makes sense.
Anonymous
Post 09/21/2020 00:13     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Thank you for updating us. So glad he is home and recovering!
Anonymous
Post 09/19/2020 18:19     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Anonymous wrote:Congrats on being home.
My mom’s only sibling died from rheumatic fever before there were antibiotics—so glad you caught it! Is that basically a strep test?


Op here, no they tested for 2 types of antibodies and/or markers in the blood. I don't have them back yet. He was tested for strep last week and it was negative.
Anonymous
Post 09/19/2020 18:17     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Anonymous wrote:Thanks for the update! Did he test positive for COVID antibodies?


OP here, he was negative
Anonymous
Post 09/19/2020 11:52     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Congrats on being home.
My mom’s only sibling died from rheumatic fever before there were antibiotics—so glad you caught it! Is that basically a strep test?
Anonymous
Post 09/19/2020 11:39     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Thanks for the update! Did he test positive for COVID antibodies?
Anonymous
Post 09/19/2020 11:22     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
So glad he is home! Hugs.
Anonymous
Post 09/19/2020 09:56     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
So glad you are home and he is recovering, OP! That’s great news. Hang in there!!
Anonymous
Post 09/18/2020 22:44     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
I’m truly so glad for you guys! Wishing you well and smooth recovery. Take care!!
Anonymous
Post 09/18/2020 18:12     Subject: Re:I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
OP, so glad he is doing better. I hope you can get some rest this weekend.
Anonymous
Post 09/18/2020 18:02     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Hang in there, OP. I'm so glad he's home!
Anonymous
Post 09/18/2020 17:56     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
Welcome home, OP!
Anonymous
Post 09/18/2020 17:53     Subject: I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
My dad had rheumatic fever as a teen (in the 30s). He takes penicillin. I believe it was from a missed or untreated strep infection. Always treat strep fully!
Anonymous
Post 09/18/2020 17:28     Subject: Re:I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong
OP here, we came home yesterday! Spent a long time sleeping since then lol. We are still waiting for the Acute Rheumatic Fever labs to get back. If they are positive he has to have a shot pf penicillin monthly till he is 21, which in the large scale of life is not that bad. If its negative we are thinking its MIS-C. He had a lot of boxes checked off for MIS-C, but there is no yes/no diagnosis at this time. Lyme has been negative x 3, we can always get it tested again in a few weeks if it takes that long to show up. Really the best case scenario is MIS-C at this point. Will post when I have the results back. Thank you all for your support during a scary and stressful time!!!